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Journal Articles

Health Equity Impacts of Funding Emicizumab in People with Severe Hemophilia a in the US: An Aggregate Distributional Cost-Effectiveness Analysis

Thomas Majda, Janet S Lee, Randall Curtis, Stacey L Kowal

Blood (2024) 144 (Supplement 1): 279.

https://doi.org/10.1182/blood-2024-198717

Published: 2024

Journal Articles

Short Term Health-Related Quality of Life Change in Adults with Sickle Cell Disease

Julie Kanter, Sophie Lanzkron, Sana Saif Ur Rehman, Jane A. Little, Megan M. Ullman, Randall Curtis, Nicole Crook, Jonathan C. Roberts, Derek Robertson, Joanne Wu, Michael B. Nichol

Blood (2024) 144 (Supplement 1): 7672.

https://doi.org/10.1182/blood-2024-208556

Published: 2024

Journal Articles

Association of Health-Related Quality of Life and Work Productivity with Clinical Characteristics in Adults with Sickle Cell Disease

Julie Kanter, Sophie Lanzkron, Sana Saif Ur Rehman, Jane A. Little, Megan M. Ullman, Randall Curtis, Nicole Crook, Jonathan C. Roberts, Derek Robertson, Joanne Wu, Michael B. Nichol

Blood (2023) 142 (Supplement 1): 2377.

https://doi.org/10.1182/blood-2023-187822

Published: 2023

Journal Articles

Adherence to Clotting Factor Treatment and Association with Bleeding and Health-Related Quality of Life in Persons with Hemophilia

Duc Quang Tran Jr., Megan M. Ullman, Brenda Riske, Cathy Buranahirun-Burns, Amy D. Shapiro, Margaret V. Ragni, Barbara A. Konkle, Nicole Crook, Jonathan C. Roberts, Randall Curtis, Joanne Wu, Michael B. Nichol

Blood (2023) 142 (Supplement 1): 7334.

https://doi.org/10.1182/blood-2023-187387

Published: 2023

Journal Articles

Cost-Effectiveness of Emicizumab Vs Efanesoctocog Alfa, Standard Half Life (SHL) and Other Extended Half Life (EHL) FVIII Products for Prophylaxis in People with Severe Hemophilia a without Inhibitors

Randall Curtis, Marquita Decker-Palmer, Michele R Wilson, Cheryl L McDade, Chia-Wei Lin, Chris Wallick, Richard H Ko

Blood (2023) 142 (Supplement 1): 5053.

https://doi.org/10.1182/blood-2023-181062

Published: 2023

Journal Articles

Clinical Characteristics Impacting Health-Related Quality of Life in Persons with Von Willebrand Disease

Shannon L Carpenter, Joanne Wu, Jonathan C. Roberts, Roshni Kulkarni, Peter A. Kouides, Robert F. Sidonio, Jr., Barbara Konkle, Judith Baker, Megan M. Ullman, Randall Curtis, Nicole Crook, Michael B. Nichol

Blood (2022) 140 (Supplement 1): 5127–5128.

https://doi.org/10.1182/blood-2022-160463

Published: 2022

Journal Articles

Trends in Prescribing Practices for Management of Hemophilia

Randall Curtis, Jonathan C. Roberts, Nicole Crook, Marquita Decker-Palmer, Rahul Khairnar, Judith Baker, Megan M. Ullman, Marion A. Koerper, Joanne Wu, Michael B. Nichol

Blood (2021) 138 (Supplement 1): 2112.

https://doi.org/10.1182/blood-2021-153828

Published: 2021

Journal Articles

Depression and Anxiety in Persons with Von Willebrand Disease

Jonathan C. Roberts, Roshni Kulkarni, Peter A. Kouides, Robert F. Sidonio, Jr., Shannon L Carpenter, Barbara A Konkle, Joanne Wu, Megan M. Ullman, Randall Curtis, Judith Baker, Nicole Crook, Michael B. Nichol

Blood (2021) 138 (Supplement 1): 4052.

https://doi.org/10.1182/blood-2021-151625

Published: 2021

Journal Articles

Association of Hemophilia a Inhibitor Status and Patient-Reported Outcomes with Work Productivity and Health-Related Quality of Life

Megan M. Ullman, Marilyn J Manco-Johnson, Jonathan C. Roberts, Nicole Crook, Rahul Khairnar, Marquita Decker-Palmer, Judith Baker, Randall Curtis, Amit Soni, Joanne Wu, Michael B. Nichol

Blood (2021) 138 (Supplement 1): 4069.

