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Journal Articles

Multi-dimensional adherence patterns in rare haematological conditions: Longitudinal analysis of real-world patient-reported outcomes

Kim Summers, Orlando Agrippa, Andrea Preston, Muna Yusuf, Tushar Singh, Georgina O'Neill, Claire Harrison, Patrick Harrington, Shirley D'Sa, Paul Telfer, Sanne Lugthart

Blood (2025) 146 (Supplement 1): 7973.

https://doi.org/10.1182/blood-2025-7973

Published: 2025

Journal Articles

WM-voice: An international discrete choice experiment on treatment preferences in 1,455 patients with Waldenström macroglobulinemia

Anne-Marie Becking, Pythia Nieuwkerk, Michelle Postek, Karima Amaador, Sophie Bernelot Moens, Linda Bronsgeest, Shirley D'Sa, Pierre Faubert, Carl Harrington, Paul Kitchen, David Macdonald, Monique Minnema, Alison McKinney, Lia Palomba, Ibrahim Tohidi-Esfahani, Judith Trotman, Andrew Warden, Marie José Kersten, Josephine Vos

Blood (2025) 146 (Supplement 1): 519.

https://doi.org/10.1182/blood-2025-519

Published: 2025

Journal Articles

The use of MYD88 and IGH PCR in the diagnosis and follow up of Βing-neel syndrome

Ke Xu, June Hyun, Robert Baker, Evan Vitsaras, Nicole Japzon, Shiwen Koay, Jahanzaib Khwaja, Jindriska Lindsay, Charalampia Kyriakou, Michael Lunn, Rajeev Gupta, Shirley D'Sa

Blood (2025) 146 (Supplement 1): 5736.

https://doi.org/10.1182/blood-2025-5736

Published: 2025

Journal Articles

Real world outcomes of patients with cold agglutinin disease

Jahanzaib Khwaja, Nicole Japzon, Maria Gabriel, Robert Baker, Rajeev Gupta, Jindriska Lindsay, Charalampia Kyriakou, Shirley D'Sa

Blood (2025) 146 (Supplement 1): 4677.

https://doi.org/10.1182/blood-2025-4677

Published: 2025

Journal Articles

Real World Treatment Outcomes in the First Line Management of Waldenström Macroglobulinemia from the Global Patient Derived Data Registry, Whimsical

Ryan Low, Andrew Warden, Michelle Postek, Peter Denardis, Charalampia Kyriakou, Adam J. Olszewski, Marie José Kersten, Josephine M.I. Vos, Sheeba K. Thomas, Shirley D'Sa, Newton Guerin, Carl Harrington, Judith Trotman, Ibrahim Tohidi-Esfahani

Blood (2024) 144 (Supplement 1): 1654.

https://doi.org/10.1182/blood-2024-202820

Published: 2024

Journal Articles

Bing-Neel Syndrome - a Case Series of 46 Patients from the United Kingdom

Oliver M Tomkins, Jahanzaib Khwaja, Nicole Japzon, Shiwen Koay, Chandrashekar Hoskote, Charalampia Kyriakou, Jindriska Lindsay, Michael P Lunn, Shirley D'Sa

Blood (2024) 144 (Supplement 1): 3039.

https://doi.org/10.1182/blood-2024-206989

Published: 2024

Journal Articles

Expanded Genome-Wide Association Study (GWAS) Identifies Nine Novel Germline Risk Loci for Waldenström Macroglobulinemia (WM) and Lymphoplasmacytic Lymphoma (LPL)

Blood (2024) 144 (Supplement 1): 4358.

https://doi.org/10.1182/blood-2024-211588

Published: 2024

Journal Articles

Social Deprivation Affects Survival in Waldenström Macroglobulinaemia: Experience in the United Kingdom

Jahanzaib Khwaja, Oliver M Tomkins, Nicole Japzon, Jindriska Lindsay, Charalampia Kyriakou, Shirley D'Sa

Blood (2024) 144 (Supplement 1): 7781.

https://doi.org/10.1182/blood-2024-207724

Published: 2024

Journal Articles

Iopofosine I 131 in Previously Treated Patients with Waldenström Macroglobulinemia (WM): Efficacy and Safety Results from the International, Multicenter, Open-Label Phase 2 Study (CLOVER-WaM™)

