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Journal Articles

Validation of Instrument to Assess Hemophilia-Related Distress

Christine L. Kempton, MD MSc, Vaughn Barry, PhD MPH, Tyler W. Buckner, MD MSc, Janet Figueroa, MPH, Shanna Mattis, MPH, Mary Ellen Lynch, PhD, Mary E Stout, MD, Stephanie Whitten, Scott Gillespie, Courtney McCracken, PhD

Blood (2019) 134 (Supplement_1): 936.

https://doi.org/10.1182/blood-2019-122544

Published: 2019

Journal Articles

Final Development of the First Generic Quality of Life and Symptoms Measure Specific for Hematological Malignancies: The HM-PRO

Pushpendra Goswami, PhD MSc, BPharm, Tatiana Ionova, DSc, Esther Natalie Oliva, PhD, Roger Else, Jonathan Kell, MD, Adele K. Fielding, MBBS,PhDFRCP,FRCPath, Daniel Jennings, Marina Karakantza, MD, Saad Al-Ismail, MD, Graham P. Collins, MA, MBBS, MRCP, FRCPath, DPhil, Stewart McConnell, Catherine Langton, Sam Salek, PhDRPh FFPM MCMS MRPSGB FESCP

Blood (2019) 134 (Supplement_1): 3484.

https://doi.org/10.1182/blood-2019-129030

Published: 2019

Journal Articles

Examining Convergent Construct Validity and Inter-Rater Reliability Between ESMO-MCBS and ASCO-VF When Evaluating Hematologic Malignancies

Matthew Cheung, MD MS, FRCP, Ihsan Albakri, Robert Mason, Ronak Saluja, Sierra Cheng, Vanessa Arciero, Louis Everest, Kelvin Chan, MD PhD

Blood (2018) 132 (Supplement 1): 4800.

https://doi.org/10.1182/blood-2018-99-119631

Published: 2018

Journal Articles

Defining Vaso-Occlusive Crises in Sickle Cell Disease from the Perspective of the Patient: Development of a New Toolbox to Measure Treatment Outcomes

Andreas M Pleil, PhD, Alexandra Barsdorf, PhD, Michael U. Callaghan, Karin Coyne, PhD, Katy Benjamin, PhD, David Beidler, PhD, Robert J Charnigo, MS

Blood (2017) 130 (Supplement 1): 3415.

https://doi.org/10.1182/blood.V130.Suppl_1.3415.3415

Published: 2017

Journal Articles

Validation of Outcome Instruments for Venous Thrombosis in Children

Julie Smith, BS, Dianne Thornhill, PhD, Neil A Goldenberg, MD PhD, Leonardo R. Brandao, MD MSc, Lillian Sung, MD PhD, Susan Kahn, MD, Marilyn J Manco-Johnson, MD

Blood (2017) 130 (Supplement 1): 1101.

https://doi.org/10.1182/blood.V130.Suppl_1.1101.1101

Published: 2017

Journal Articles

A Systematic Literature Review of Patient-Reported Outcome Instruments Used in Sickle Cell Disease

Grammati Sarri, PhD, Menaka Bhor, PhD, Seye Abogunrin, MB BS, MPH, MSc, Caroline Farmer, PhD, Savita Nandal, MBBS, MD, Dennis A. Revicki, PhD

Blood (2017) 130 (Supplement 1): 4648.

https://doi.org/10.1182/blood.V130.Suppl_1.4648.4648

Published: 2017

Journal Articles

Validation of Pain report it Neuropathic Pain Scale in African American Adults with Sickle Cell Disease

Keesha Roach, RN, MS, Robert E Molokie, MD, Zaijie Jim Wang, PhD, Mariam O Ezenwa, PhD, David Shuey, BA, Jesus Carrasco, BA, Veronica Angulo, BS, Judith Schlaeger, PhD, Marie L Suarez, PhD, Yingwei Yao, PhD, Diana J Wilkie, PhD

Blood (2016) 128 (22): 3525.

https://doi.org/10.1182/blood.V128.22.3525.3525

Published: 2016

Journal Articles

Evaluating Patient Preference for Haemophilia a Treatment

Martin Schulz, Ana Gordo, Chloe Tolley, Hannah Staunton, Elaine Brohan, Dean Spurden, Michael Cicchetti, Joseph C. Cappelleri, PhD MPH, MS

Blood (2016) 128 (22): 4973.

https://doi.org/10.1182/blood.V128.22.4973.4973

Published: 2016

Journal Articles

Psychometric Performance Of The EORTC Quality-Of-Life Core Questionnaire (QLQ-C30) and QLQ-Multiple Myeloma (QLQ-MY20) In Relapsed/Refractory Multiple Myeloma (RRMM)

