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Journal Articles

Mortality in sickle cell disease: A report from the grndad registry

Joshua Rivenbark, Daniel Semakula, Julie Kanter, Deepa Manwani, Amma Owusu-Ansah, John Strouse, Jane Little, Sophie Lanzkron

Blood (2025) 146 (Supplement 1): 2973.

https://doi.org/10.1182/blood-2025-2973

Published: 2025

Journal Articles

Cardiopulmonary complications during pregnancy as a risk factor for cesarean delivery in a two center, sickle cell disease pregnancy cohort

Ria Arora, Amy Luo, Macy Gatti, Jayla Scott, Nadine Shehata, Sophie Lanzkron, A. Kinga Malinowski, Kevin Kuo, Lydia Pecker

Blood (2025) 146 (Supplement 1): 2945.

https://doi.org/10.1182/blood-2025-2945

Published: 2025

Journal Articles

High rates of severe maternal morbidity and preterm birth among pregnant individuals with sickle cell disease, a nationwide study from 2020-2024

Aaron Cheng, Kevin Dysart, Heather Burris, Sophie Lanzkron, Andrea Roe

Blood (2025) 146 (Supplement 1): 177.

https://doi.org/10.1182/blood-2025-177

Published: 2025

Journal Articles

Sapport: A specialty training program for advanced practice providers to increase knowledge and access to care for people living with sickle cell disease

Ashley Lauriello, Earleisha Felder, Sharon Sorungbe, Mandy David, Julie Kanter, Sophie Lanzkron, Jennifer Jones

Blood (2025) 146 (Supplement 1): 832.

https://doi.org/10.1182/blood-2025-832

Published: 2025

Journal Articles

Circulating endothelial extracellular vesicles from sickle cell patients promote susceptibility of pulmonary endothelium to thrombotic injury

Sowmya Gopal, Mandeep Kaur, Prasanna Varadhan, Katie McDonnell, Sanaa Rizk, Sophie Lanzkron, Amit Srivastava

Blood (2025) 146 (Supplement 1): 4713.

https://doi.org/10.1182/blood-2025-4713

Published: 2025

Journal Articles

Correlation of antral follicle count and antimullerian hormone in women with sickle cell disease

Lydia Pecker, Vinal Menon, Lauren Anthony, Anushka Tambade, Nora Khalil, Mindy Christianson, Kamaria Cayton-Vaught, James Segars, Katie Cameron, Sophie Lanzkron

Blood (2025) 146 (Supplement 1): 4729.

https://doi.org/10.1182/blood-2025-4729

Published: 2025

Journal Articles

Assessing replicability in chronic kidney disease severity scoring classifications using the sickle cell outcome grading system

India Sisler, Nadirah El-Amin, Joseph Wardell, Tarun Aurora, Daniel Semakula, Sophie Lanzkron, Jane Hankins, Renee Hodges

Blood (2025) 146 (Supplement 1): 4749.

https://doi.org/10.1182/blood-2025-4749

Published: 2025

Journal Articles

Improvements in mental health symptoms are associated with improved quality of life over time in adults with sickle cell disease

Joshua Knutsen, Alka Upadhyay, Shu Zhang, Sophie Lanzkron, C. Patrick Carroll, Michelle Eakin

Blood (2025) 146 (Supplement 1): 6522.

https://doi.org/10.1182/blood-2025-6522

Published: 2025

Journal Articles

Chronic opioid medication use is associated with healthcare utilization and fatigue in adults with sickle cell disease

Eli Salzberg, Elizabeth Ruvalcaba, C. Patrick Caroll, Sophie Lanzkron, Michelle Eakin

Blood (2025) 146 (Supplement 1): 2673.

https://doi.org/10.1182/blood-2025-2673

Published: 2025

Journal Articles

Development of the sickle cell outcome grading system (SCOGS), a novel classification system for sickle cell disease severity

Blood (2025) 146 (Supplement 1): 2942.

https://doi.org/10.1182/blood-2025-2942

Published: 2025

Journal Articles

Feasibility of Validating a Screening Tool for Neurocognitive Function in Adults with SCD

Eboni I. Lance, Aliyah Allick, Alicia Cannon, Lakeya S. McGill, Wingel Xue, Lauren Anthony, Jessica Liang, Phil Fanara, Lydia H. Pecker, C. Patrick Carroll, Sophie Lanzkron

Blood (2024) 144 (Supplement 1): 3882.

https://doi.org/10.1182/blood-2024-204141

Published: 2024

Journal Articles

Designing and Implementing a Standardized Electronic Health Record (EHR) Template for Transition of Care in Sickle Cell Disease (SCD)

Stephanie H. Guarino, Robin E Miller, Kenneth Rivlin, Mohan Madisetti, Akshat Jain, Jerome A Osheroff, Payal Desai, Julie Kanter, Sophie Lanzkron

Blood (2024) 144 (Supplement 1): 7548.

https://doi.org/10.1182/blood-2024-207769

Published: 2024

Journal Articles

Short Term Health-Related Quality of Life Change in Adults with Sickle Cell Disease

Julie Kanter, Sophie Lanzkron, Sana Saif Ur Rehman, Jane A. Little, Megan M. Ullman, Randall Curtis, Nicole Crook, Jonathan C. Roberts, Derek Robertson, Joanne Wu, Michael B. Nichol