Blood (2024) 144 (Supplement 1): 861.

https://doi.org/10.1182/blood-2024-200277

Published: 2024

Journal Articles

Feasibility of Advanced Remote Health Monitoring in Waldenstrom Macroglobulinemia: Integrating Wearable Technology and Digital Quality of Life Tracking

Kim Z Summers, Orlando Agrippa, Muna Yusuf, Shirley D'Sa

Blood (2024) 144 (Supplement 1): 2339.

https://doi.org/10.1182/blood-2024-211274

Published: 2024

Journal Articles

Prognostication in IgM and Lymphoplasmacytic Lymphoma Associated Systemic AL Amyloidosis

Jahanzaib Khwaja, Sriram Ravichandran, Darren Foard, Ana Martinez-Naharro, Lucia Venneri, Marianna Fontana, Carol Whelan, Philip N Hawkins, Julian Gillmore, Helen J Lachmann, Shameem Mahmood, Shirley D'Sa, Ashutosh D. Wechalekar

Blood (2024) 144 (Supplement 1): 4684.

https://doi.org/10.1182/blood-2024-207522

Published: 2024

Journal Articles

Challenges in PNH and CAD Management Revealed through Educational Interventions over Three Years

Sumera Ackbarali, Tariqa Ackbarali, Katie Kowalski, Shirley D'Sa, Carlos M de Castro, Satheesh Chonat, Catherine M. Broome

Blood (2024) 144 (Supplement 1): 5087.

https://doi.org/10.1182/blood-2024-211593

Published: 2024

Journal Articles

Long-term Clinical Outcomes in Patients with Waldenström Macroglobulinemia (WM) Who Received Zanubrutinib in the Phase 3 ASPEN Study: A Report from the Zanubrutinib Extension Study

Shirley D'Sa, Meletios A. Dimopoulos, Wojciech Jurczak, Paula Marlton, Stephen P. Mulligan, Bjorn E Wahlin, Magdalena Sobieraj-Teague, Andrew W. Roberts, Constantine S. Tam, Jorge J. Castillo, Heather Allewelt, Radha Prathikanti, Wai Y Chan, Tian Tian, Jingjing Schneider, Remus Vezan, Stephen S. Opat

Blood (2024) 144 (Supplement 1): 3031.

https://doi.org/10.1182/blood-2024-199276

Published: 2024

Journal Articles

Focal Symptomatic Bone Involvement with Waldenström's Macroglobulinaemia and Non-IgM Lymphoplasmacytic Lymphoma

Oliver M Tomkins, Nicole Japzon, Jahanzaib Khwaja, Jindriska Lindsay, Charalampia Kyriakou, Shirley D'Sa

Blood (2024) 144 (Supplement 1): 3023.

https://doi.org/10.1182/blood-2024-209771

Published: 2024

Journal Articles

Safety, tolerability, and activity of the active C1s antibody riliprubart in cold agglutinin disease: a phase 1b study

Shirley D’Sa, Josephine M. I. Vos, Wilma Barcellini, Marek Wardęcki, Laurent Perrin, Graham Barker, Moshe Zilberstein, Michael Storek, Timothy Chow, Alexander Röth

Blood (2024) 143 (8): 713–720.

https://doi.org/10.1182/blood.2023022153

Published: 2024

Includes: Supplemental data

Journal Articles

Using a Quality Improvement Activity to Enhance the Knowledge, Competence and Confidence of Clinicians Managing Patients with Cold Agglutinin Disease

Alison Scott, Bernd Jilma, Morie A Gertz, Shirley D'Sa, Luke Boothman, Alex Noble, Kathy Day, Sadaf Kazi

Blood (2023) 142 (Supplement 1): 5066.

https://doi.org/10.1182/blood-2023-172507

Published: 2023

Journal Articles

Modified Staging System for Waldenström Macroglobulinemia (MSS-WM): A Multi-Institutional Externally Validated Prognostic Model for Active/Symptomatic Waldenström Macroglobulinemia

Blood (2023) 142 (Supplement 1): 3030.

https://doi.org/10.1182/blood-2023-179940

Published: 2023

Journal Articles

Classical Complement Inhibition By SAR445088 (BIVV020) in Adults with Cold Agglutinin Disease: Safety, Tolerability and Activity Results from the Open-Label, Non-Randomized, Single-Dose Phase 1b Study

