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    Journal Articles

    Cross-Community Collaboration and Data Collection to Optimize Patient Care in Hemolytic Anemias

    Biree Andemariam, Ninamaria Badalamenti, Rae Blaylark, Ralph Colasanti, Raffaella Colombatti, Rachael F. Grace, Charles R. Jonassaint, Kevin H.M. Kuo, Laurice M Levine, Clarisse Lobo, Tamara Schyrver, Sujit Sheth, Cassandra Trimnell, Alejandra Watson, Jill Welle, Teonna Woolford, Holly John, Janie Davis, Ahmar U Zaidi, Eva Gallagher, Sarah Gheuens, Nirmish Shah
    Journal: Blood
    Blood (2023) 142 (Supplement 1): 3692.
    https://doi.org/10.1182/blood-2023-181632
    Published: 2023
    Journal Articles

    Understanding the Physical and Psychosocial Impacts of Pyruvate Kinase Deficiency: Patient-Led Development of the Pyruvate Kinase Deficiency Life Phase Model

    Rachael F. Grace, Lily Cannon, Maaike Eijgenraam, Carl Lander, Laura Miller D'Angelo, Susan Morris, Janie Davis, Parija Patel, Tamara Schryver, Alejandra Watson, Wilma Barcellini
    Journal: Blood
    Blood (2023) 142 (Supplement 1): 3691.
    https://doi.org/10.1182/blood-2023-181979
    Published: 2023

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