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Journal Articles

Routine Management, Healthcare Resource Use and Patient/Caregiver-Reported Outcomes of Patients with Transfusion-Dependent β-Thalassaemia in the United Kingdom: A Mixed Methods Observational Study

Farrukh Shah, MDMBBS,FRCPath, Paul Telfer, DM, FRCP, Mark Velangi, Shivan Pancham, Robert Wynn, Sally Pollard, Elizabeth Chalmers, Jonathan Kell, MD, Joe Hickey, PhD, Clark Paramore, MPH, Minesh Jobanputra, MD, Kate Ryan, MD

Blood (2019) 134 (Supplement_1): 3550.

https://doi.org/10.1182/blood-2019-129930

Published: 2019

Journal Articles

Transition Experiences of Adolescents and Young Adults (AYA) with Sickle Cell Disease at the Ghana Institute of Clinical Genetics (GICG), Korle Bu in Accra, Ghana

Miriam Kwarteng-Siaw, BA,MD, Amma Benneh, MD, Nancy S. Green, MD

Blood (2019) 134 (Supplement_1): 3473.

https://doi.org/10.1182/blood-2019-124239

Published: 2019

Journal Articles

Health-Related Quality of Life (HRQoL) in Patients with Myelofibrosis Treated with Fedratinib, an Oral, Selective Inhibitor of Janus Kinase 2 (JAK2), in the Randomized, Placebo-Controlled, Phase III JAKARTA Study

Ruben A Mesa, MD, Nicolaas Schaap, MD PhD, Alessandro M Vannucchi, MD, Jean-Jacques Kiladjian, MD PhD, Francesco Passamonti, MD, Sonja Zweegman, Moshe Talpaz, MD, Srdan Verstovsek, MD PhD, Shelonitda Rose, Derek Tang, PhD BSPharm, Angela Hu, MS, EDM, Carrie Brownstein, MD, Shien Guo, PhD, Xiaomei Ye, MS, Claire N Harrison, Professor

Blood (2019) 134 (Supplement_1): 704.

https://doi.org/10.1182/blood-2019-129020

Published: 2019

Journal Articles

An Analysis from the WM UK Rory Morrison Registry - How Does Waldenström's Macroglobulinemia Affect Younger Patients?

Oliver Tomkins, BMBS, MRCP, Joshua Bomsztyk, Helen McCarthy, MBBS, PhD, Jaimal Kothari, Dima El-Sharkawi, Charalampia Kyriakou, Guy Pratt, Ali Rismani, MBBS, Shirley D'Sa

Blood (2019) 134 (Supplement_1): 1543.

https://doi.org/10.1182/blood-2019-123693

Published: 2019

Journal Articles

Psychometric Evaluation of the Functional Assessment of Chronic Illness Therapy-Fatigue Scale (FACIT-Fatigue) in Patients with Chronic Lymphocytic Leukemia (CLL)

Daniel Eek, PhD, Cristina Ivanescu, PhD, Leanne Kool-Houweling, MSc, David Cella, PhD

Blood (2019) 134 (Supplement_1): 4763.

https://doi.org/10.1182/blood-2019-123056

Published: 2019

Journal Articles

Longitudinal Changes of Impairments in Health-Related Quality of Life in Lower-Risk MDS Patients: A European Leukemianet Study

Blood (2018) 132 (Supplement 1): 3097.

https://doi.org/10.1182/blood-2018-99-112508

Published: 2018

Journal Articles

Understanding Disease Burden Among Persons with Hemophilia Α without Inhibitors

Wendy E Owens, MA, Anissa Cyhaniuk, Anisha Patel, Karina Raimundo, Elaine Chan, Richard H Ko

Blood (2018) 132 (Supplement 1): 4690.

https://doi.org/10.1182/blood-2018-99-112121

Published: 2018

Journal Articles

Addressing Challenges in Living with AML: Impact of Video-Based Patient Education on Knowledge and Behavior

Anne C Roc, PhD, David P. Steensma, MD, Michelle Rajotte, Wendy Turell, DrPH

Blood (2018) 132 (Supplement 1): 4872.

https://doi.org/10.1182/blood-2018-99-120328

Published: 2018

Journal Articles

Clinical Features and Risk Factors of Post-Engraftment Bloodstream Infection in Allogeneic HCT

Tatsuya Suwabe, MD, Kyoko Fuse, MD, Takayuki Katagiri, MD, Tomoyuki Tanaka, MD PhD, Takashi Ushiki, MD PhD, Yasuhiko Shibasaki, MD, Miwako Narita, MD PhD, Hirohito Sone, MD PhD, Masayoshi Masuko, MD PhD

Blood (2018) 132 (Supplement 1): 5712.

https://doi.org/10.1182/blood-2018-99-115844

Published: 2018

Journal Articles

Psychological, Physical and Functional Importance of Patient Reported Outcomes Among Cancer Outpatients

