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Journal Articles

Progress: Responsiveness Validation of an Electronic Patient Reported Outcome (ePRO) in Adults with Sickle Cell Disease (NCT05407805)

Caterina P Minniti, Lanetta Bronte-Hall, Shannon Marraffino, Jason Healy, Denis Rybin, David Beidler, Lori Huang, Dana Shelton, Steven Taylor, Colet Goossens, Steven Arkin

Blood (2022) 140 (Supplement 1): 2564–2565.

https://doi.org/10.1182/blood-2022-166368

Published: 2022

Journal Articles

Leg Ulcer Prevalence and Outcomes in a Real-World, Multicenter, Retrospective Study of Patients Treated with Voxelotor

Caterina P Minniti, Henny H. Billett, Daniel McMahon, Modupe Idowu, Nirmish Shah, Richard A. Drachtman, Archana Sharma, Alexander Glaros, Maureen Okam Okam Achebe, Alecia C Nero, Susanna Curtis, Biree Andemariam

Blood (2022) 140 (Supplement 1): 8276–8277.

https://doi.org/10.1182/blood-2022-169334

Published: 2022

Journal Articles

A Method to Estimate Whole Blood Concentration of Voxelotor in People with Sickle Cell Disease Using High Performance Liquid Chromatography and Capillary Electrophoresis

Susanna Curtis, Elana M Friedman, Caterina P Minniti, Annie Ngyuen Dang, Mira P. Pochron, Julissa Morales, Andrew Crouch, Sean Campbell

Blood (2022) 140 (Supplement 1): 2572–2573.

https://doi.org/10.1182/blood-2022-170526

Published: 2022

Journal Articles

Children in the United States with Sickle Cell Disease Experience Greater Educational Burden Than Those Living in Low/Middle Income and Other High-Income Countries

Fuad El Rassi, John James, Biree Andemariam, Beverley Francis-Gibson, Caterina P Minniti, Jincy Paulose, Tom Bailey, Olivera Rajkovic-Hooley, Ifeyinwa Osunkwo

Blood (2021) 138 (Supplement 1): 3106.

https://doi.org/10.1182/blood-2021-146566

Published: 2021

Journal Articles

Experiences of Sickle Cell Disease (SCD) Reported By Healthcare Professionals (HCPs) across Different Regions: International Sickle Cell World Assessment Survey (SWAY)

Blood (2021) 138 (Supplement 1): 3026.

https://doi.org/10.1182/blood-2021-145409

Published: 2021

Journal Articles

Global Treatment Satisfaction Levels and Treatment Patterns from the International Sickle Cell World Assessment Survey (SWAY): Hydroxyurea (HU) Versus No HU

Blood (2020) 136 (Supplement 1): 8–10.

https://doi.org/10.1182/blood-2020-137103

Published: 2020

Journal Articles

An Age Analysis of the International Sickle Cell World Assessment Survey (SWAY), Focusing on Symptoms, Treatment Goals and the Impact of SCD on Patients' Daily Lives

Blood (2020) 136 (Supplement 1): 3–5.

https://doi.org/10.1182/blood-2020-136073

Published: 2020

Journal Articles

Immunophenotypes and Clinical Outcomes in Adult Patients with Sickle Cell Disease: Lymphopenia Correlates with End Organ Damage

Stephen Zachary Peeke, MD, Qi Gao, PhD, Jaeun Choi, PhD, Khadijah Abdallah, MPH, Ashley Buscetta, MSN, FNP-BC, CWOCN, Andrew Crouch, Shuo You, MD PhD, Vence L. Bonham, JD, Caterina P Minniti, MD

Blood (2020) 136 (Supplement 1): 12–13.

https://doi.org/10.1182/blood-2020-142634

Published: 2020

Journal Articles

Venous Thromboembolism Prophylaxis Practices for Patients with Sickle Cell Disease Pre and during the COVID-19 Pandemic

Jennifer G. Davila, MD, W. Beau Mitchell, MD, Kerry A Morrone, MD, Ellen J Silver, PhD, Caterina P Minniti, MD, Henny H. Billett, MD MSc, Payal Desai, MD, Sarah H. O'Brien, MD, Deepa Manwani, MD

Blood (2020) 136 (Supplement 1): 38–39.

https://doi.org/10.1182/blood-2020-137071

Published: 2020

Journal Articles

Real World Clinical Experience with Oxbryta Therapy in Individuals with Sickle Cell Disease

Jaime Luis Betancourt, MSN, NP, Shuo You, MD PhD, Sean Campbell, Sabrina Pink, Merin Thomas, NP, Susanna A Curtis, MDMS, Caterina P. Minniti, MD

