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Journal Articles

Short Term Health-Related Quality of Life Change in Adults with Sickle Cell Disease

Julie Kanter, Sophie Lanzkron, Sana Saif Ur Rehman, Jane A. Little, Megan M. Ullman, Randall Curtis, Nicole Crook, Jonathan C. Roberts, Derek Robertson, Joanne Wu, Michael B. Nichol

Blood (2024) 144 (Supplement 1): 7672.

https://doi.org/10.1182/blood-2024-208556

Published: 2024

Journal Articles

Feasibility of Validating a Screening Tool for Neurocognitive Function in Adults with SCD

Eboni I. Lance, Aliyah Allick, Alicia Cannon, Lakeya S. McGill, Wingel Xue, Lauren Anthony, Jessica Liang, Phil Fanara, Lydia H. Pecker, C. Patrick Carroll, Sophie Lanzkron

Blood (2024) 144 (Supplement 1): 3882.

https://doi.org/10.1182/blood-2024-204141

Published: 2024

Journal Articles

In Vivo Sickle Cell Blood Rheology in Humans with Ventral Tongue Microscopy

Marisa Morakis, Luojie Huang, Gregory N McKay, Sophie Lanzkron, Lydia H. Pecker, Nicholas J Durr

Blood (2024) 144 (Supplement 1): 2481.

https://doi.org/10.1182/blood-2024-199268

Published: 2024

Journal Articles

Self-Described Identity, Pain, and Self Efficacy: A Mixed Methods Study in Adults with Sickle Cell Disease (SCD)

Mimi Nkanta, Keshab Subedi, Charmaine Wright, Carolyn Jenkins, Sophie Lanzkron, Stephanie H. Guarino

Blood (2024) 144 (Supplement 1): 2244.

https://doi.org/10.1182/blood-2024-210728

Published: 2024

Journal Articles

Comparing Emergency Department and Infusion Clinic Outcomes Among Individuals with Sickle Cell Disease Seeking Care for Vaso-Occlusive Crises

Joshua C. Laperche, Alka Apudhyay, Michelle Eakin, Alexander A Boucher, Laura M. DeCastro, Stephanie H. Guarino, Robert Kribs, Wally R Smith, Vannesia Morgan-Smith, Andrew RW O'Brien, Ashley Lauriello, Jane A. Little, Charlene Sylvestre, Sophie Lanzkron

Blood (2024) 144 (Supplement 1): 5062.

https://doi.org/10.1182/blood-2024-208270

Published: 2024

Journal Articles

Paths Grant: Using the Hub and Spoke Model to Improve Access to Care for Adults Living with Sickle Cell Diseases

Sophie Lanzkron, Ashley Lauriello, Andrew D. Campbell, Vannesia Morgan-Smith, Ivan Zama, Derek Robertson, Petronella Barrow, Jacky Jennings, Taylor Craig, Elizabeth Prince

Blood (2024) 144 (Supplement 1): 3623.

https://doi.org/10.1182/blood-2024-208252

Published: 2024

Journal Articles

Establishing a Definition of Transition of Care in Sickle Cell Disease: National Alliance of Sickle Cell Disease Centers Consensus

Stephanie H. Guarino, Akshat Jain, Mohan Madisetti, Kenneth Rivlin, Payal Desai, Robert Hagar, Julie Kanter, Sophie Lanzkron, Deepa Manwani

Blood (2024) 144 (Supplement 1): 3622.

https://doi.org/10.1182/blood-2024-207698

Published: 2024

Journal Articles

Association of Surgical Splenectomy and Venous Thromboembolism and Stroke in People with Sickle Cell Disease

Blood (2024) 144 (Supplement 1): 5308.

https://doi.org/10.1182/blood-2024-202700

Published: 2024

Journal Articles

Designing and Implementing a Standardized Electronic Health Record (EHR) Template for Transition of Care in Sickle Cell Disease (SCD)