Shiva Shrotriya, MD MPH, Declan Walsh, MDMSc FACP FRCP, Mukta Sharma, MBBS, Supratik Rayamajhi, MD

Blood (2018) 132 (Supplement 1): 5904.

https://doi.org/10.1182/blood-2018-99-119641

Published: 2018

Journal Articles

Caregiver Perceptions of Adolescent Self-Management Skills Predicts Higher Disease Knowledge Among Adolescents with SCD

Anjelica C Saulsberry, BS, Jason Hodges, PhD, Justin Williams, PhD, Megan Loew, MS, Sheila Anderson, RN, Audrey Cole, RN, Guolian Kang, PhD, Chen Li, MS, Robert Cronin, MD MS, Jerlym Porter, PhD MPH, Jane S Hankins, MD MS

Blood (2017) 130 (Supplement 1): 3350.

https://doi.org/10.1182/blood.V130.Suppl_1.3350.3350

Published: 2017

Journal Articles

Defining Vaso-Occlusive Crises in Sickle Cell Disease from the Perspective of the Patient: Development of a New Toolbox to Measure Treatment Outcomes

Andreas M Pleil, PhD, Alexandra Barsdorf, PhD, Michael U. Callaghan, Karin Coyne, PhD, Katy Benjamin, PhD, David Beidler, PhD, Robert J Charnigo, MS

Blood (2017) 130 (Supplement 1): 3415.

https://doi.org/10.1182/blood.V130.Suppl_1.3415.3415

Published: 2017

Journal Articles

Sickle Cell Patient Education: Assessment of the Emmi Electronic Teaching Module

Lewis L Hsu, MD PhD, Jennie Y Law, MD, Tammie Tam, BS

Blood (2017) 130 (Supplement 1): 5582.

https://doi.org/10.1182/blood.V130.Suppl_1.5582.5582

Published: 2017

Journal Articles

Elipsis: A Longitudinal Study of Electronic Patient-Reported Outcomes, Actigraphy and Biomarkers to Identify and Assess at-Home Vaso-Occlusive Crises in Adults and Adolescents with Sickle Cell Disease

Michael U. Callaghan, Patrick C. Hines, MD PhD, Debra D Pittman, MS, David Beidler, PhD, Denis Rybin, PhD, Ahmar Urooj Zaidi, MD BSc, Jennell White, PhD, Ke Liu, PhD, Bryan Hannan, MS, Xiufeng Gao, MD, Andreas M Pleil, PhD, Alexandra Barsdorf, PhD, Martin David, Pharm D, Melanie Simmons, PMP, PSM, Andrew L Frelinger, III, PhD, Alan D Michelson, MD, Nick Clarke, PhD, Robert J Charnigo, MS

Blood (2017) 130 (Supplement 1): 973.

https://doi.org/10.1182/blood.V130.Suppl_1.973.973

Published: 2017

Journal Articles

Pralatrexate: Phase 1/2 Study in Japanese Patients with Relapsed or Refractory Peripheral T-Cell Lymphoma (PTCL)

Yoshinobu Maeda, MD PhD, Kensei Tobinai, MD, PhD, Hirokazu Nagai, MD PhD, Takahiko Nakane, MD, PhD, Tatsu Shimoyama, MD, Tomonori Nakazato, Rika Sakai, Takayuki Ishikawa, MD, PhD, Koji Izutsu, MD PhD, Ryuzo Ueda, MD PhD

Blood (2016) 128 (22): 4157.

https://doi.org/10.1182/blood.V128.22.4157.4157

Published: 2016

Journal Articles

Patient-Reported Quality of Life before and after Stopping Treatment in the ENESTfreedom Trial of Treatment-Free Remission for Patients with Chronic Myeloid Leukemia in Chronic Phase

Andreas Hochhaus, MD, Maria Teresa Gómez Casares, MDPhD, Jesper Stentoft, MD PhD, Eibhlin Conneally, MB, MRCP, MRCPath, PhD, Valentin García-Gutiérrez, MD, Norbert Gattermann, MD, Wieslaw Wiktor-Jedrzejczak, MD, Philipp D. Le Coutre, MD, Bruno Martino, MD, Susanne Saussele, MD, Francis J. Giles, MB, MD FRCPI, FRCPath, Jerald P. Radich, David M. Ross, MBBS, PhD FRACP, FRCPA, Hans D. Menssen, MD PhD, Weiping Deng, Patricia Brandt, Ari Gnanasakthy, MBA, MSc, Veronique Bedoucha, Giuseppe Saglio, MD

Blood (2016) 128 (22): 3066.

https://doi.org/10.1182/blood.V128.22.3066.3066

Published: 2016

Journal Articles

Increasing Quality Improvement Capability in a Hemophilia Treatment Center

Courtney Thornburg, MD MS, Heidi Lane, PT, DPT, PCS, Katharine Farrow, BSN, RN, CPN, Rosalie Brooks, RN, Mina Jahan, ACSW, Maria Scopelliti, MHA

Blood (2016) 128 (22): 5908.

https://doi.org/10.1182/blood.V128.22.5908.5908

Published: 2016

Journal Articles

What Are the Expectations of Patients in Decision Making Process for Disease Modifying Therapies for Sickle Cell Disease: Do They Care about Shared Decision Making?

