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Journal Articles

Real-World Patterns of Additional Factor Treatment Use Among Hemophilia a Patients on Regular Prophylaxis in the United States: Results from the Picnichealth Database

Jonathan C. Roberts, Angela C Weyand, Mark T Reding, Nana Kragh, Nicole Tsao, Emily Cibelli, Gillian Hanson, Duygu Bozkaya, Anne-Laure Tardy

Blood (2024) 144 (Supplement 1): 3967.

https://doi.org/10.1182/blood-2024-204580

Published: 2024

Journal Articles

Athn 10 - Novel Variants in Persons with Rare Coagulation Disorders across Hemophilia Treatment Centers in the United States

Diane J. Nugent, Shirley Williams, Suchitra Acharya, Christina Ashburner, Vinod V. Balasa, Nidhi Bhatt, Martin Chandler, Tammuella Chrisentery-Singleton, Nicole Crook, Hilda Ding, Carol Fedor, Ravitharan Krishnadasan, Jonathan C. Roberts, Beverly Schaefer, Ayesha Zia, Amy D. Shapiro

Blood (2024) 144 (Supplement 1): 1216.

https://doi.org/10.1182/blood-2024-201837

Published: 2024

Journal Articles

Short Term Health-Related Quality of Life Change in Adults with Sickle Cell Disease

Julie Kanter, Sophie Lanzkron, Sana Saif Ur Rehman, Jane A. Little, Megan M. Ullman, Randall Curtis, Nicole Crook, Jonathan C. Roberts, Derek Robertson, Joanne Wu, Michael B. Nichol

Blood (2024) 144 (Supplement 1): 7672.

https://doi.org/10.1182/blood-2024-208556

Published: 2024

Journal Articles

Association of Health-Related Quality of Life and Work Productivity with Clinical Characteristics in Adults with Sickle Cell Disease

Julie Kanter, Sophie Lanzkron, Sana Saif Ur Rehman, Jane A. Little, Megan M. Ullman, Randall Curtis, Nicole Crook, Jonathan C. Roberts, Derek Robertson, Joanne Wu, Michael B. Nichol

Blood (2023) 142 (Supplement 1): 2377.

https://doi.org/10.1182/blood-2023-187822

Published: 2023

Journal Articles

Identifying Ideal Individuals for PK-Guided Dosing; Recreational Risks and Elevated Breakthrough Bleeding

Guy Young, Vinod V. Balasa, Jonathan C. Roberts, Andrew Frick, Ali G Mokdad, Jorge Caicedo

Blood (2023) 142 (Supplement 1): 3742.

https://doi.org/10.1182/blood-2023-178042

Published: 2023

Journal Articles

Adherence to Clotting Factor Treatment and Association with Bleeding and Health-Related Quality of Life in Persons with Hemophilia

Duc Quang Tran Jr., Megan M. Ullman, Brenda Riske, Cathy Buranahirun-Burns, Amy D. Shapiro, Margaret V. Ragni, Barbara A. Konkle, Nicole Crook, Jonathan C. Roberts, Randall Curtis, Joanne Wu, Michael B. Nichol

Blood (2023) 142 (Supplement 1): 7334.

https://doi.org/10.1182/blood-2023-187387

Published: 2023

Journal Articles

Clinical Characteristics Impacting Health-Related Quality of Life in Persons with Von Willebrand Disease

Shannon L Carpenter, Joanne Wu, Jonathan C. Roberts, Roshni Kulkarni, Peter A. Kouides, Robert F. Sidonio, Jr., Barbara Konkle, Judith Baker, Megan M. Ullman, Randall Curtis, Nicole Crook, Michael B. Nichol

Blood (2022) 140 (Supplement 1): 5127–5128.

https://doi.org/10.1182/blood-2022-160463

Published: 2022

Journal Articles

Joint Status and Bleeding Phenotype Characterization in Severe and Non-Severe Hemophilia a and B

Jonathan C. Roberts, Sarah E Gonzales, Amanda M. Kilgore, Dominique N. Barclay, Michael D Tarantino

Blood (2022) 140 (Supplement 1): 8470–8471.

https://doi.org/10.1182/blood-2022-163636

Published: 2022

Journal Articles

Hereditary Antithrombin Deficiency Pilot Project Registry from the American Thrombosis and Hemostasis Network (ATHN)

Maria T DeSancho, Erin Suvar, Jonathan C. Roberts, Michael D Tarantino, Jarren Santos, Michael Recht

