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Journal Articles

A Pilot Study of a Functional Pain Assessment for Adult Patients Admitted with Sickle Cell Pain Crisis

Marquita Nelson, MD, Monica Peek, MDMPH, Kenneth Cohen, MD, Danielle Bowsman, MHA, Nabil Abou-Baker, MD

Blood (2019) 134 (Supplement_1): 4693.

https://doi.org/10.1182/blood-2019-124847

Published: 2019

Journal Articles

Neuropathic Pain Is Associated with Poor Health-Related Quality of Life in Adolescents with Sickle Cell Disease

Marisa Roman, BA, Janelle Highland, MA, MPP, Dawn Retherford, Amy Pan, PhD, Julie Panepinto, MDMSPH, Amanda M. Brandow, DO, MS

Blood (2019) 134 (Supplement_1): 417.

https://doi.org/10.1182/blood-2019-127626

Published: 2019

Journal Articles

Development and Validation of a Functional Status-Based Pain Assessment Tool

Margaret Guy, MD, Rehan Qayyum, MD, Pamela Derby, RN, FNP-BC, Nicole Carter, RN, MSN, NP-C, Jessica Keiser, MD, Alexandra Ulbing, BS, Daniel Sop, BS,MS, Wally R Smith, MD

Blood (2019) 134 (Supplement_1): 416.

https://doi.org/10.1182/blood-2019-131315

Published: 2019

Journal Articles

Phase-I Study of ETA Receptor Antagonist Ambrisentan in Sickle Cell Disease

Abdullah Kutlar, MD, Jennifer Pollock, PhD, Steffen E. Meiler, MD, Ryan Harris, PhD CEP, FACSM, Xu Hongyan, PhD, Leigh Wells, MSN, Latanya Bowman, RN, Sharon Jones, BS, David M. Pollock, PhD

Blood (2019) 134 (Supplement_1): 617.

https://doi.org/10.1182/blood-2019-130036

Published: 2019

Journal Articles

A Clinical Pathway Reduces Admissions for Vaso-Occlusive Pain in Sickle Cell Disease

Wallace Jones, MD, Leann Myers, Aditi Dasgupta, Jessica Debord

Blood (2019) 134 (Supplement_1): 3383.

https://doi.org/10.1182/blood-2019-127097

Published: 2019

Journal Articles

Assessment of Sickle Cell Disease Pain Management in the Whittington Hospital Emergency Department

Leena Al Shaman, MD, Layan Akkielah, MD, Katharine Orf, MBBS, Jonathan Massie, MA, MBBS, Jiexin Zheng, MA, MBBS, MRCP, Farrukh Shah

Blood (2018) 132 (Supplement 1): 5822.

https://doi.org/10.1182/blood-2018-99-109768

Published: 2018

Journal Articles

Assessing the Validity of the Brief Pain Inventory for Use Among Adults with Sickle Cell Disease

Jordan Driscoll, BA, Mikhil Bamne, PhD, Charles Jonassaint, PhD

Blood (2017) 130 (Supplement 1): 5579.

https://doi.org/10.1182/blood.V130.Suppl_1.5579.5579

Published: 2017

Journal Articles

Assessment of Health-Related Quality of Life in Adults Hospitalized with Sickle Cell Disease Vaso-Occlusive Crisis

Kimberly S Esham, MD, Angie Mae Rodday, PhD MS, Ruth Ann Weidner, MBA, MRP, Rachel J. Buchsbaum, MD, Hedy P Smith, MD PhD, Susan K Parsons, MD MRP

Blood (2017) 130 (Supplement 1): 2138.

https://doi.org/10.1182/blood.V130.Suppl_1.2138.2138

Published: 2017

Journal Articles

A Developmental Examination of Pain Among Youth with Sickle Cell Disease

Nicole M Alberts, PhD, Jane S Hankins, MD MS, Guolian Kang, PhD, Chen Li, MS, Jason Hodges, PhD, Martha Villavicencio, PhD, James L Klosky, PhD ABPP

Blood (2017) 130 (Supplement 1): 4722.

https://doi.org/10.1182/blood.V130.Suppl_1.4722.4722

Published: 2017

Journal Articles

Topographical Differences in Orexin Activation after Pain Assessments in Hb AA and HbSS Sickle Mice

Kimberlei A. Richardson, PhD BS, Huy Tran, BSMedTech, Robert E. Taylor, PhDMD, Kalpna Gupta, PhD

Blood (2017) 130 (Supplement 1): 4770.

