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Journal Articles

Complementary and Alternative Medicine (CAM) Use Reported Among Individuals with Immune Thrombocytopenia (ITP): Data from the ITP Natural History Study Registry

Jennifer MacWhirter - DiRaimo, Laura Bou-Maroun, Debbie Jiang, Caroline Kruse, Michele P. Lambert, Cindy Neunert, Allison Remiker, Melissa J Rose, Kevin Won, Rachael F. Grace

Blood (2024) 144 (Supplement 1): 2317.

https://doi.org/10.1182/blood-2024-199105

Published: 2024

Journal Articles

The Lack of Tolerable Treatments Options That Can Induce Durable Responses without Fear of Relapse after Discontinuation Represents a Significant Unmet Need for Patients (Pts) with Immune Thrombocytopenia (ITP): Results from the ITP World Impact Survey (I-WISh) 2.0

James B. Bussel, Nichola Cooper, Waleed Ghanima, Drew Provan, Yoshiaki Tomiyama, Ming Hou, Donald Arnold, Cristina Santoro, Francesco Zaja, Barbara Lovrencic, Mervyn Morgan, Leron Lahav, Michal Winograd, Jennifer MacWhirter - DiRaimo, Tom Bailey, Moyra Aziz, Roberto Abi Rached, Caroline Kruse

Blood (2023) 142 (Supplement 1): 1212.

https://doi.org/10.1182/blood-2023-188527

Published: 2023

Journal Articles

Binary Gender Differences in Quality of Life and Social Supports Among Individuals with Immune Thrombocytopenia (ITP): Data from the ITP Natural History Study Registry

Jennifer MacWhirter - DiRaimo, Kevin Won, Caroline Kruse, Terry B Gernsheimer

Blood (2023) 142 (Supplement 1): 2592.

https://doi.org/10.1182/blood-2023-181390

Published: 2023

Journal Articles

COVID-19 Vaccination in Children and Young Adults with Pre-Existing Immune Thrombocytopenia (ITP): Preliminary Data from the Platelet Disorder Support Association (PDSA) Patient Registry

Jennifer MacWhirter - DiRaimo, Caroline Kruse, Alexandra Kruse, James B. Bussel

Blood (2022) 140 (Supplement 1): 2699–2700.

https://doi.org/10.1182/blood-2022-165571

Published: 2022

Journal Articles

Does IVIG Use Reduce the Risk of Contracting Sars-Cov-2 in Patients with Immune Thrombocytopenia: Data from the Platelet Disorder Support Association (PDSA) Patient Registry

Jennifer MacWhirter - DiRaimo, Caroline Kruse, Alexandra Kruse, James B. Bussel

Blood (2022) 140 (Supplement 1): 5555–5556.

https://doi.org/10.1182/blood-2022-165610

Published: 2022

Journal Articles

SARS-CoV-2 vaccination and ITP in patients with de novo or preexisting ITP

Eun-Ju Lee, Marina Beltrami-Moreira, Hanny Al-Samkari, Adam Cuker, Jennifer DiRaimo, Terry Gernsheimer, Alexandra Kruse, Craig Kessler, Caroline Kruse, Andrew D. Leavitt, Alfred I. Lee, Howard A. Liebman, Adrian C. Newland, Ashley E. Ray, Michael D. Tarantino, Jecko Thachil, David J. Kuter, Douglas B. Cines, James B. Bussel

Blood (2022) 139 (10): 1564–1574.

https://doi.org/10.1182/blood.2021013411

Published: 2022

Includes: Supplemental data

Journal Articles

Do Splenectomized Immune Thrombocytopenia (ITP) Patients Have Increased Risks for Platelet Decreases Following COVID-19 Vaccination?

Jennifer MacWhirter - DiRaimo, Caroline Kruse, James B Bussel, Alexandra Kruse

Blood (2021) 138 (Supplement 1): 2090.

https://doi.org/10.1182/blood-2021-152667

Published: 2021

Journal Articles

Sars-Cov-2 Vaccination in Patients with Pre-Existing Immune Thrombocytopenia

Eun-Ju Lee, Marina Beltrami Moreira, Hanny Al-Samkari, Adam Cuker, Jennifer MacWhirter - DiRaimo, Terry B. Gernsheimer, Alexandra Kruse, Craig M. Kessler, Caroline Kruse, Andrew D Leavitt, Alfred Ian Lee, Howard A. Liebman, Adrian C. Newland, Ashley E. Ray, Michael D Tarantino, Jecko Thachil, David J. Kuter, Douglas B. Cines, James B Bussel

Blood (2021) 138 (Supplement 1): 586.

https://doi.org/10.1182/blood-2021-152918

Published: 2021

Journal Articles

COVID-19 Vaccination in Adults with Immune Thrombocytopenia (ITP): Data from the Platelet Disorder Support Association (PDSA) Patient Registry