Blood (2024) 144 (Supplement 1): 7672.

https://doi.org/10.1182/blood-2024-208556

Published: 2024

Journal Articles

Paths Grant: Using the Hub and Spoke Model to Improve Access to Care for Adults Living with Sickle Cell Diseases

Sophie Lanzkron, Ashley Lauriello, Andrew D. Campbell, Vannesia Morgan-Smith, Ivan Zama, Derek Robertson, Petronella Barrow, Jacky Jennings, Taylor Craig, Elizabeth Prince

Blood (2024) 144 (Supplement 1): 3623.

https://doi.org/10.1182/blood-2024-208252

Published: 2024

Journal Articles

Establishing a Definition of Transition of Care in Sickle Cell Disease: National Alliance of Sickle Cell Disease Centers Consensus

Stephanie H. Guarino, Akshat Jain, Mohan Madisetti, Kenneth Rivlin, Payal Desai, Robert Hagar, Julie Kanter, Sophie Lanzkron, Deepa Manwani

Blood (2024) 144 (Supplement 1): 3622.

https://doi.org/10.1182/blood-2024-207698

Published: 2024

Journal Articles

In Vivo Sickle Cell Blood Rheology in Humans with Ventral Tongue Microscopy

Marisa Morakis, Luojie Huang, Gregory N McKay, Sophie Lanzkron, Lydia H. Pecker, Nicholas J Durr

Blood (2024) 144 (Supplement 1): 2481.

https://doi.org/10.1182/blood-2024-199268

Published: 2024

Journal Articles

Self-Described Identity, Pain, and Self Efficacy: A Mixed Methods Study in Adults with Sickle Cell Disease (SCD)

Mimi Nkanta, Keshab Subedi, Charmaine Wright, Carolyn Jenkins, Sophie Lanzkron, Stephanie H. Guarino

Blood (2024) 144 (Supplement 1): 2244.

https://doi.org/10.1182/blood-2024-210728

Published: 2024

Journal Articles

Association of Surgical Splenectomy and Venous Thromboembolism and Stroke in People with Sickle Cell Disease

Blood (2024) 144 (Supplement 1): 5308.

https://doi.org/10.1182/blood-2024-202700

Published: 2024

Journal Articles

High Concordance between Investigator-Verified Diagnosis and Manual Data Abstraction for Sickle Cell Diagnosis Type: An ASH Research Collaborative Data Hub Validation Study

Alexis Thompson, Ashima Singh, Donna S. Neuberg, Amanda M. Brandow, Allison A. King, Sophie Lanzkron, Emily A. Semmel, Sam Walters, Susan Rogers, Kathleen Hewitt, William A. Wood

Blood (2024) 144 (Supplement 1): 2313.

https://doi.org/10.1182/blood-2024-194157

Published: 2024

Journal Articles

Intersection of Pain-Related Healthcare Utilization with Neighborhood Factorsin Adults Living with Sickle Cell Disease

Rhonda Smith-Wright, Laura Samuel, Nancy Perrin, Sarah Slone, Claire Petchler, Sophie Lanzkron

Blood (2024) 144 (Supplement 1): 2301.

https://doi.org/10.1182/blood-2024-211198

Published: 2024

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Mortality in sickle cell disease: A report from the grndad registry

Cardiopulmonary complications during pregnancy as a risk factor for cesarean delivery in a two center, sickle cell disease pregnancy cohort

High rates of severe maternal morbidity and preterm birth among pregnant individuals with sickle cell disease, a nationwide study from 2020-2024

Sapport: A specialty training program for advanced practice providers to increase knowledge and access to care for people living with sickle cell disease

Circulating endothelial extracellular vesicles from sickle cell patients promote susceptibility of pulmonary endothelium to thrombotic injury

Correlation of antral follicle count and antimullerian hormone in women with sickle cell disease

Assessing replicability in chronic kidney disease severity scoring classifications using the sickle cell outcome grading system

Improvements in mental health symptoms are associated with improved quality of life over time in adults with sickle cell disease

Chronic opioid medication use is associated with healthcare utilization and fatigue in adults with sickle cell disease

Development of the sickle cell outcome grading system (SCOGS), a novel classification system for sickle cell disease severity

Feasibility of Validating a Screening Tool for Neurocognitive Function in Adults with SCD

Designing and Implementing a Standardized Electronic Health Record (EHR) Template for Transition of Care in Sickle Cell Disease (SCD)

Short Term Health-Related Quality of Life Change in Adults with Sickle Cell Disease

Paths Grant: Using the Hub and Spoke Model to Improve Access to Care for Adults Living with Sickle Cell Diseases

Establishing a Definition of Transition of Care in Sickle Cell Disease: National Alliance of Sickle Cell Disease Centers Consensus

In Vivo Sickle Cell Blood Rheology in Humans with Ventral Tongue Microscopy

Self-Described Identity, Pain, and Self Efficacy: A Mixed Methods Study in Adults with Sickle Cell Disease (SCD)

Association of Surgical Splenectomy and Venous Thromboembolism and Stroke in People with Sickle Cell Disease

High Concordance between Investigator-Verified Diagnosis and Manual Data Abstraction for Sickle Cell Diagnosis Type: An ASH Research Collaborative Data Hub Validation Study

Intersection of Pain-Related Healthcare Utilization with Neighborhood Factorsin Adults Living with Sickle Cell Disease

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