Stephanie H. Guarino, Robin E Miller, Kenneth Rivlin, Mohan Madisetti, Akshat Jain, Jerome A Osheroff, Payal Desai, Julie Kanter, Sophie Lanzkron

Blood (2024) 144 (Supplement 1): 7548.

https://doi.org/10.1182/blood-2024-207769

Published: 2024

Journal Articles

High Concordance between Investigator-Verified Diagnosis and Manual Data Abstraction for Sickle Cell Diagnosis Type: An ASH Research Collaborative Data Hub Validation Study

Alexis Thompson, Ashima Singh, Donna S. Neuberg, Amanda M. Brandow, Allison A. King, Sophie Lanzkron, Emily A. Semmel, Sam Walters, Susan Rogers, Kathleen Hewitt, William A. Wood

Blood (2024) 144 (Supplement 1): 2313.

https://doi.org/10.1182/blood-2024-194157

Published: 2024

Journal Articles

Intersection of Pain-Related Healthcare Utilization with Neighborhood Factorsin Adults Living with Sickle Cell Disease

Rhonda Smith-Wright, Laura Samuel, Nancy Perrin, Sarah Slone, Claire Petchler, Sophie Lanzkron

Blood (2024) 144 (Supplement 1): 2301.

https://doi.org/10.1182/blood-2024-211198

Published: 2024

Journal Articles

Association of Health-Related Quality of Life and Work Productivity with Clinical Characteristics in Adults with Sickle Cell Disease

Julie Kanter, Sophie Lanzkron, Sana Saif Ur Rehman, Jane A. Little, Megan M. Ullman, Randall Curtis, Nicole Crook, Jonathan C. Roberts, Derek Robertson, Joanne Wu, Michael B. Nichol

Blood (2023) 142 (Supplement 1): 2377.

https://doi.org/10.1182/blood-2023-187822

Published: 2023

Journal Articles

Grndad and Disease Modifying Therapy (DMT): Shifts in Dmt Are Seen at the Adolescent/Young Adult Transition in Sickle Cell Disease in a Multi-Site Prospective Registry

Blood (2023) 142 (Supplement 1): 798.

https://doi.org/10.1182/blood-2023-174930

Published: 2023

Journal Articles

Comparison of Alloimmunization in Pregnant People with Sickle Cell Disease Receiving Chronic Versus on-Demand Transfusions: A Multinational Study

Clare Zarka, Amy Luo, Sacha Belinda Mapombo Choupa, A. Kinga Malinowski, Kevin H.M. Kuo, Nadine Shehata, Sophie Lanzkron, Lydia H Pecker

Blood (2023) 142 (Supplement 1): 927.

https://doi.org/10.1182/blood-2023-178410

Published: 2023

Journal Articles

High Rate of Attendance at a Young Adult Clinic Embedded in an Adult Sickle Cell Center: If You Build It, They Will Come

Lydia H Pecker, Patrick Carroll, Lystra Ali, Ogechi Nwankwoala, Jayla Scott, Sophie Lanzkron, Elizabeth Prince

Blood (2023) 142 (Supplement 1): 5041.

https://doi.org/10.1182/blood-2023-172877

Published: 2023

Journal Articles

Cluster Analysis Reveals Distinct Subgroups with Severe Pain in Sickle Cell Disease: A Cross-Sectional Study Using the Grndad Multi-Center Registry

Martha O Kenney, Samuel Wilson, Morgan Rosser, Sophie Lanzkron, Julie Kanter, Amma T. Owusu-Ansah, Alice J. Cohen, Deepa Manwani, Jane A. Little

Blood (2023) 142 (Supplement 1): 930.

https://doi.org/10.1182/blood-2023-189214

Published: 2023

Journal Articles

Safety and Pharmacokinetics of Recombinant ADAMTS13 in Patients with Sickle Cell Disease: A Phase 1 Randomized, Double-Blind, Placebo-Controlled Study