Diana Ross, MSN, RN, Nitya Bakshi, MBBS, MS, Kirshma Khemani, MD, Cynthia Sinha, PhD, George Loewenstein, PhD, Lakshmanan Krishnamurti, MD

Blood (2016) 128 (22): 5968.

https://doi.org/10.1182/blood.V128.22.5968.5968

Published: 2016

Journal Articles

Patient-Reported Quality of Life before and after Stopping Treatment in the ENESTop Trial of Treatment-Free Remission for Patients with Chronic Myeloid Leukemia in Chronic Phase

Blood (2016) 128 (22): 1891.

https://doi.org/10.1182/blood.V128.22.1891.1891

Published: 2016

Journal Articles

Evaluation of the Impact of Hematopoietic Stem Cell Transplant on the Quality of Life of Elderly Patients Treated for Lymphoma

Christopher Lemieux, MD, Nadia M. Bambace, MD, Jean Roy, MD, Sandra Cohen, MD, Imran Ahmad, MD, Lea Bernard, MD, Jean-Sebastien Delisle, MD PhD, Thomas Kiss, MD, Silvy Lachance, MD

Blood (2016) 128 (22): 4788.

https://doi.org/10.1182/blood.V128.22.4788.4788

Published: 2016

NARROW

Routine Management, Healthcare Resource Use and Patient/Caregiver-Reported Outcomes of Patients with Transfusion-Dependent β-Thalassaemia in the United Kingdom: A Mixed Methods Observational Study

Transition Experiences of Adolescents and Young Adults (AYA) with Sickle Cell Disease at the Ghana Institute of Clinical Genetics (GICG), Korle Bu in Accra, Ghana

Health-Related Quality of Life (HRQoL) in Patients with Myelofibrosis Treated with Fedratinib, an Oral, Selective Inhibitor of Janus Kinase 2 (JAK2), in the Randomized, Placebo-Controlled, Phase III JAKARTA Study

An Analysis from the WM UK Rory Morrison Registry - How Does Waldenström's Macroglobulinemia Affect Younger Patients?

Psychometric Evaluation of the Functional Assessment of Chronic Illness Therapy-Fatigue Scale (FACIT-Fatigue) in Patients with Chronic Lymphocytic Leukemia (CLL)

Longitudinal Changes of Impairments in Health-Related Quality of Life in Lower-Risk MDS Patients: A European Leukemianet Study

Understanding Disease Burden Among Persons with Hemophilia Α without Inhibitors

Addressing Challenges in Living with AML: Impact of Video-Based Patient Education on Knowledge and Behavior

Clinical Features and Risk Factors of Post-Engraftment Bloodstream Infection in Allogeneic HCT

Psychological, Physical and Functional Importance of Patient Reported Outcomes Among Cancer Outpatients

Caregiver Perceptions of Adolescent Self-Management Skills Predicts Higher Disease Knowledge Among Adolescents with SCD

Defining Vaso-Occlusive Crises in Sickle Cell Disease from the Perspective of the Patient: Development of a New Toolbox to Measure Treatment Outcomes

Sickle Cell Patient Education: Assessment of the Emmi Electronic Teaching Module

Elipsis: A Longitudinal Study of Electronic Patient-Reported Outcomes, Actigraphy and Biomarkers to Identify and Assess at-Home Vaso-Occlusive Crises in Adults and Adolescents with Sickle Cell Disease

Pralatrexate: Phase 1/2 Study in Japanese Patients with Relapsed or Refractory Peripheral T-Cell Lymphoma (PTCL)

Patient-Reported Quality of Life before and after Stopping Treatment in the ENESTfreedom Trial of Treatment-Free Remission for Patients with Chronic Myeloid Leukemia in Chronic Phase

Increasing Quality Improvement Capability in a Hemophilia Treatment Center

What Are the Expectations of Patients in Decision Making Process for Disease Modifying Therapies for Sickle Cell Disease: Do They Care about Shared Decision Making?

Patient-Reported Quality of Life before and after Stopping Treatment in the ENESTop Trial of Treatment-Free Remission for Patients with Chronic Myeloid Leukemia in Chronic Phase

Evaluation of the Impact of Hematopoietic Stem Cell Transplant on the Quality of Life of Elderly Patients Treated for Lymphoma

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American Society of Hematology

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American Society of Hematology

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