Blood (2022) 140 (Supplement 1): 5670–5672.

https://doi.org/10.1182/blood-2022-168179

Published: 2022

Journal Articles

Trends in Prescribing Practices for Management of Hemophilia

Randall Curtis, Jonathan C. Roberts, Nicole Crook, Marquita Decker-Palmer, Rahul Khairnar, Judith Baker, Megan M. Ullman, Marion A. Koerper, Joanne Wu, Michael B. Nichol

Blood (2021) 138 (Supplement 1): 2112.

https://doi.org/10.1182/blood-2021-153828

Published: 2021

Journal Articles

Bleeding in Patients with Clinically Severe Von Willebrand Disease: Interim Analysis of Athn 9: A Natural History Study for People with Severe Von Willebrand Disease (VWD)

Angela C. Weyand, Martin Chandler, Carol Fedor, Kenneth D. Friedman, Sweta Gupta, Kristina M. Haley, Chunla He, Nikki Hirsh, Salley Pels, Jonathan C. Roberts, Tung T. Wynn, Robert F. Sidonio, Jr.

Blood (2021) 138 (Supplement 1): 3183.

https://doi.org/10.1182/blood-2021-145631

Published: 2021

Journal Articles

The Von Willebrand Disease Aging and Bleeding Correlation (VWD ABC) Study

Craig D. Seaman, Margaret V. Ragni, Peter A. Kouides, Eric H. Kraut, Rajiv K. Pruthi, Leslie J. Raffini, Jonathan C. Roberts, Annette von Drygalski, Daniel B. Bellissimo, Maria M Brooks

Blood (2021) 138 (Supplement 1): 1044.

https://doi.org/10.1182/blood-2021-152755

Published: 2021

Journal Articles

Depression and Anxiety in Persons with Von Willebrand Disease

Jonathan C. Roberts, Roshni Kulkarni, Peter A. Kouides, Robert F. Sidonio, Jr., Shannon L Carpenter, Barbara A Konkle, Joanne Wu, Megan M. Ullman, Randall Curtis, Judith Baker, Nicole Crook, Michael B. Nichol

Blood (2021) 138 (Supplement 1): 4052.

https://doi.org/10.1182/blood-2021-151625

Published: 2021

Journal Articles

Association of Hemophilia a Inhibitor Status and Patient-Reported Outcomes with Work Productivity and Health-Related Quality of Life

Megan M. Ullman, Marilyn J Manco-Johnson, Jonathan C. Roberts, Nicole Crook, Rahul Khairnar, Marquita Decker-Palmer, Judith Baker, Randall Curtis, Amit Soni, Joanne Wu, Michael B. Nichol

Blood (2021) 138 (Supplement 1): 4069.

https://doi.org/10.1182/blood-2021-153410

Published: 2021

Journal Articles

Eculizumab for Refractory Thrombosis in Antiphospholipid Syndrome

Habiba Hussain, MD, Michael D Tarantino, MD, Keith R McCrae, MD, Shruti Chaturvedi, MBBS,MS, Jonathan C. Roberts, MD

Blood (2020) 136 (Supplement 1): 10–11.

https://doi.org/10.1182/blood-2020-140535

Published: 2020

Journal Articles

Retrospective Chart Review of Gastrointestinal Bleeding in Patients with Von Willebrand Disease

Jonathan C. Roberts, MD, Miguel A. Escobar, MD, Suchitra Acharya Acharya, MD, Nina Hwang, MD, Michael Wang, MD, Sarah A Hale, MS, PhD, Abiola Oladapo, PhD, Sohaib Asghar, Syed Mehdi, MD, Peter A. Kouides, MD

Blood (2020) 136 (Supplement 1): 20–21.

https://doi.org/10.1182/blood-2020-133499

Published: 2020

Journal Articles

Bleeding in Patients with Clinically Severe Von Willebrand Disease: Preliminary Results of Athn 9, a Natural History Study of the Safety, Effectiveness, and Practice of Treatment for People with Severe Von Willebrand Disease (VWD)

Angela C. Weyand, MD, Kenneth D Friedman, MD, Sweta Gupta, MD, Kristina M. Haley, DO, Chunla He, Salley Pels, MD, Jonathan C. Roberts, MD, Crystal Watson, BS, Robert F. Sidonio, Jr., MD MSc.