Jennifer MacWhirter - DiRaimo, Caroline Kruse, James B Bussel, Alexandra Kruse

Blood (2021) 138 (Supplement 1): 3164.

https://doi.org/10.1182/blood-2021-152948

Published: 2021

Journal Articles

ITP World Impact Survey (I-WISh) 2.0: Further Exploration of the Impact of ITP on Patients

Waleed Ghanima, Drew Provan, Nichola Cooper, MD, Axel Matzdorff, MDPhD, Ming Hou, Cristina Santoro, Mervyn Morgan, Caroline Kruse, Francesco Zaja, Leron Lahav, Yoshiaki Tomiyama, Michal Winograd, Barbara Lovrencic, Tom Bailey, MSci, Jens Haenig, James B. Bussel

Blood (2020) 136 (Supplement 1): 2–3.

https://doi.org/10.1182/blood-2020-136651

Published: 2020

Journal Articles

Anxiety in Adult Patients Living with ITP Stratified across Different Treatment Types and Groups

Jennifer Diraimo, MS, CCGC, Caroline Kruse, Michele P. Lambert, MD MSTR, Alexandra Kruse

Blood (2020) 136 (Supplement 1): 18.

https://doi.org/10.1182/blood-2020-139681

Published: 2020

Journal Articles

Tapering Thrombopoietin Receptor Agonists in Primary Immune Thrombocytopenia: Recommendations Based on the RAND/UCLA Modified Delphi Panel Method

Adam Cuker, MD, Jenny M. Despotovic, DO, Rachael F. Grace, MD, Caroline Kruse, Michele P. Lambert, MD MSTR, Howard Liebman, MD, Roger M. Lyons, MD, Keith R McCrae, MD, Vinod A. Pullarkat, MD, Jeffrey Wasser, MD, David Beenhouwer, MD, Sarah N Gibbs, MPH, Irina Yermilov, MD MPH, MS, Michael S Broder, MD MSHS

Blood (2020) 136 (Supplement 1): 6–8.

https://doi.org/10.1182/blood-2020-133262

Published: 2020

Journal Articles

Impact of Therapy Choice on Fatigue in Adults with Immune Thrombocytopenia

Jennifer Diraimo, MS, CCGC, Caroline Kruse, Michele P. Lambert, MD MSTR, Alexandra Kruse

Blood (2020) 136 (Supplement 1): 19–20.

https://doi.org/10.1182/blood-2020-139746

Published: 2020

Journal Articles

The Burden of Disease and IMPACT of Immune Thrombocytopenia (ITP) on Patients: Results from an ITP Survey

James B. Bussel, MD, Alexandra Kruse, Caroline Kruse, Jody Shy, Kavita Aggarwal, PharmD, Michael Vredenburg, PhD, Keith R McCrae, MD

Blood (2019) 134 (Supplement_1): 1076.

https://doi.org/10.1182/blood-2019-131351

Published: 2019

Journal Articles

Mental Health and Treatment in Patients with Immune Thrombocytopenia (ITP); Data from the Platelet Disorder Support Association (PDSA) Patient Registry

Alexandra Kruse, Caroline Kruse, Nancy Potthast, Kelsey Milligan, James B. Bussel, MD

Blood (2019) 134 (Supplement_1): 2362.

https://doi.org/10.1182/blood-2019-122278

Published: 2019

Journal Articles

Physicians' and Patients' Perspectives on Treatments in ITP - a Multi-Country Perspective: Results from the ITP World Impact Survey (I-WISh)

James B. Bussel, MD, Waleed Ghanima, MD PhD, Yoshiaki Tomiyama, MD, Donald M. Arnold, MD, Drew Provan, MD, Ming Hou, MD PhD, Cristina Santoro, MD PhD, Serge Laborde, Alexandra Kruse, Caroline Kruse, Mervyn Morgan, Barbara Lovrencic, John Waller, PhD, Jens Haenig, Nichola Cooper, MD MRCP

Blood (2019) 134 (Supplement_1): 1097.

https://doi.org/10.1182/blood-2019-130591

Published: 2019

Journal Articles

The ITP Natural History Study Registry: Preliminary Findings on the Immune Thrombocytopenia Patient Experience

Alexandra Kruse, Caroline Kruse, Michele P. Lambert, MD

Blood (2018) 132 (Supplement 1): 4979.

https://doi.org/10.1182/blood-2018-99-118824

Published: 2018

Journal Articles

Results from the ITP World IMPACT Survey (I-WISh): Patients with Immune Thrombocytopenia (ITP) Experience Impaired Quality of Life (QoL) Regarding Daily Activities, Social Interactions, Emotional Well-Being and Working Lives