https://doi.org/10.1182/blood-2021-153410

Published: 2021

Journal Articles

Examination and Validation of a Patient-Centric Joint Metric: "Problem Joint"; Empirical Evidence from the CHESS US Dataset

Tom Burke, Idaira Rodriguez Santana, PhD, Pratima Chowdary, MD MBBS, MRCP, FRCPATH, Randall Curtis, MBA, Kate Khair, PhD, Michael Laffan, DM, FRCP, FRCPath, Paul McLaughlin, MSc, MMACP, Declan Noone, MSc, Brian O'Mahony, John Pasi, MB, ChB, PhD FRCP, FRCPath, FRCPCH, Mark W Skinner, JD, Jamie O'Hara, MSc

Blood (2020) 136 (Supplement 1): 25–26.

https://doi.org/10.1182/blood-2020-140950

Published: 2020

Journal Articles

Healthcare Utilization and Health Related Quality of Life in Persons with Von Willebrand Disease

Jonathan C. Roberts, MD, Roshni Kulkarni, MD, Peter A. Kouides, MD, Robert F. Sidonio, Jr., MD, Shannon L Carpenter, MD, Barbara A. Konkle, MD, Joanne Wu, MDMS, Judith Baker, DrPH, MHSA, Megan M. Ullman, MA, MPH, Randall Curtis, MBA, Steven Carrasco, MPH, Duc Quang Tran, Jr., MD, Michael B. Nichol, PhD

Blood (2020) 136 (Supplement 1): 3–4.

https://doi.org/10.1182/blood-2020-143055

Published: 2020

Journal Articles

Impact of Hemophilia a Inhibitor on Joint Health and Health-Related Quality of Life from the Hemophilia Utilization Group Studies Part VIII in the U.S

Megan M. Ullman, MA, MPH, Marilyn J Manco-Johnson, MD, Jonathan C. Roberts, MD, Nicole Crook, RN, Rahul Khairnar, Joanne Wu, MDMS, Steven Carrasco, MPH, Randall Curtis, MBA, Judith Baker, DrPH, MHSA, Duc Quang Tran, Jr., MD, Michael B. Nichol, PhD

Blood (2020) 136 (Supplement 1): 8–9.

https://doi.org/10.1182/blood-2020-142947

Published: 2020

Journal Articles

Depressive Disorders Among Adults with Hemophilia a

Joanne Wu, MDMS, Randall Curtis, MBA, Megan M. Ullman, MA, MPH, Judith Baker, DrPH, MHSA, Duc Quang Tran, Jr., MD, Michael B. Nichol, PhD

Blood (2020) 136 (Supplement 1): 32.

https://doi.org/10.1182/blood-2020-137273

Published: 2020

Journal Articles

Hematology Utilization Group Studies Part VII (HUGS VII): Costs and Impact of Disease in Older Persons with Hemophilia

Randall Curtis, MBA, Marilyn J Manco-Johnson, MD, Barbara A. Konkle, MD, Roshni Kulkarni, MD, Joanne Wu, MDMS, Judith Baker, DrPH, MHSA, Megan M. Ullman, MA, MPH, Duc Quang Tran, Jr., MD, Michael B. Nichol, PhD

Blood (2020) 136 (Supplement 1): 35–36.

https://doi.org/10.1182/blood-2020-141453

Published: 2020

Journal Articles

Is Hemophilia B Clinically Less Severe Than Hemophilia a? Evidence from the Hugs Va and Vb Studies

Megan M. Ullman, MA, MPH, Randall Curtis, MBA, Mimi Lou, MS, Brenda Riske, MBA, MS, Judith Baker, DrPH, MHSA, Duc Quang Tran, Jr., MD, Joanne Wu, Michael B. Nichol, PhD

Blood (2019) 134 (Supplement_1): 58.

https://doi.org/10.1182/blood-2019-129439

Published: 2019

Journal Articles

Impact of Prophylaxis Usage on Bleeding Rates Among Persons with Hemophilia A: Evidence from Longitudinal Analyses in the USA

Michael B. Nichol, PhD, Randall Curtis, MBA, Yuchen Ding, PhD, Elmar R. Aliyev, BS, Marion A. Koerper, MD, Mimi Lou, MS, Megan M. Ullman, MA, MPH, Duc Quang Tran, Jr., MD, Judith Baker, DrPH, MHSA, Brenda Riske, MBA, MS, Joanne Wu, MD MS

Blood (2018) 132 (Supplement 1): 494.

https://doi.org/10.1182/blood-2018-99-119215

Published: 2018

Journal Articles

Burden of Comorbid Diseases in Patients with Hemophilia: The Cross-Sectional Analysis of the Patient Reported Outcomes, Burden and Experiences (PROBE) Study

