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Journal Articles

Continuing Medical Education and Patient Education on Follicular Lymphoma: Changes in Clinician Practice, Patient Behaviors, and Knowledge across Clinicians and Patients

Anne C Roc, PhD, Wendy Turell, DrPH, Meredith Barnhart, LCSW-R, John P. Leonard, MD

Blood (2019) 134 (Supplement_1): 3421.

https://doi.org/10.1182/blood-2019-132103

Published: 2019

Journal Articles

An Innovative Telemedicine Platform to Provide Expert Access to Patients with Chronic Lymphocytic Leukemia (CLL)

DR. Brian Koffman, John M. Pagel, MD PhD DSc, Andy Kaempf, Byung Park, PhD, Liza Avruch, Christopher Lee, PhD MS, Babak Movassaghi, PhD MBA, John C. Byrd, MD, Alan Skarbnik, MD, Matthew S. Davids, MD, Alexey Danilov, MD PhD

Blood (2019) 134 (Supplement_1): 4716.

https://doi.org/10.1182/blood-2019-123579

Published: 2019

Journal Articles

Survey of Adult Patients with Vascular Malformations Reveals Acute Need of Adult Hematologists to Enter the Field

Francine Blei, MD, Mellenee Finger, Lisa Klepper, Ionela Iacobas, MD

Blood (2019) 134 (Supplement_1): 5785.

https://doi.org/10.1182/blood-2019-127084

Published: 2019

Journal Articles

Results from the Myeloproliferative Neoplasm Patient Care Survey: Patient Care Opportunities and Challenges

Zhenya Senyak, Ruben A. Mesa, MD FACP, Nicolaus Kroeger, MD, Koen Van Besien, MD PhD, Wael Saber, MD MS, Richard T. Silver, MD, Attilio Orazi, MD, Jeanne Palmer, MD, Claire N. Harrison, MD DM, FRCP, PRCPath, Srdan Verstovsek, MD PhD, Uday Popat, MD, Michelle J Woerhle, MPH, Ann Brazeau, Barbara Van Husen, Martin Prager, Chris Harper, Beatrice Larroque, Robyn Marie Scherber, MD MPH

Blood (2018) 132 (Supplement 1): 4289.

https://doi.org/10.1182/blood-2018-99-113910

Published: 2018

Journal Articles

Factors That Influence Treatment Decision-Making: Perspectives of 1147 Chronic Lymphocytic Leukemia (CLL) Patients in the United States

Blood (2018) 132 (Supplement 1): 4414.

https://doi.org/10.1182/blood-2018-99-112971

Published: 2018

Journal Articles

Priorities for Rural Lymphoma Survivors: An Exploratory Study

Jackelyn B. Payne, MPH, BS, BA, Lillian Chen, Cathy D. Ho, Kaylin V. Dance, Andrew Ritter, MD, Christopher R Flowers, MD MS

Blood (2018) 132 (Supplement 1): 4789.

https://doi.org/10.1182/blood-2018-99-117642

Published: 2018

Journal Articles

Results from the ITP World IMPACT Survey (I-WISh): Patients with Immune Thrombocytopenia (ITP) Experience Impaired Quality of Life (QoL) Regarding Daily Activities, Social Interactions, Emotional Well-Being and Working Lives

Nichola Cooper, MRCP, Alexandra Kruse, Caroline Kruse, Shirley Watson, Mervyn Morgan, James B. Bussel, MD, Waleed Ghanima, Donald M. Arnold, MD MSc, FRCPC, Cristina Santoro, Ming Hou, MD, Yoshiaki Tomiyama, MD, Serge Laborde, Barbara Lovrencic, John Waller, PhD BSc, Tom Bailey, Gavin Taylor-Stokes, Miona Stankovic, Andrew Provan

Blood (2018) 132 (Supplement 1): 4804.

https://doi.org/10.1182/blood-2018-99-112858

Published: 2018

Journal Articles

"in the Patients' Hands"- a Structured Survey of Patient Voices to Prioritise Research Questions in Rare Inherited Anaemias: The James Lind Alliance Priority Setting Partnership

Jenny Welch, Nick Meade, Dominic Messenger, Amy Hunter, Anupama Rao, MD, Subarna Chakravorty, Rachel Wearmouth, Anju Chalin, Kristina Staley, Sheela Upadhyaya, Irene Roberts, MD, Noemi Roy, MBBCH, MD

Blood (2018) 132 (Supplement 1): 5876.

https://doi.org/10.1182/blood-2018-99-115404

Published: 2018

Journal Articles

Patients with Immune Thrombocytopenia (ITP) Frequently Experience Severe Fatigue but Is It Under-Recognized By Physicians: Results from the ITP World Impact Survey (I-WISh)

