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Journal Articles

Sickle cell disease in europe: A cross-border real-world data analysis from the radeep registry

Free
Anna Collado Gimbert, Sara Reidel, Raffaella Colombatti, Eduard Van Beers, Paola Bianchi, Stella Tamana, Angelo Loris Brunetta, Dore Peereboom, Giovanna Russo, Daniela Cuzzubbo, Elena Cela, José Manuel Marco Sánchez, Sarah Wambacq, Dedeken Laurence, Mariane de Montalembert, Karin Fijnvandraat, Bart Biemond, Frederic Galacteros, Pablo Bartolucci, Andreas Glenthoej, Antonis Kattamis, Ilona Binenbaum, María Pilar Nicolás, Iñigo de Miguel Beriain, Alexis Rodriguez Gallego, Angela Menarguez Lopez, Maximo Tartaglia, Nuria Torquet Luna, Roberta Trapanese, Betzabel Cajiao Garcia, Sandra Manceau, Kian Haseli, Efthymia Panteli, Elisabetta Mezzalira, Vincent De Pierrefeu, Petros Kountouris, Béatrice Gulbis, Maria Del Mar Mañú Pereira
Journal: Blood
Blood (2025) 146 (Supplement 1): 179.
https://doi.org/10.1182/blood-2025-179
Published: 2025
Journal Articles

Data validation and quality framework for building a european multimodal real-world dataset for clinical outcome research in sickle cell disease

Free
Sara Reidel, Pablo Bartolucci, Bart Biemond, Betzabel Cajiao Garcia, Elena Cela, Anna Collado Gimbert, Raffaella Colombatti, Mariane de Montalembert, Karin Fijnvandraat, Petros Kountouris, Vincent De Pierrefeu, Sandra Manceau, José Manuel Marco Sánchez, Angela Menarguez Lopez, Stella Tamana, Nuria Torquet Luna, Roberta Trapanese, Eduard Van Beers, Sigrid Van der Veen, Maria Del Mar Mañú Pereira
Journal: Blood
Blood (2025) 146 (Supplement 1): 4443.
https://doi.org/10.1182/blood-2025-4443
Published: 2025
Journal Articles

Thalassemia in europe: A cross-border real-world data analysis from the radeep registry

Free
Anna Collado Gimbert, Sara Reidel, Raffaella Colombatti, Eduard Van Beers, Paola Bianchi, Stella Tamana, Angelo Loris Brunetta, Dore Peereboom, Giovanna Russo, Daniela Cuzzubbo, Elena Cela, José Manuel Marco Sánchez, Sarah Wambacq, Dedeken Laurence, Bart Biemond, Soteroula Christou, Iren Savvides, Andreas Glenthoej, Antonis Kattamis, Ilona Binenbaum, María Pilar Nicolás, Iñigo de Miguel Beriain, Alexis Rodriguez Gallego, Angela Menarguez Lopez, Maximo Tartaglia, Nuria Torquet Luna, Roberta Trapanese, Marleen Ausloos, Betzabel Cajiao Garcia, Anna Minaidou, Kian Haseli, Efthymia Panteli, Elisabetta Mezzalira, Petros Kountouris, Béatrice Gulbis, Maria Del Mar Mañú Pereira
Journal: Blood
Blood (2025) 146 (Supplement 1): 4696.
https://doi.org/10.1182/blood-2025-4696
Published: 2025
Journal Articles

Oxygen Gradient Ektacytometry Is Associated with Markers of Hemolysis and Inflammation in a Large Sickle Cell Disease Cohort within the GenoMed4ALL Project

Free
Amira Idrizovic, Marissa J.M. Traets, Anna Collado Gimbert, Sara Reidel, Sigrid van der Veen, Anne-Laure Pham Hung D'Alexandry D'Orengiani, Mirco D'Agnolo, Emmanuel Adu, Mickael MARIN, Emmanuelle Bourdelier, Elisabetta Mezzalira, Betzabel Cajiao Garcia, Santiago Zazo, Tiziana Sanavia, Cesare Rollo, David Beneitez, Bart J. Biemond, Erfan Nur, Karin Fijnvandraat, Saskia EM Schols, Anita W. Rijneveld, Marjon H. Cnossen, Aida Kidane, Nicolas Hebert, Maria Paola Boaro, Slimane Allali, Caroline Le van kim, Anna Ruiz Llobet, Béatrice Gulbis, Federico Alvarez, Piero Fariselli, Petros Kountouris, Raffaella Colombatti, Pablo Bartolucci, Mariane De Montalembert, Richard van Wijk, Eduard J. Van Beers, Maria del Mar Mañú-Pereira, Minke A.E. Rab
Journal: Blood
Blood (2024) 144 (Supplement 1): 290.
https://doi.org/10.1182/blood-2024-200639
Published: 2024
Journal Articles

uRADAR: European Patients Referral Frame to Improve Access to New Drugs and Therapies in Ultra-Rare Anemia Disorders and Severe Hereditary Spherocytosis

Free
Maria A. Rodríguez Sánchez, Anna Collado Gimbert, Sara Reidel, Patricia Aguilar-Martinez, Celeste Bento, Elena Cela, Laurence Dedeken, Emma Drasar, Frederic Galacteros, Andreas Glenthoej, Monika Horvathova, Pavla Koralkova, Andreas E. Kulozik, Joachim B. Kunz, Marta Morado-Arias, Ana Ortuno Cabrero, Dagmar Pospíšilová, Minke A.E. Rab, Noemi Roy, Eduard J. Van Beers, Richard van Wijk, Sarah Wambacq, Claire Diot, Victoria Gutiérrez Valle, Raquel Mosull del Campo, Stella Tamana, Raffaella Colombatti, Petros Kountouris, Béatrice Gulbis, Paola Bianchi, Maria del Mar Mañú-Pereira
Journal: Blood
Blood (2024) 144 (Supplement 1): 794.
https://doi.org/10.1182/blood-2024-201501
Published: 2024
Journal Articles

Data Driven Research through the European RADeep Registry and the Use of Artificial Intelligence Towards Personalized Medicine in Sickle Cell Disease

Free
Anna Collado Gimbert, Sara Reidel, Patricia Alonso de Apellániz, Federico Alvarez, Borja Arroyo Galende, David Beneitez, Bart J. Biemond, Maria Paola Boaro, Betzabel Cajiao Garcia, Gastone Castellani, Elena Cela, Marjon H. Cnossen, Piero Fariselli, Karin Fijnvandraat, Béatrice Gulbis, Amira Idrizovic, Petros Kountouris, Vincent Malcor Deydier De Pierrefeu, Sandra Manceau, Elisabetta Mezzalira, Erfan Nur, Kalia Orphanou, Juan Parras, Salvador Payán-Pernía, Anne-Laure Pham Hung D'Alexandry D'Orengiani, Minke A.E. Rab, Giulia Reggiani, Anita W. Rijneveld, Cesare Rollo, Anna Ruiz Llobet, Tiziana Sanavia, Saskia EM Schols, Stella Tamana, Marissa J.M. Traets, Silvia Uribe, Sigrid van der Veen, Santiago Zazo, Pablo Bartolucci, Mariane De Montalembert, Raffaella Colombatti, Eduard J. Van Beers, Maria del Mar Mañú-Pereira
Journal: Blood
Blood (2024) 144 (Supplement 1): 1138.
https://doi.org/10.1182/blood-2024-203331
Published: 2024