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Journal Articles

The Lack of Tolerable Treatments Options That Can Induce Durable Responses without Fear of Relapse after Discontinuation Represents a Significant Unmet Need for Patients (Pts) with Immune Thrombocytopenia (ITP): Results from the ITP World Impact Survey (I-WISh) 2.0

James B. Bussel, Nichola Cooper, Waleed Ghanima, Drew Provan, Yoshiaki Tomiyama, Ming Hou, Donald Arnold, Cristina Santoro, Francesco Zaja, Barbara Lovrencic, Mervyn Morgan, Leron Lahav, Michal Winograd, Jennifer MacWhirter - DiRaimo, Tom Bailey, Moyra Aziz, Roberto Abi Rached, Caroline Kruse
Journal: Blood
Blood (2023) 142 (Supplement 1): 1212.
https://doi.org/10.1182/blood-2023-188527
Published: 2023
Journal Articles

Children in the United States with Sickle Cell Disease Experience Greater Educational Burden Than Those Living in Low/Middle Income and Other High-Income Countries

Fuad El Rassi, John James, Biree Andemariam, Beverley Francis-Gibson, Caterina P Minniti, Jincy Paulose, Tom Bailey, Olivera Rajkovic-Hooley, Ifeyinwa Osunkwo
Journal: Blood
Blood (2021) 138 (Supplement 1): 3106.
https://doi.org/10.1182/blood-2021-146566
Published: 2021
Journal Articles

Experiences of Sickle Cell Disease (SCD) Reported By Healthcare Professionals (HCPs) across Different Regions: International Sickle Cell World Assessment Survey (SWAY)

Ifeyinwa Osunkwo, Biree Andemariam, Caterina P Minniti, Fuad El Rassi, Erfan Nur, Alecia C Nero, Raffaella Colombatti, Mariane de Montalembert, Miguel R Abboud, Jean-Benoît Arlet, Suman Jain, Wasil Jastaniah, Marimilia Pita, Beverley Francis-Gibson, Cassandra Trimnell, Laurie DeBonnett, Tom Bailey, Olivera Rajkovic-Hooley, Baba PD Inusa, John James
Journal: Blood
Blood (2021) 138 (Supplement 1): 3026.
https://doi.org/10.1182/blood-2021-145409
Published: 2021
Journal Articles

Global Treatment Satisfaction Levels and Treatment Patterns from the International Sickle Cell World Assessment Survey (SWAY): Hydroxyurea (HU) Versus No HU

Fuad A El Rassi, MD, John James, MSc, Biree Andemariam, MD, Baba PD Inusa, MDMBBS, Beverley Francis-Gibson, MA, Alecia C Nero, MD, Caterina P Minniti, MD, Cassandra Trimnell, BA, Miguel R Abboud, MD, Jean-Benoît Arlet, MD, Raffaella Colombatti, MDPhD, Mariane de Montalembert, MD PhD, Suman Jain, MD, Wasil Jastaniah, MD, Erfan Nur, MD PhD, Marimilia Pita, MD, Nicholas Ramscar, MBBS, Tom Bailey, MSci, Olivera Rajkovic-Hooley, PhD, Ifeyinwa Osunkwo, MD MPH
Journal: Blood
Blood (2020) 136 (Supplement 1): 8–10.
https://doi.org/10.1182/blood-2020-137103
Published: 2020
Journal Articles

ITP World Impact Survey (I-WISh) 2.0: Further Exploration of the Impact of ITP on Patients

Waleed Ghanima, Drew Provan, Nichola Cooper, MD, Axel Matzdorff, MDPhD, Ming Hou, Cristina Santoro, Mervyn Morgan, Caroline Kruse, Francesco Zaja, Leron Lahav, Yoshiaki Tomiyama, Michal Winograd, Barbara Lovrencic, Tom Bailey, MSci, Jens Haenig, James B. Bussel
Journal: Blood
Blood (2020) 136 (Supplement 1): 2–3.
https://doi.org/10.1182/blood-2020-136651
Published: 2020
Journal Articles

An Age Analysis of the International Sickle Cell World Assessment Survey (SWAY), Focusing on Symptoms, Treatment Goals and the Impact of SCD on Patients' Daily Lives

Raffaella Colombatti, MDPhD, John James, MSc, Biree Andemariam, MD, Baba PD Inusa, MDMBBS, Fuad A El Rassi, MD, Beverley Francis-Gibson, MA, Alecia C Nero, MD, Caterina P Minniti, MD, Cassandra Trimnell, BA, Miguel R Abboud, MD, Jean-Benoît Arlet, MD, Mariane de Montalembert, MD PhD, Suman Jain, MD, Wasil Jastaniah, MD, Erfan Nur, MD PhD, Marimilia Pita, MD, Nicholas Ramscar, MBBS, Tom Bailey, MSci, Olivera Rajkovic-Hooley, PhD, Ifeyinwa Osunkwo, MD MPH
Journal: Blood
Blood (2020) 136 (Supplement 1): 3–5.
https://doi.org/10.1182/blood-2020-136073
Published: 2020
Journal Articles

Patients with Immune Thrombocytopenia (ITP) Frequently Experience Severe Fatigue but Is It Under-Recognized By Physicians: Results from the ITP World Impact Survey (I-WISh)

Caroline Kruse, Alexandra Kruse, Shirley Watson, Mervyn Morgan, Nichola Cooper, MRCP, Waleed Ghanima, Andrew Provan, Donald M. Arnold, MD MSc, FRCPC, Cristina Santoro, Ming Hou, MD, Yoshiaki Tomiyama, MD, Serge Laborde, Barbara Lovrencic, John Waller, PhD BSc, Gavin Taylor-Stokes, Tom Bailey, Miona Stankovic, James B. Bussel, MD
Journal: Blood
Blood (2018) 132 (Supplement 1): 2273.
https://doi.org/10.1182/blood-2018-99-112378
Published: 2018
Journal Articles

Results from the ITP World IMPACT Survey (I-WISh): Patients with Immune Thrombocytopenia (ITP) Experience Impaired Quality of Life (QoL) Regarding Daily Activities, Social Interactions, Emotional Well-Being and Working Lives

Nichola Cooper, MRCP, Alexandra Kruse, Caroline Kruse, Shirley Watson, Mervyn Morgan, James B. Bussel, MD, Waleed Ghanima, Donald M. Arnold, MD MSc, FRCPC, Cristina Santoro, Ming Hou, MD, Yoshiaki Tomiyama, MD, Serge Laborde, Barbara Lovrencic, John Waller, PhD BSc, Tom Bailey, Gavin Taylor-Stokes, Miona Stankovic, Andrew Provan
Journal: Blood
Blood (2018) 132 (Supplement 1): 4804.
https://doi.org/10.1182/blood-2018-99-112858
Published: 2018