Caroline Kruse, Alexandra Kruse, Shirley Watson, Mervyn Morgan, Nichola Cooper, MRCP, Waleed Ghanima, Andrew Provan, Donald M. Arnold, MD MSc, FRCPC, Cristina Santoro, Ming Hou, MD, Yoshiaki Tomiyama, MD, Serge Laborde, Barbara Lovrencic, John Waller, PhD BSc, Gavin Taylor-Stokes, Tom Bailey, Miona Stankovic, James B. Bussel, MD

Blood (2018) 132 (Supplement 1): 2273.

https://doi.org/10.1182/blood-2018-99-112378

Published: 2018

Journal Articles

Survey of Integrative Medicine in Myeloproliferative Neoplasms (The SIMM Study-2)

Krisstina L. Gowin, DO, Blake T. Langlais, Denise Millstine, MD, Heidi E. Kosiorek, MS, Jennifer Huberty, PhD, Ryan Eckert, MS, Ruben A. Mesa, MD FACP

Blood (2018) 132 (Supplement 1): 3047.

https://doi.org/10.1182/blood-2018-99-119493

Published: 2018

Journal Articles

Forty Percent of MDS Patients Wish They Received Red Blood Cell Transfusions at Higher Hemoglobin Thresholds Than They Currently Are: A Multinational Transfusion Audit

Rena Buckstein, MD FRCPC, Rebecca Starkman, Yulia Lin, MD FRCPC, Simon J. Stanworth, MD, David Bowen, MD PhD, Lea Harrison, Sophie Wintrich, Jeannie Callum, MD

Blood (2018) 132 (Supplement 1): 3092.

https://doi.org/10.1182/blood-2018-99-110560

Published: 2018

Journal Articles

Assessing Needs for Support in MDS Patients

Esther Natalie Oliva, MD, Raqeebah Agberemi, Sophie Wintrich

Blood (2018) 132 (Supplement 1): 2313.

https://doi.org/10.1182/blood-2018-99-112967

Published: 2018

Journal Articles

Positive Impact of Social Media on Disease Awareness and Management in Patients with Inherited Bleeding Disorders: Saudi Experience from a Tertiary Care Hospital

Mahsen AlSaleh, MD, Tarek Owaidah, MD, Hazzaa Alzahrani, MD, Tahani Bin Ali, MD, Huda ElFaraidi, MD, Mahmoud Abu Riash, RN, Zikra Alkhayal, MD, AbdulKareem Al Momen, MD, Viqaruddin Mohammed, MSc, CCRP, Azzah AlZahrani, MD

Blood (2017) 130 (Supplement 1): 5587.

https://doi.org/10.1182/blood.V130.Suppl_1.5587.5587

Published: 2017

Journal Articles

Coping and Adjustment Among Adolescents with Sickle Cell Disease

Hannah Ware, BA, Avi Madan-Swain, PhD, Thomas H. Howard, MD, Christina J. Bemrich-Stolz, MD, Lee Hilliard, MD, Jeffrey D. Lebensburger, DO

Blood (2014) 124 (21): 440.

https://doi.org/10.1182/blood.V124.21.440.440

Published: 2014

Journal Articles

Behavioral Patterns and the Role of Ethnicity in Patient Awareness of Multiple Myeloma and the Psychophysical Impact of Its Treatment

Pooja Advani, MBBS, Abhisek Swaika, MBBS, Denice D. Tsao-Wei, PhD, Ahsan Alamgir, Brian Chung, Christine Duran, Susan Groshen, PhD, Savrina Bola, Asher Chanan-Khan, MD, Sikander Ailawadhi, MD

Blood (2014) 124 (21): 2622.

https://doi.org/10.1182/blood.V124.21.2622.2622

Published: 2014

Journal Articles

Disparities Between Patient and Hematology/Oncology Physician Expectations for Integrative Oncology in an Ethnically Diverse Population

Hansra Damien, MD, Ramdial Jeremy, MD, Martinez Gianni, Farooq Faheem, MS3, Alfredo Torres, MD, Saravia Diana, MD, Ashwin Mehta, MD, Eugene Ahn, MD

Blood (2014) 124 (21): 2641.

https://doi.org/10.1182/blood.V124.21.2641.2641

Published: 2014

Journal Articles

IMPACT of Therapeutic Strategy and Time to Therapy Initiation on Clinical Evolution of Patients with NEWLY Diagnosed Chronic Myelomonocytic Leukemia. a Report from Erasme Study

Brayan Marcel Merchan Ruiz, Teresa Bernal, MD, Montserrat Arnan, MD, Mar Tormo, MD, Jose Angel Hernandez Rivas, Maria Calbacho, MDPhD, Rosa Coll, MD, Rafael Romero, Andres Insunza, MD, Joan Bargay, MD, David Valcarcel, MD PhD, Montse Rafel, Regina Garcia, MD

Blood (2014) 124 (21): 5607.