https://doi.org/10.1182/blood.V130.Suppl_1.4770.4770

Published: 2017

Journal Articles

Pediatric Emergency Department Adherence to the 2014 National Heart, Lung and Blood Institute Guidelines Targeting Analgesic Therapy in the Management of Vaso-Occlusive Pain Episodes in Children with Sickle Cell Disease: a Multicenter Perspective

Blood (2016) 128 (22): 1016.

https://doi.org/10.1182/blood.V128.22.1016.1016

Published: 2016

Journal Articles

Validation of Pain report it Neuropathic Pain Scale in African American Adults with Sickle Cell Disease

Keesha Roach, RN, MS, Robert E Molokie, MD, Zaijie Jim Wang, PhD, Mariam O Ezenwa, PhD, David Shuey, BA, Jesus Carrasco, BA, Veronica Angulo, BS, Judith Schlaeger, PhD, Marie L Suarez, PhD, Yingwei Yao, PhD, Diana J Wilkie, PhD

Blood (2016) 128 (22): 3525.

https://doi.org/10.1182/blood.V128.22.3525.3525

Published: 2016

Journal Articles

An Ongoing Peer Review Programme for Paediatric and Adult Haemoglobinopathy (HbO) Services in England Drives Improvements in Care

Jo Howard, Josh Wright, MD, Banu Kaya, MD, Subarna Chakravorty, MD PhD, Jane Eminson

Blood (2016) 128 (22): 3526.

https://doi.org/10.1182/blood.V128.22.3526.3526

Published: 2016

Journal Articles

Health-Related Quality of Life (HRQL) Among Hospitalized Adults with Sickle Cell Disease (SCD): Incorporating Patient-Reported Outcome (PRO) Measures in Clinical Care

Kimberly S Esham, MD, Angie Mae Rodday, PhD MS, Ruth Ann Weidner, MBA, MRP, Rachel J. Buchsbaum, MD, Hedy P Smith, MD PhD, Susan K Parsons, MDMRP

Blood (2016) 128 (22): 5962.

https://doi.org/10.1182/blood.V128.22.5962.5962

Published: 2016

Journal Articles

Feiba Global Outcome Study (FEIBA-GO): Long-Term Real World Data on Apcc (Feiba R ) in Patients with Inhibitors. First Demographic Data

Ana Rosa Cid, MD, Carmen Escuriola, MD, Cedric R. Hermans, MD PhD MRCP, Pal André Holme, PhD MD, Claude Negrier, MD, Savita Rangarajan, Angiola Rocino, Jerzy Windyga, MD, Alessandro Gringeri, MD MSc, Roberto Crea, DVM, MSc

Blood (2016) 128 (22): 5038.

https://doi.org/10.1182/blood.V128.22.5038.5038

Published: 2016

Journal Articles

Pain in the Bleeding Disorders Community: Patient and Caregiver Perspectives

Tyler W. Buckner, MD MSc, Nancy Durben, PT, MSPT, PCS, Christi Humphrey, LCSW, Eric Iglewski, LMSW, Jennifer Newman, MSPT, Maria E Santaella, RN-BC, MSN, CPHON, Michelle Witkop, DNP, FNP-BC

Blood (2016) 128 (22): 2591.

https://doi.org/10.1182/blood.V128.22.2591.2591

Published: 2016

Journal Articles

Impact of Mild to Severe Hemophilia B on Quality of Life Including Pain and Functional Abilities in Affected Men/Women and Caregivers of Affected Boys/Girls: Analysis of Patient Reported Outcomes in the Bridging Hemophilia B Experiences Results and Opportunities into Solutions (B-HERO-S) Study

Tyler W. Buckner, MD MSc, Michelle Witkop, DNP, FNP-BC, Christine Guelcher, PPCNP, Robert F. Sidonio, Jr., MD, Christopher E. Walsh, MD PhD, Craig M. Kessler, MD, David Clark, PhD, Wendy E. Owens, MA, Neil Frick, MS, Neeraj N Iyer, PhD, David L Cooper, MD MBA

Blood (2016) 128 (22): 251.

https://doi.org/10.1182/blood.V128.22.251.251

Published: 2016

Journal Articles

Linear and Logistic Regression Models of Patient-Reported Outcomes and Patient Characteristics in US Adults with Hemophilia from the Pain, Functional Impairment, and Quality of Life (P-FiQ) Study

Katharine Batt, MD MSc, Michael Recht, MD PhD, Michael Wang, MD, Doris V. Quon, MD PhD, Lisa N Boggio, MD MS, Craig M. Kessler, MD, Tyler W. Buckner, MD MSc, Anne T. Neff, MD, Neeraj N Iyer, PhD, David L Cooper, MD MBA, Christine L Kempton, MD MSc

Blood (2016) 128 (22): 252.