Nichola Cooper, MRCP, Alexandra Kruse, Caroline Kruse, Shirley Watson, Mervyn Morgan, James B. Bussel, MD, Waleed Ghanima, Donald M. Arnold, MD MSc, FRCPC, Cristina Santoro, Ming Hou, MD, Yoshiaki Tomiyama, MD, Serge Laborde, Barbara Lovrencic, John Waller, PhD BSc, Tom Bailey, Gavin Taylor-Stokes, Miona Stankovic, Andrew Provan

Blood (2018) 132 (Supplement 1): 4804.

https://doi.org/10.1182/blood-2018-99-112858

Published: 2018

Journal Articles

Patients with Immune Thrombocytopenia (ITP) Frequently Experience Severe Fatigue but Is It Under-Recognized By Physicians: Results from the ITP World Impact Survey (I-WISh)

Caroline Kruse, Alexandra Kruse, Shirley Watson, Mervyn Morgan, Nichola Cooper, MRCP, Waleed Ghanima, Andrew Provan, Donald M. Arnold, MD MSc, FRCPC, Cristina Santoro, Ming Hou, MD, Yoshiaki Tomiyama, MD, Serge Laborde, Barbara Lovrencic, John Waller, PhD BSc, Gavin Taylor-Stokes, Tom Bailey, Miona Stankovic, James B. Bussel, MD

Blood (2018) 132 (Supplement 1): 2273.

https://doi.org/10.1182/blood-2018-99-112378

Published: 2018

Journal Articles

A Pilot Study to Assess Quality of Life in Older Children and Adolescents with Primary Immune Thrombocytopenia

Bianca Maya, MD, Caroline Kruse, Susan D. Mathias, MPH, Michael D. Tarantino, MD

Blood (2014) 124 (21): 4843.

https://doi.org/10.1182/blood.V124.21.4843.4843

Published: 2014

NARROW

Complementary and Alternative Medicine (CAM) Use Reported Among Individuals with Immune Thrombocytopenia (ITP): Data from the ITP Natural History Study Registry

The Lack of Tolerable Treatments Options That Can Induce Durable Responses without Fear of Relapse after Discontinuation Represents a Significant Unmet Need for Patients (Pts) with Immune Thrombocytopenia (ITP): Results from the ITP World Impact Survey (I-WISh) 2.0

Binary Gender Differences in Quality of Life and Social Supports Among Individuals with Immune Thrombocytopenia (ITP): Data from the ITP Natural History Study Registry

COVID-19 Vaccination in Children and Young Adults with Pre-Existing Immune Thrombocytopenia (ITP): Preliminary Data from the Platelet Disorder Support Association (PDSA) Patient Registry

Does IVIG Use Reduce the Risk of Contracting Sars-Cov-2 in Patients with Immune Thrombocytopenia: Data from the Platelet Disorder Support Association (PDSA) Patient Registry

SARS-CoV-2 vaccination and ITP in patients with de novo or preexisting ITP

Do Splenectomized Immune Thrombocytopenia (ITP) Patients Have Increased Risks for Platelet Decreases Following COVID-19 Vaccination?

Sars-Cov-2 Vaccination in Patients with Pre-Existing Immune Thrombocytopenia

COVID-19 Vaccination in Adults with Immune Thrombocytopenia (ITP): Data from the Platelet Disorder Support Association (PDSA) Patient Registry

ITP World Impact Survey (I-WISh) 2.0: Further Exploration of the Impact of ITP on Patients

Anxiety in Adult Patients Living with ITP Stratified across Different Treatment Types and Groups

Tapering Thrombopoietin Receptor Agonists in Primary Immune Thrombocytopenia: Recommendations Based on the RAND/UCLA Modified Delphi Panel Method

Impact of Therapy Choice on Fatigue in Adults with Immune Thrombocytopenia

The Burden of Disease and IMPACT of Immune Thrombocytopenia (ITP) on Patients: Results from an ITP Survey

Mental Health and Treatment in Patients with Immune Thrombocytopenia (ITP); Data from the Platelet Disorder Support Association (PDSA) Patient Registry

Physicians' and Patients' Perspectives on Treatments in ITP - a Multi-Country Perspective: Results from the ITP World Impact Survey (I-WISh)

The ITP Natural History Study Registry: Preliminary Findings on the Immune Thrombocytopenia Patient Experience

Results from the ITP World IMPACT Survey (I-WISh): Patients with Immune Thrombocytopenia (ITP) Experience Impaired Quality of Life (QoL) Regarding Daily Activities, Social Interactions, Emotional Well-Being and Working Lives

Patients with Immune Thrombocytopenia (ITP) Frequently Experience Severe Fatigue but Is It Under-Recognized By Physicians: Results from the ITP World Impact Survey (I-WISh)

A Pilot Study to Assess Quality of Life in Older Children and Adolescents with Primary Immune Thrombocytopenia

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American Society of Hematology

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American Society of Hematology

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