Julie Kanter, Parth Patwari, Payal Desai, Kenneth I. Ataga, Shelley E. Crary, Sophie Lanzkron, Joshua Field, Yu-Che Chung, Linda T. Wang, Björn Mellgård, Van Anh (Vika) Nguyen, Victor R. Gordeuk

Blood (2023) 142 (Supplement 1): 149.

https://doi.org/10.1182/blood-2023-189090

Published: 2023

Journal Articles

Steady-State Hemoglobin Is Associated with Self-Reported Ability to Perform Challenging Physical Function Activities, but Not Global Physical Function in Individuals with Sickle Cell Anemia

Elizabeth Linton, Jennifer Schrack, Julie Kanter, Deepa Manwani, Jane A. Little, Sophie Lanzkron

Blood (2023) 142 (Supplement 1): 3882.

https://doi.org/10.1182/blood-2023-188159

Published: 2023

Journal Articles

Assessing Pain Severity in Sickle Cell Disease Using Animations and a Graphical Body Image

Blood (2023) 142 (Supplement 1): 5052.

https://doi.org/10.1182/blood-2023-189667

Published: 2023

Journal Articles

Pain without gain: steroids and sickle crisis

Sophie Lanzkron, Lydia Pecker

Blood (2022) 139 (26): 3678–3679.

https://doi.org/10.1182/blood.2022016070

Published: 2022

NARROW

Short Term Health-Related Quality of Life Change in Adults with Sickle Cell Disease

Feasibility of Validating a Screening Tool for Neurocognitive Function in Adults with SCD

In Vivo Sickle Cell Blood Rheology in Humans with Ventral Tongue Microscopy

Self-Described Identity, Pain, and Self Efficacy: A Mixed Methods Study in Adults with Sickle Cell Disease (SCD)

Comparing Emergency Department and Infusion Clinic Outcomes Among Individuals with Sickle Cell Disease Seeking Care for Vaso-Occlusive Crises

Paths Grant: Using the Hub and Spoke Model to Improve Access to Care for Adults Living with Sickle Cell Diseases

Establishing a Definition of Transition of Care in Sickle Cell Disease: National Alliance of Sickle Cell Disease Centers Consensus

Association of Surgical Splenectomy and Venous Thromboembolism and Stroke in People with Sickle Cell Disease

Designing and Implementing a Standardized Electronic Health Record (EHR) Template for Transition of Care in Sickle Cell Disease (SCD)

High Concordance between Investigator-Verified Diagnosis and Manual Data Abstraction for Sickle Cell Diagnosis Type: An ASH Research Collaborative Data Hub Validation Study

Intersection of Pain-Related Healthcare Utilization with Neighborhood Factorsin Adults Living with Sickle Cell Disease

Association of Health-Related Quality of Life and Work Productivity with Clinical Characteristics in Adults with Sickle Cell Disease

Grndad and Disease Modifying Therapy (DMT): Shifts in Dmt Are Seen at the Adolescent/Young Adult Transition in Sickle Cell Disease in a Multi-Site Prospective Registry

Comparison of Alloimmunization in Pregnant People with Sickle Cell Disease Receiving Chronic Versus on-Demand Transfusions: A Multinational Study

High Rate of Attendance at a Young Adult Clinic Embedded in an Adult Sickle Cell Center: If You Build It, They Will Come

Cluster Analysis Reveals Distinct Subgroups with Severe Pain in Sickle Cell Disease: A Cross-Sectional Study Using the Grndad Multi-Center Registry

Safety and Pharmacokinetics of Recombinant ADAMTS13 in Patients with Sickle Cell Disease: A Phase 1 Randomized, Double-Blind, Placebo-Controlled Study

Steady-State Hemoglobin Is Associated with Self-Reported Ability to Perform Challenging Physical Function Activities, but Not Global Physical Function in Individuals with Sickle Cell Anemia

Assessing Pain Severity in Sickle Cell Disease Using Animations and a Graphical Body Image

Pain without gain: steroids and sickle crisis

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American Society of Hematology

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