Shirley D'Sa, Josephine M.I. Vos, Wilma Barcellini, Marek Wardęcki, Laurent Perrin, Graham Barker, Moshe Zilberstein, Michael Storek, Timothy Chow, Alexander Roeth

Blood (2023) 142 (Supplement 1): 1069.

https://doi.org/10.1182/blood-2023-177886

Published: 2023

Journal Articles

Ethnic Diversity in Presentation of Waldenström Macroglobulinaemia and IgM Mgcs in the United Kingdom- a Real-World Data Analysis

Jahanzaib Khwaja, Nicole Japzon, Maria Gabriel, Charles Lilley, Charalampia Kyriakou, Ali Rismani, Shirley D'Sa

Blood (2023) 142 (Supplement 1): 1668.

https://doi.org/10.1182/blood-2023-186561

Published: 2023

Journal Articles

Addressing Clinical Management Challenges in the Treatment of Rare, Non-Malignant Hematologic Disorders through Educational Interventions

Sumera Ackbarali, Tariqa Ackbarali, Katie Kowalski, Hans C. Lee, Vaishali Sanchorawala, Shirley D'Sa, Satheesh Chonat, Carlos M. de Castro

Blood (2022) 140 (Supplement 1): 13057–13058.

https://doi.org/10.1182/blood-2022-157219

Published: 2022

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Multi-dimensional adherence patterns in rare haematological conditions: Longitudinal analysis of real-world patient-reported outcomes

WM-voice: An international discrete choice experiment on treatment preferences in 1,455 patients with Waldenström macroglobulinemia

The use of MYD88 and IGH PCR in the diagnosis and follow up of Βing-neel syndrome

Real world outcomes of patients with cold agglutinin disease

Real World Treatment Outcomes in the First Line Management of Waldenström Macroglobulinemia from the Global Patient Derived Data Registry, Whimsical

Bing-Neel Syndrome - a Case Series of 46 Patients from the United Kingdom

Expanded Genome-Wide Association Study (GWAS) Identifies Nine Novel Germline Risk Loci for Waldenström Macroglobulinemia (WM) and Lymphoplasmacytic Lymphoma (LPL)

Social Deprivation Affects Survival in Waldenström Macroglobulinaemia: Experience in the United Kingdom

Iopofosine I 131 in Previously Treated Patients with Waldenström Macroglobulinemia (WM): Efficacy and Safety Results from the International, Multicenter, Open-Label Phase 2 Study (CLOVER-WaM™)

Feasibility of Advanced Remote Health Monitoring in Waldenstrom Macroglobulinemia: Integrating Wearable Technology and Digital Quality of Life Tracking

Prognostication in IgM and Lymphoplasmacytic Lymphoma Associated Systemic AL Amyloidosis

Challenges in PNH and CAD Management Revealed through Educational Interventions over Three Years

Long-term Clinical Outcomes in Patients with Waldenström Macroglobulinemia (WM) Who Received Zanubrutinib in the Phase 3 ASPEN Study: A Report from the Zanubrutinib Extension Study

Focal Symptomatic Bone Involvement with Waldenström's Macroglobulinaemia and Non-IgM Lymphoplasmacytic Lymphoma

Safety, tolerability, and activity of the active C1s antibody riliprubart in cold agglutinin disease: a phase 1b study

Using a Quality Improvement Activity to Enhance the Knowledge, Competence and Confidence of Clinicians Managing Patients with Cold Agglutinin Disease

Modified Staging System for Waldenström Macroglobulinemia (MSS-WM): A Multi-Institutional Externally Validated Prognostic Model for Active/Symptomatic Waldenström Macroglobulinemia

Classical Complement Inhibition By SAR445088 (BIVV020) in Adults with Cold Agglutinin Disease: Safety, Tolerability and Activity Results from the Open-Label, Non-Randomized, Single-Dose Phase 1b Study

Ethnic Diversity in Presentation of Waldenström Macroglobulinaemia and IgM Mgcs in the United Kingdom- a Real-World Data Analysis

Addressing Clinical Management Challenges in the Treatment of Rare, Non-Malignant Hematologic Disorders through Educational Interventions

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