Blood (2020) 136 (Supplement 1): 27–28.

https://doi.org/10.1182/blood-2020-137124

Published: 2020

Journal Articles

Healthcare Utilization and Health Related Quality of Life in Persons with Von Willebrand Disease

Jonathan C. Roberts, MD, Roshni Kulkarni, MD, Peter A. Kouides, MD, Robert F. Sidonio, Jr., MD, Shannon L Carpenter, MD, Barbara A. Konkle, MD, Joanne Wu, MDMS, Judith Baker, DrPH, MHSA, Megan M. Ullman, MA, MPH, Randall Curtis, MBA, Steven Carrasco, MPH, Duc Quang Tran, Jr., MD, Michael B. Nichol, PhD

Blood (2020) 136 (Supplement 1): 3–4.

https://doi.org/10.1182/blood-2020-143055

Published: 2020

Journal Articles

Impact of Hemophilia a Inhibitor on Joint Health and Health-Related Quality of Life from the Hemophilia Utilization Group Studies Part VIII in the U.S

Megan M. Ullman, MA, MPH, Marilyn J Manco-Johnson, MD, Jonathan C. Roberts, MD, Nicole Crook, RN, Rahul Khairnar, Joanne Wu, MDMS, Steven Carrasco, MPH, Randall Curtis, MBA, Judith Baker, DrPH, MHSA, Duc Quang Tran, Jr., MD, Michael B. Nichol, PhD

Blood (2020) 136 (Supplement 1): 8–9.

https://doi.org/10.1182/blood-2020-142947

Published: 2020

Journal Articles

Analysis of Bleeding and Treatment Patterns in Children and Adolescents before and after Von Willebrand Disease Diagnosis Using Data from a US Medical Claims Database

Jonathan C. Roberts, Lynn M Malec, MD, Imrran Halari, Sarah Hale, Abiola Oladapo, Robert Sidonio

Blood (2019) 134 (Supplement_1): 2117.

https://doi.org/10.1182/blood-2019-122164

Published: 2019

NARROW

Real-World Patterns of Additional Factor Treatment Use Among Hemophilia a Patients on Regular Prophylaxis in the United States: Results from the Picnichealth Database

Athn 10 - Novel Variants in Persons with Rare Coagulation Disorders across Hemophilia Treatment Centers in the United States

Short Term Health-Related Quality of Life Change in Adults with Sickle Cell Disease

Association of Health-Related Quality of Life and Work Productivity with Clinical Characteristics in Adults with Sickle Cell Disease

Identifying Ideal Individuals for PK-Guided Dosing; Recreational Risks and Elevated Breakthrough Bleeding

Adherence to Clotting Factor Treatment and Association with Bleeding and Health-Related Quality of Life in Persons with Hemophilia

Clinical Characteristics Impacting Health-Related Quality of Life in Persons with Von Willebrand Disease

Joint Status and Bleeding Phenotype Characterization in Severe and Non-Severe Hemophilia a and B

Hereditary Antithrombin Deficiency Pilot Project Registry from the American Thrombosis and Hemostasis Network (ATHN)

Trends in Prescribing Practices for Management of Hemophilia

Bleeding in Patients with Clinically Severe Von Willebrand Disease: Interim Analysis of Athn 9: A Natural History Study for People with Severe Von Willebrand Disease (VWD)

The Von Willebrand Disease Aging and Bleeding Correlation (VWD ABC) Study

Depression and Anxiety in Persons with Von Willebrand Disease

Association of Hemophilia a Inhibitor Status and Patient-Reported Outcomes with Work Productivity and Health-Related Quality of Life

Eculizumab for Refractory Thrombosis in Antiphospholipid Syndrome

Retrospective Chart Review of Gastrointestinal Bleeding in Patients with Von Willebrand Disease

Bleeding in Patients with Clinically Severe Von Willebrand Disease: Preliminary Results of Athn 9, a Natural History Study of the Safety, Effectiveness, and Practice of Treatment for People with Severe Von Willebrand Disease (VWD)

Healthcare Utilization and Health Related Quality of Life in Persons with Von Willebrand Disease

Impact of Hemophilia a Inhibitor on Joint Health and Health-Related Quality of Life from the Hemophilia Utilization Group Studies Part VIII in the U.S

Analysis of Bleeding and Treatment Patterns in Children and Adolescents before and after Von Willebrand Disease Diagnosis Using Data from a US Medical Claims Database

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American Society of Hematology

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American Society of Hematology

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