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Journal Articles

Assessing Patient and Provider Perspectives, Clinical Practice, Behaviors, and Knowledge on Hemophilia A Care

Tariqa A Ackbarali, PhDc), Stacy E. Croteau, MD, Steven W. Pipe, MD, Kelly Tickle, MSN, APN, CWON, PCNS-BS, PPCNP-BC, Lori Long, Sonji Wilkes, BS, Kate Nammacher, MPH, Neil Frick, Katie Kowalski, Wendy Turell
Journal: Blood
Blood (2020) 136 (Supplement 1): 24–25.
https://doi.org/10.1182/blood-2020-141657
Published: 2020
Journal Articles

Sexual Health in Patients with Hemophilia; The Insights from the Patient Reported Outcomes, Burdens and Experiences (PROBE) Study

Chatree Chai-Adisaksopha, MD, Mark Skinner, Randall Curtis, MBA, Neil Frick, Michael B. Nichol, PhD, Declan Noone, Brian O'Mahony, David Page, Jeffrey Stonebraker, Alfonso Iorio, MD PhD
Journal: Blood
Blood (2017) 130 (Supplement 1): 2141.
https://doi.org/10.1182/blood.V130.Suppl_1.2141.2141
Published: 2017
Journal Articles

Psychometric Properties of the Patient Reported Outcomes Burdens and Experiences (PROBE) Questionnaire

Chatree Chai-Adisaksopha, MD, Mark Skinner, Randall Curtis, MBA, Neil Frick, Michael B. Nichol, PhD, Declan Noone, Brian O'Mahony, David Page, Jeffrey Stonebraker, Alfonso Iorio, MD PhD
Journal: Blood
Blood (2017) 130 (Supplement 1): 5645.
https://doi.org/10.1182/blood.V130.Suppl_1.5645.5645
Published: 2017
Journal Articles

Burden of Comorbid Diseases in Patients with Hemophilia: The Cross-Sectional Analysis of the Patient Reported Outcomes, Burden and Experiences (PROBE) Study

Mark Skinner, Chatree Chai-Adisaksopha, MD, Randall Curtis, MBA, Neil Frick, Declan Noone, Brian O'Mahony, David Page, Jeffrey Stonebraker, Alfonso Iorio, MD PhD
Journal: Blood
Blood (2017) 130 (Supplement 1): 3411.
https://doi.org/10.1182/blood.V130.Suppl_1.3411.3411
Published: 2017
Journal Articles

Impact of Mild to Severe Hemophilia B on Quality of Life Including Pain and Functional Abilities in Affected Men/Women and Caregivers of Affected Boys/Girls: Analysis of Patient Reported Outcomes in the Bridging Hemophilia B Experiences Results and Opportunities into Solutions (B-HERO-S) Study

Tyler W. Buckner, MD MSc, Michelle Witkop, DNP, FNP-BC, Christine Guelcher, PPCNP, Robert F. Sidonio, Jr., MD, Christopher E. Walsh, MD PhD, Craig M. Kessler, MD, David Clark, PhD, Wendy E. Owens, MA, Neil Frick, MS, Neeraj N Iyer, PhD, David L Cooper, MD MBA
Journal: Blood
Blood (2016) 128 (22): 251.
https://doi.org/10.1182/blood.V128.22.251.251
Published: 2016
Journal Articles

Test-Retest Reliability Analysis of the Patient Reported Outcomes Burdens and Experiences (PROBE)

Chatree Chai-Adisaksopha, MD, Alfonso Iorio, MD PhD, Randall Curtis, Neil Frick, MS, Michael Nichol, Declan Noone, Brian O'Mahony, David Page, Jeffrey Stonebraker, Mark Skinner
Journal: Blood
Blood (2016) 128 (22): 5964.
https://doi.org/10.1182/blood.V128.22.5964.5964
Published: 2016
Journal Articles

Improving Hematologist/Oncologist Knowledge and Confidence in Managing Hemophilia through Online Educational Interventions

Emily S Van Laar, MS, Charlotte Warren, John Maeglin, Mila Kostic, Michael Schoen, PhD, Neil Frick, MS, Steven Pipe, MD
Journal: Blood
Blood (2015) 126 (23): 5593.
https://doi.org/10.1182/blood.V126.23.5593.5593
Published: 2015
Journal Articles

Hemophilia Experiences, Results and Opportunities (HERO) Study: US Respondent Demographics and Impact of Diagnosis On Career and Lifestyle Decisions and Quality of Life

Diane J Nugent, MD, Chris Guelcher, MD, PNP-BC, Angela Forsyth, PT, DPT, Neil Frick, MS, Michelle Rice, Alfonso Iorio, MD, PhD, Tami Wisniewski, MPH, David L. Cooper, MD, MBA
Journal: Blood
Blood (2012) 120 (21): 4244.
https://doi.org/10.1182/blood.V120.21.4244.4244
Published: 2012