Mark Skinner, Chatree Chai-Adisaksopha, MD, Randall Curtis, MBA, Neil Frick, Declan Noone, Brian O'Mahony, David Page, Jeffrey Stonebraker, Alfonso Iorio, MD PhD

Blood (2017) 130 (Supplement 1): 3411.

https://doi.org/10.1182/blood.V130.Suppl_1.3411.3411

Published: 2017

Journal Articles

Psychometric Properties of the Patient Reported Outcomes Burdens and Experiences (PROBE) Questionnaire

Chatree Chai-Adisaksopha, MD, Mark Skinner, Randall Curtis, MBA, Neil Frick, Michael B. Nichol, PhD, Declan Noone, Brian O'Mahony, David Page, Jeffrey Stonebraker, Alfonso Iorio, MD PhD

Blood (2017) 130 (Supplement 1): 5645.

https://doi.org/10.1182/blood.V130.Suppl_1.5645.5645

Published: 2017

Journal Articles

Sexual Health in Patients with Hemophilia; The Insights from the Patient Reported Outcomes, Burdens and Experiences (PROBE) Study

Chatree Chai-Adisaksopha, MD, Mark Skinner, Randall Curtis, MBA, Neil Frick, Michael B. Nichol, PhD, Declan Noone, Brian O'Mahony, David Page, Jeffrey Stonebraker, Alfonso Iorio, MD PhD

Blood (2017) 130 (Supplement 1): 2141.

https://doi.org/10.1182/blood.V130.Suppl_1.2141.2141

Published: 2017

Journal Articles

Health-Related Quality of Life and Health Insurance Coverage Among Persons with Hemophilia A Inhibitors

Michael B. Nichol, PhD, Ning Ning, MS, Yaping Xu, Judith Baker, DrPH, MHSA, Randall Curtis, MBA, Marion A. Koerper, MD, Mimi Lou, MS, Brenda Riske, MBA, MS, Megan Ullman, MA, MPH, Joanne Wu, MD MS

Blood (2017) 130 (Supplement 1): 4736.

https://doi.org/10.1182/blood.V130.Suppl_1.4736.4736

Published: 2017

NARROW

Health Equity Impacts of Funding Emicizumab in People with Severe Hemophilia a in the US: An Aggregate Distributional Cost-Effectiveness Analysis

Short Term Health-Related Quality of Life Change in Adults with Sickle Cell Disease

Association of Health-Related Quality of Life and Work Productivity with Clinical Characteristics in Adults with Sickle Cell Disease

Adherence to Clotting Factor Treatment and Association with Bleeding and Health-Related Quality of Life in Persons with Hemophilia

Cost-Effectiveness of Emicizumab Vs Efanesoctocog Alfa, Standard Half Life (SHL) and Other Extended Half Life (EHL) FVIII Products for Prophylaxis in People with Severe Hemophilia a without Inhibitors

Clinical Characteristics Impacting Health-Related Quality of Life in Persons with Von Willebrand Disease

Trends in Prescribing Practices for Management of Hemophilia

Depression and Anxiety in Persons with Von Willebrand Disease

Association of Hemophilia a Inhibitor Status and Patient-Reported Outcomes with Work Productivity and Health-Related Quality of Life

Examination and Validation of a Patient-Centric Joint Metric: "Problem Joint"; Empirical Evidence from the CHESS US Dataset

Healthcare Utilization and Health Related Quality of Life in Persons with Von Willebrand Disease

Impact of Hemophilia a Inhibitor on Joint Health and Health-Related Quality of Life from the Hemophilia Utilization Group Studies Part VIII in the U.S

Depressive Disorders Among Adults with Hemophilia a

Hematology Utilization Group Studies Part VII (HUGS VII): Costs and Impact of Disease in Older Persons with Hemophilia

Is Hemophilia B Clinically Less Severe Than Hemophilia a? Evidence from the Hugs Va and Vb Studies

Impact of Prophylaxis Usage on Bleeding Rates Among Persons with Hemophilia A: Evidence from Longitudinal Analyses in the USA

Burden of Comorbid Diseases in Patients with Hemophilia: The Cross-Sectional Analysis of the Patient Reported Outcomes, Burden and Experiences (PROBE) Study

Psychometric Properties of the Patient Reported Outcomes Burdens and Experiences (PROBE) Questionnaire

Sexual Health in Patients with Hemophilia; The Insights from the Patient Reported Outcomes, Burdens and Experiences (PROBE) Study

Health-Related Quality of Life and Health Insurance Coverage Among Persons with Hemophilia A Inhibitors

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American Society of Hematology

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American Society of Hematology

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