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Journal Articles

Understanding Health Literacy Among Patients with Thalassemia: A Global Patient Survey by the Thalassemia Advocacy Advisory Council

Sujit Sheth, Lily Cannon, Laurice M Levine, Ralph Colasanti, Jill Deitrick, Tobias Larkin, Dina Steagall, Eleni Michalaki, Holly John, Keely S Gilroy, Louise Lombard, Maria Domenica Cappellini

Blood (2024) 144 (Supplement 1): 7949.

https://doi.org/10.1182/blood-2024-203302

Published: 2024

Journal Articles

Understanding the Physical and Psychosocial Impacts of Pyruvate Kinase Deficiency: Patient-Led Development of the Pyruvate Kinase Deficiency Life Phase Model

Rachael F. Grace, Lily Cannon, Maaike Eijgenraam, Carl Lander, Laura Miller D'Angelo, Susan Morris, Janie Davis, Parija Patel, Tamara Schryver, Alejandra Watson, Wilma Barcellini

Blood (2023) 142 (Supplement 1): 3691.

https://doi.org/10.1182/blood-2023-181979

Published: 2023

Journal Articles

Investigating Health Literacy in Thalassemia: Founding a Patient-Led Research Approach

Sujit Sheth, Ralph Colasanti, Lily Cannon, Jill Deitrick, Holly John, Keely S Gilroy, Louise Lombard, Eleni Michalaki, Tobias Larkin, Laurice M Levine, Dina Steagall, Maria Domenica Cappellini

Blood (2023) 142 (Supplement 1): 5251.

https://doi.org/10.1182/blood-2023-181629

Published: 2023