https://doi.org/10.1182/blood.V128.22.252.252

Published: 2016

Journal Articles

Impact of Pain and Functional Impairment in US Adult People with Hemophilia (PWH): Patient-Reported Outcomes and Musculoskeletal Evaluation in the Pain, Functional Impairment, and Quality of Life (P-FiQ) Study

Christine L Kempton, MD MSc, Michael Recht, MD PhD, Anne Neff, MD, Michael Wang, MD, Tyler W. Buckner, MD MSc, Amit Soni, MD, Doris Quon, MD PhD, Michelle Witkop, DNP, FNP-BC, Lisa Boggio, MD, David L Cooper, MD MBA

Blood (2015) 126 (23): 39.

https://doi.org/10.1182/blood.V126.23.39.39

Published: 2015

Journal Articles

Patient-Reported Outcomes (PRO) in the Setting of Relapsed Myeloma: The Influence of Treatment Strategies and Genetic Variants Predict Quality of Life and Pain Experience

Sam H Ahmedzai, MBChB BSc FRCP, John A Snowden, MD FRCP, FRCPath, Angela Cox, BA MA PhD, David A Cairns, Cathy D Williams, Anna Hockaday, Jamie Cavenagh, Christopher Parrish, MD, Kwee L Yong, MBChB, PhD, Jim Cavet, FRCPath, Hannah Hunter, Jennifer Bird, John Ashcroft, MD MBBChir, PhD MRCP, MA, FRCPath, Julia Brown, PhD, Curly Morris, MD, Gordon Cook, MD PhD

Blood (2015) 126 (23): 3180.

https://doi.org/10.1182/blood.V126.23.3180.3180

Published: 2015

NARROW

A Pilot Study of a Functional Pain Assessment for Adult Patients Admitted with Sickle Cell Pain Crisis

Neuropathic Pain Is Associated with Poor Health-Related Quality of Life in Adolescents with Sickle Cell Disease

Development and Validation of a Functional Status-Based Pain Assessment Tool

Phase-I Study of ETA Receptor Antagonist Ambrisentan in Sickle Cell Disease

A Clinical Pathway Reduces Admissions for Vaso-Occlusive Pain in Sickle Cell Disease

Assessment of Sickle Cell Disease Pain Management in the Whittington Hospital Emergency Department

Assessing the Validity of the Brief Pain Inventory for Use Among Adults with Sickle Cell Disease

Assessment of Health-Related Quality of Life in Adults Hospitalized with Sickle Cell Disease Vaso-Occlusive Crisis

A Developmental Examination of Pain Among Youth with Sickle Cell Disease

Topographical Differences in Orexin Activation after Pain Assessments in Hb AA and HbSS Sickle Mice

Pediatric Emergency Department Adherence to the 2014 National Heart, Lung and Blood Institute Guidelines Targeting Analgesic Therapy in the Management of Vaso-Occlusive Pain Episodes in Children with Sickle Cell Disease: a Multicenter Perspective

Validation of Pain report it Neuropathic Pain Scale in African American Adults with Sickle Cell Disease

An Ongoing Peer Review Programme for Paediatric and Adult Haemoglobinopathy (HbO) Services in England Drives Improvements in Care

Health-Related Quality of Life (HRQL) Among Hospitalized Adults with Sickle Cell Disease (SCD): Incorporating Patient-Reported Outcome (PRO) Measures in Clinical Care

Feiba Global Outcome Study (FEIBA-GO): Long-Term Real World Data on Apcc (Feiba R ) in Patients with Inhibitors. First Demographic Data

Pain in the Bleeding Disorders Community: Patient and Caregiver Perspectives

Impact of Mild to Severe Hemophilia B on Quality of Life Including Pain and Functional Abilities in Affected Men/Women and Caregivers of Affected Boys/Girls: Analysis of Patient Reported Outcomes in the Bridging Hemophilia B Experiences Results and Opportunities into Solutions (B-HERO-S) Study

Linear and Logistic Regression Models of Patient-Reported Outcomes and Patient Characteristics in US Adults with Hemophilia from the Pain, Functional Impairment, and Quality of Life (P-FiQ) Study

Impact of Pain and Functional Impairment in US Adult People with Hemophilia (PWH): Patient-Reported Outcomes and Musculoskeletal Evaluation in the Pain, Functional Impairment, and Quality of Life (P-FiQ) Study

Patient-Reported Outcomes (PRO) in the Setting of Relapsed Myeloma: The Influence of Treatment Strategies and Genetic Variants Predict Quality of Life and Pain Experience

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American Society of Hematology

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ASH Publications

American Society of Hematology

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