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Janie Davis
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Journal Articles

A Patient-Centric Approach to Sickle Cell Disease Clinical Trials: Integrating Patient Perspectives in the RISE UP Phase 2/3 Trial of Mitapivat for Informed Protocol Design and Associated Patient Community Benefit

Free
Charles R. Jonassaint, Blaze Armon Eppinger, Dominique Friend, Golie Lorenzo Green, Mia Robinson, Teonna Woolford, DeMitrious Wyant, Janie Davis, Abdulafeez Oluyadi, Ahmar U Zaidi, Holly John, Wally R Smith
Journal: Blood
Blood (2023) 142 (Supplement 1): 2376.
https://doi.org/10.1182/blood-2023-186710
Published: 2023
Journal Articles

Understanding the Physical and Psychosocial Impacts of Pyruvate Kinase Deficiency: Patient-Led Development of the Pyruvate Kinase Deficiency Life Phase Model

Free
Rachael F. Grace, Lily Cannon, Maaike Eijgenraam, Carl Lander, Laura Miller D'Angelo, Susan Morris, Janie Davis, Parija Patel, Tamara Schryver, Alejandra Watson, Wilma Barcellini
Journal: Blood
Blood (2023) 142 (Supplement 1): 3691.
https://doi.org/10.1182/blood-2023-181979
Published: 2023
Journal Articles

Cross-Community Collaboration and Data Collection to Optimize Patient Care in Hemolytic Anemias

Free
Biree Andemariam, Ninamaria Badalamenti, Rae Blaylark, Ralph Colasanti, Raffaella Colombatti, Rachael F. Grace, Charles R. Jonassaint, Kevin H.M. Kuo, Laurice M Levine, Clarisse Lobo, Tamara Schyrver, Sujit Sheth, Cassandra Trimnell, Alejandra Watson, Jill Welle, Teonna Woolford, Holly John, Janie Davis, Ahmar U Zaidi, Eva Gallagher, Sarah Gheuens, Nirmish Shah
Journal: Blood
Blood (2023) 142 (Supplement 1): 3692.
https://doi.org/10.1182/blood-2023-181632
Published: 2023
Journal Articles

Setting Industry Standards for Patient Engagement, Partnership, Allyship and Care: The Patient Vision Project

Free
Biree Andemariam, Tamara Schryver, Rae Blaylark, Ralph Colasanti, Nirmish Shah, Charles R. Jonassaint, Rucha Shah, Cassandra Trimnell, Teonna Woolford, Janie Davis, Eva Gallagher, Ahmar U Zaidi, Holly John, Sujit Sheth
Journal: Blood
Blood (2023) 142 (Supplement 1): 7233.
https://doi.org/10.1182/blood-2023-181791
Published: 2023