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Journal Articles

Investigating the Relationship between Endogenous Factor VIII Levels and Annual Bleed Rates and Health-Related Quality of Life in Patients with Hemophilia a Not Treated with Factor VIII Prophylaxis

Cheryl Jones, Yunchou Wu, Nana Kragh, Linda Bystrická, Amanda Wilson, Tom Burke
Journal: Blood
Blood (2023) 142 (Supplement 1): 5125.
https://doi.org/10.1182/blood-2023-180821
Published: 2023
Journal Articles

Bleeding Data across Baseline FIX Expression Levels in People with Hemophilia B: An Analysis Using the 'Factor Expression Study'

Tom Burke, Anum Shaikh, Talaha Ali, Nanxin Li, Barbara A Konkle, Declan Noone, Brian O'Mahony, Steven W Pipe, Jamie O'Hara
Journal: Blood
Blood (2021) 138 (Supplement 1): 592.
https://doi.org/10.1182/blood-2021-152551
Published: 2021
Journal Articles

Evidence of a Hemophilia Employment Gap: Comparing Data from CHESS US+ and the 2019 Current Population Survey

Sohaib Asghar, Tom Burke, Natalia Misciattelli, Sharmila Kar, George Morgan, Jamie O'Hara, MSc
Journal: Blood
Blood (2020) 136 (Supplement 1): 26–27.
https://doi.org/10.1182/blood-2020-142555
Published: 2020
Journal Articles

Examination and Validation of a Patient-Centric Joint Metric: "Problem Joint"; Empirical Evidence from the CHESS US Dataset

Tom Burke, Idaira Rodriguez Santana, PhD, Pratima Chowdary, MD MBBS, MRCP, FRCPATH, Randall Curtis, MBA, Kate Khair, PhD, Michael Laffan, DM, FRCP, FRCPath, Paul McLaughlin, MSc, MMACP, Declan Noone, MSc, Brian O'Mahony, John Pasi, MB, ChB, PhD FRCP, FRCPath, FRCPCH, Mark W Skinner, JD, Jamie O'Hara, MSc
Journal: Blood
Blood (2020) 136 (Supplement 1): 25–26.
https://doi.org/10.1182/blood-2020-140950
Published: 2020
Journal Articles

An Insight into the Impact of Hemophilia a on Daily Life According to Disease Severity: A Preliminary Analysis of the CHESS II Study

Declan Noone, MSc, Francis Nissen, Tao Xu, Tom Burke, Sohaib Asghar, Harpal Dhillon, Martynas Aizenas, Oliver Meier, Jamie O'Hara, MSc, Kate Khair, PhD
Journal: Blood
Blood (2020) 136 (Supplement 1): 1–3.
https://doi.org/10.1182/blood-2020-136952
Published: 2020
Journal Articles

Effect of Moderate and Severe Hemophilia a on Daily Life in Children and Their Caregivers: A CHESS Paediatrics Study Analysis

Kate Khair, PhD, Francis Nissen, Mariabeth Silkey, Tom Burke, Aijing Shang, MD PhD, Martynas Aizenas, Oliver Meier, Jamie O'Hara, MSc, Declan Noone, MSc
Journal: Blood
Blood (2020) 136 (Supplement 1): 43–45.
https://doi.org/10.1182/blood-2020-134658
Published: 2020
Journal Articles

Problem Joints and Their Clinical and Humanistic Burden in Children and Adults with Moderate and Severe Hemophilia a: CHESS Paediatrics and CHESS II

Paul McLaughlin, MSc, MMACP, Cedric Hermans, MDMRCP,PhD, Sohaib Asghar, Tom Burke, Francis Nissen, Martynas Aizenas, Oliver Meier, Harpal Dhillon, Jamie O'Hara, MSc
Journal: Blood
Blood (2020) 136 (Supplement 1): 33–34.
https://doi.org/10.1182/blood-2020-140306
Published: 2020
Journal Articles

Adherence and a Potential Trade-Off Currently Faced in Optimizing Hemophilia Treatment

Tom Burke, Sohaib Asghar, Natalia Misciattelli, Sharmila Kar, George Morgan, Harpal Dhillon, Jamie O'Hara, MSc
Journal: Blood
Blood (2020) 136 (Supplement 1): 40–41.
https://doi.org/10.1182/blood-2020-142789
Published: 2020
Journal Articles

Relationship between Vaso-Occlusive Crises and Important Complications in Sickle Cell Disease Patients

Miranda Bailey, Ajibola Abioye, George Morgan, Tom Burke, MSc, Tim Disher, Stephen Brown, Ashley Bonner, Eleonore Herquelot, Ludovic Lamarsalle, Fanny Raguideau
Journal: Blood
Blood (2019) 134 (Supplement_1): 2167.
https://doi.org/10.1182/blood-2019-131721
Published: 2019
Journal Articles

Bay 81-8973 in the Real World: Clinical Effectiveness and Safety in Patients with Hemophilia Α across the US and Europe

Jamie O'Hara, Mr, Ceri Hirst, PhD, Stephan Rauchensteiner, Tom Burke, MSc
Journal: Blood
Blood (2018) 132 (Supplement 1): 5044.
https://doi.org/10.1182/blood-2018-99-116814
Published: 2018