Blood (2020) 136 (Supplement 1): 15–16.

https://doi.org/10.1182/blood-2020-143219

Published: 2020

Journal Articles

Barriers to the Use of Endari™ in an Urban Adult Sickle Cell Center

Ugochi Olivia Ogu, MD, Merin Thomas, NP, Florence Chan, PharmD, Gracy Sebastian, NP, Caterina P. Minniti, MD

Blood (2019) 134 (Supplement_1): 2287.

https://doi.org/10.1182/blood-2019-126666

Published: 2019

Journal Articles

A Phase II Trial of Topical Sodium Nitrite in Patients with Sickle Cell Disease and Leg Ulcers

Shuo You, MD, Andrew Crouch, Ugochi Olivia Ogu, MD, Clemencia Solorzano, PharmD, Gracy Sebastian, NP, Markenya Mirander, Giacomo Vinces, D.O., Gregory J Kato, MD, Caterina P. Minniti, MD

Blood (2019) 134 (Supplement_1): 2292.

https://doi.org/10.1182/blood-2019-124440

Published: 2019

Journal Articles

Impact of Sickle Cell Disease Symptoms on Patients' Daily Lives: Interim Results from the International Sickle Cell World Assessment Survey (SWAY)

Ifeyinwa (ify) Osunkwo, MD MPH, Biree Andemariam, MD, Baba PD Inusa, MD, Fuad El-Rassi, Beverly Francis-Gibson, Alecia C. Nero, MD, Caterina P. Minniti, MD, Cassandra Trimnell, BA, Miguel R. Abboud, MD, Jean-Benoît Arlet, Raffaella Colombatti, Mariane de Montalembert, MD PhD, Suman Jain, Wasil Jastaniah, MBBS, FRCPC, Erfan Nur, MD PhD, Laurie DeBonnett, MD, John James, MSc

Blood (2019) 134 (Supplement_1): 2297.

https://doi.org/10.1182/blood-2019-124762

Published: 2019

Journal Articles

Management Strategies and Satisfaction Levels in Patients with Sickle Cell Disease: Interim Results from the International Sickle Cell World Assessment Survey (SWAY)

John James, MSc, Biree Andemariam, MD, Baba PD Inusa, MD, Fuad El-Rassi, Beverly Francis-Gibson, Alecia C. Nero, MD, Caterina P. Minniti, MD, Cassandra Trimnell, BA, Miguel R. Abboud, MD, Jean-Benoît Arlet, Raffaella Colombatti, Mariane de Montalembert, MD PhD, Suman Jain, Wasil Jastaniah, Erfan Nur, MD PhD, Laurie DeBonnett, MD, Ifeyinwa (ify) Osunkwo, MD MPH

Blood (2019) 134 (Supplement_1): 1017.

https://doi.org/10.1182/blood-2019-123643

Published: 2019

Journal Articles

Clinical Implications of Active Coping on Sleep: John Henryism in a Sickle Cell Disease Cohort

Vence L. Bonham, Kayla Cooper, BA, Caterina P. Minniti, MD, Khadijah Abdallah, MPH, Ashley Buscetta, MSN, FNP-BC, CWOCN

Blood (2019) 134 (Supplement_1): 1025.

https://doi.org/10.1182/blood-2019-131240

Published: 2019

Journal Articles

Hair Cortisol Is a Potential Indicator of Adrenal Insufficiency in Individuals with Sickle Cell Disease

Brittany Hollister, PhD, Mihail Zilbermint, MD, Caterina P. Minniti, MD, Ashley Buscetta, MSN, FNP-BC, CWOCN, Khadijah Abdallah, MPH, Shuo You, MD, Steven Soldin, MD, Jerrold Meyer, PhD, Constantine Stratakis, MD, Vence L. Bonham

Blood (2019) 134 (Supplement_1): 3573.

https://doi.org/10.1182/blood-2019-130860

Published: 2019

Journal Articles

High Hemoglobin F in Sickle Cell Disease: Waning Protection with Age

Seda S. Tolu, MD, Morayma Reyes Gil, MD PhD, Ugochi Olivia Ogu, MD, Jui Choudhuri, MD, Roger Fecher, MD, Gracy Sebastian, NP, Caterina P. Minniti, MD

Blood (2019) 134 (Supplement_1): 3576.

https://doi.org/10.1182/blood-2019-122387

Published: 2019

Journal Articles

Common Myeloid Progenitors As Biomarkers of Hbf Response to Hydroxyurea in Sickle Cell Disease