https://doi.org/10.1182/blood.V124.21.5607.5607

Published: 2014

Journal Articles

Healthcare Services Needs and Co-Morbidity Assessment Among Adolescents and Young Adults with Cancer: the AYA Hope Study

Pinki K. Prasad, MD MPH, Ian Landry, Theresa H. M. Keegan, PhD, Lynne Harlan, Helen Parsons, Charles F Lynch, MD PhD, Ashley Wilder - Smith, Ann S. Hamilton, PhD, Xiao-Cheng Wu

Blood (2014) 124 (21): 734.

https://doi.org/10.1182/blood.V124.21.734.734

Published: 2014

Journal Articles

Current State of Patient Awareness and Participation in Care for Multiple Myeloma and the Psychophysical Impact of Treatment: An International Internet-Based Study

Sikander Ailawadhi, MD, Abhisek Swaika, MBBS, Pooja Advani, MBBS, Michael S Katz, David O Hodge, Aneel Paulus, MDMS, Nandita Khera, MD MPH, Shahrukh K Hashmi, MD, Gerardo Colon-Otero, MD, Vivek Roy, MD, Asher Chanan-Khan, MD

Blood (2014) 124 (21): 1294.

https://doi.org/10.1182/blood.V124.21.1294.1294

Published: 2014

Journal Articles

Development Of a Disease Specific Quality Of Life Questionnaire For Patients With Aplastic Anemia and/Or Paroxysmal Nocturnal Hemoglobinuria (QLQ-AA/PNH)

Martha Groth, Susanne Singer, PhD, Cathrin Niedeggen, Andrea Petermann-Meyer, MD, Alexander Roeth, MD, Hubert Schrezenmeier, MD, Britta Höchsmann, MD, Tim H. Brümmendorf, MD, Jens Panse, MD

Blood (2013) 122 (21): 1680.

https://doi.org/10.1182/blood.V122.21.1680.1680

Published: 2013

NARROW

Continuing Medical Education and Patient Education on Follicular Lymphoma: Changes in Clinician Practice, Patient Behaviors, and Knowledge across Clinicians and Patients

An Innovative Telemedicine Platform to Provide Expert Access to Patients with Chronic Lymphocytic Leukemia (CLL)

Survey of Adult Patients with Vascular Malformations Reveals Acute Need of Adult Hematologists to Enter the Field

Results from the Myeloproliferative Neoplasm Patient Care Survey: Patient Care Opportunities and Challenges

Factors That Influence Treatment Decision-Making: Perspectives of 1147 Chronic Lymphocytic Leukemia (CLL) Patients in the United States

Priorities for Rural Lymphoma Survivors: An Exploratory Study

Results from the ITP World IMPACT Survey (I-WISh): Patients with Immune Thrombocytopenia (ITP) Experience Impaired Quality of Life (QoL) Regarding Daily Activities, Social Interactions, Emotional Well-Being and Working Lives

"in the Patients' Hands"- a Structured Survey of Patient Voices to Prioritise Research Questions in Rare Inherited Anaemias: The James Lind Alliance Priority Setting Partnership

Patients with Immune Thrombocytopenia (ITP) Frequently Experience Severe Fatigue but Is It Under-Recognized By Physicians: Results from the ITP World Impact Survey (I-WISh)

Survey of Integrative Medicine in Myeloproliferative Neoplasms (The SIMM Study-2)

Forty Percent of MDS Patients Wish They Received Red Blood Cell Transfusions at Higher Hemoglobin Thresholds Than They Currently Are: A Multinational Transfusion Audit

Assessing Needs for Support in MDS Patients

Positive Impact of Social Media on Disease Awareness and Management in Patients with Inherited Bleeding Disorders: Saudi Experience from a Tertiary Care Hospital

Coping and Adjustment Among Adolescents with Sickle Cell Disease

Behavioral Patterns and the Role of Ethnicity in Patient Awareness of Multiple Myeloma and the Psychophysical Impact of Its Treatment

Disparities Between Patient and Hematology/Oncology Physician Expectations for Integrative Oncology in an Ethnically Diverse Population

IMPACT of Therapeutic Strategy and Time to Therapy Initiation on Clinical Evolution of Patients with NEWLY Diagnosed Chronic Myelomonocytic Leukemia. a Report from Erasme Study

Healthcare Services Needs and Co-Morbidity Assessment Among Adolescents and Young Adults with Cancer: the AYA Hope Study

Current State of Patient Awareness and Participation in Care for Multiple Myeloma and the Psychophysical Impact of Treatment: An International Internet-Based Study

Development Of a Disease Specific Quality Of Life Questionnaire For Patients With Aplastic Anemia and/Or Paroxysmal Nocturnal Hemoglobinuria (QLQ-AA/PNH)

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American Society of Hematology

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American Society of Hematology

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