Caterina P. Minniti, MD, Seda S. Tolu, MD, Kai Wang, PhD, Zi Yan, Andrew Crouch, Gracy Sebastian, NP, Mark Chaitowitz, MD, Evan Schwechter, MD, Joan Uehlinger, MD, Deepa Manwani, MD, Eric Fornari, MD, Eric E. Bouhassira, PhD

Blood (2019) 134 (Supplement_1): 4827.

https://doi.org/10.1182/blood-2019-131466

Published: 2019

Journal Articles

Long-Term Hydroxyurea Use Is Associated with Lower Levels of Hematopoietic Stem and Progenitor Cells in Patients with Sickle Cell Disease

Seda S. Tolu, MD, Kai Wang, PhD, Zi Yan, Andrew Crouch, Gracy Sebastian, NP, Mark Chaitowitz, MD, Eric Fornari, MD, Evan Schwechter, MD, Joan Uehlinger, MD, Deepa Manwani, MD, Caterina P. Minniti, MD, Eric E. Bouhassira, PhD

Blood (2019) 134 (Supplement_1): 985.

https://doi.org/10.1182/blood-2019-131648

Published: 2019

Journal Articles

Lactate Dehydrogenase to Carboxyhemoglobin Ratio As a Biomarker of Heme Release to Heme Processing Is Associated with Higher Tricuspid Regurgitant Jet Velocity and Early Death in Sickle Cell Disease

Annelies J. Van Vuren, MD, Laurel Mendelsohn, BS, Richard van Wijk, PhD, Caterina P. Minniti, MD, John Baird, MD, Gregory J Kato, MD, Eduard J. van Beers, MD PhD

Blood (2019) 134 (Supplement_1): 2274.

https://doi.org/10.1182/blood-2019-124048

Published: 2019

NARROW

Progress: Responsiveness Validation of an Electronic Patient Reported Outcome (ePRO) in Adults with Sickle Cell Disease (NCT05407805)

Leg Ulcer Prevalence and Outcomes in a Real-World, Multicenter, Retrospective Study of Patients Treated with Voxelotor

A Method to Estimate Whole Blood Concentration of Voxelotor in People with Sickle Cell Disease Using High Performance Liquid Chromatography and Capillary Electrophoresis

Children in the United States with Sickle Cell Disease Experience Greater Educational Burden Than Those Living in Low/Middle Income and Other High-Income Countries

Experiences of Sickle Cell Disease (SCD) Reported By Healthcare Professionals (HCPs) across Different Regions: International Sickle Cell World Assessment Survey (SWAY)

Global Treatment Satisfaction Levels and Treatment Patterns from the International Sickle Cell World Assessment Survey (SWAY): Hydroxyurea (HU) Versus No HU

An Age Analysis of the International Sickle Cell World Assessment Survey (SWAY), Focusing on Symptoms, Treatment Goals and the Impact of SCD on Patients' Daily Lives

Immunophenotypes and Clinical Outcomes in Adult Patients with Sickle Cell Disease: Lymphopenia Correlates with End Organ Damage

Venous Thromboembolism Prophylaxis Practices for Patients with Sickle Cell Disease Pre and during the COVID-19 Pandemic

Real World Clinical Experience with Oxbryta Therapy in Individuals with Sickle Cell Disease

Barriers to the Use of Endari™ in an Urban Adult Sickle Cell Center

A Phase II Trial of Topical Sodium Nitrite in Patients with Sickle Cell Disease and Leg Ulcers

Impact of Sickle Cell Disease Symptoms on Patients' Daily Lives: Interim Results from the International Sickle Cell World Assessment Survey (SWAY)

Management Strategies and Satisfaction Levels in Patients with Sickle Cell Disease: Interim Results from the International Sickle Cell World Assessment Survey (SWAY)

Clinical Implications of Active Coping on Sleep: John Henryism in a Sickle Cell Disease Cohort

Hair Cortisol Is a Potential Indicator of Adrenal Insufficiency in Individuals with Sickle Cell Disease

High Hemoglobin F in Sickle Cell Disease: Waning Protection with Age

Common Myeloid Progenitors As Biomarkers of Hbf Response to Hydroxyurea in Sickle Cell Disease

Long-Term Hydroxyurea Use Is Associated with Lower Levels of Hematopoietic Stem and Progenitor Cells in Patients with Sickle Cell Disease

Lactate Dehydrogenase to Carboxyhemoglobin Ratio As a Biomarker of Heme Release to Heme Processing Is Associated with Higher Tricuspid Regurgitant Jet Velocity and Early Death in Sickle Cell Disease

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American Society of Hematology

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ASH Publications

American Society of Hematology

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