Xavier Leleu, MD, PhD, Maria Teresa Petrucci, MD, Manfred Welslau, Isabelle Vande Broek, Philip T Murphy, MD, MRCPath, Andrew Bottomley, PhD, Pamela Bacon, Philip Lewis, PhD, Hélène Gilet, MSc, Benoit Arnould, PhD, Charalampia Kyriakou

Blood (2013) 122 (21): 1721.

https://doi.org/10.1182/blood.V122.21.1721.1721

Published: 2013

Journal Articles

Psychometric Evaluation Of Health-Related Quality Of Life Assessments From The Along and Blong Hemophilia Clinical Trials

Kathleen W Wyrwich, PhD, Priscilla Auguste, MHS, Robyn von Maltzahn, MS, Ren Yu, MA, Sangeeta Krishnan, PharmD, MS, Nigel Dodd, MSc, Sylvia von Mackensen, PhD

Blood (2013) 122 (21): 423.

https://doi.org/10.1182/blood.V122.21.423.423

Published: 2013

Journal Articles

Measuring the symptom burden associated with the treatment of chronic myeloid leukemia

Loretta A. Williams, Araceli G. Garcia Gonzalez, Patricia Ault, Tito R. Mendoza, Mary L. Sailors, Janet L. Williams, Furong Huang, Aziz Nazha, Hagop M. Kantarjian, Charles S. Cleeland, Jorge E. Cortes

Blood (2013) 122 (5): 641–647.

https://doi.org/10.1182/blood-2013-01-477687

Published: 2013

Journal Articles

PedsQL™ Sickle Cell Disease Module: Feasibility, Reliability and Validity

Julie A. Panepinto, MD, MSPH, Cristiane B. Bendo, MSc, BDS, Sylvia Torres, MPH, Timothy McCavit, MD, Christina J. Bemrich-Stolz, MD, Bogdan R. Dinu, MD, Sandra Sherman-Bien, PhD, Lauren M. Beverung, PhD, James W. Varni, PhD

Blood (2012) 120 (21): 476.

https://doi.org/10.1182/blood.V120.21.476.476

Published: 2012

Journal Articles

The Myleloproliferative Neoplasm Symptom Assessment Form (MPN-SAF) Derived Total Symptom Score (TSS): An International Trial of 1433 Patients with Myeloproliferative Neoplasms (MPNs),

Robyn Scherber, MPH, Medical-Student, Amylou Dueck, PhD, Jean-Jacques Kiladjian, MD, PhD, Stephanie Slot, BSc, Sonja Zweegman, MD, PhD, Peter te Boekhorst, MD, PhD, Suzan Commandeur, MSc, Harry C. Schouten, MD, PhD, Federico Sackmann, Ana Kerguelen Fuentes, MD, Dolores Hernandez-Maraver, PhD, Heike L. Pahl, PhD, Martin Griesshammer, MD, Frank Stegelmann, MD, Konstanze Doehner, Prof., Thomas Lehmann, MD, Karin Bonatz, MD, Andreas Reiter, MD, Françoise Boyer, MD, Gabriel Etienne, MD, PhD, Jean-Christophe Ianotto, MD, Dana Ranta, MD, Lydia Roy, Jean-Yves Cahn, MD, Claire N. Harrison, DM, FRCP, FRCPath, Deepti Radia, MD, Pablo J. Muxi, MD, Norman I Maldonado, MD, Carlos Besses, MD, PhD, Francisco Cervantes, MD, Peter Johansson, MD, PhD, Tiziano Barbui, MD, Giovanni Barosi, MD, Alessandro M. Vannucchi, MD, Francesco Passamonti, MD, Bjorn Andreasson, MD, Maria L Ferarri, MD, Alessandro Rambaldi, Jan Samuelsson, MD, PhD, Gunnar Birgegard, MD, PhD, Ayalew Tefferi, MD, Ruben A. Mesa, MD

Blood (2011) 118 (21): 3839.

https://doi.org/10.1182/blood.V118.21.3839.3839

Published: 2011

Journal Articles

Reliability and Validity of the FACT-AN In Patients with Low or Int-1-Risk Myelodysplastic Syndromes with Deletion 5q.

Nancy A Brandenburg, PhD, Ren Yu, MA, Dennis A Revicki, PhD

Blood (2010) 116 (21): 3827.

https://doi.org/10.1182/blood.V116.21.3827.3827

Published: 2010

Journal Articles

New Instrument for Comprehensive Symptom Profile Assessment In Patients with Malignant Lymphomas

Andrei A Novik, Tatyana I Ionova, Svetlana A Kalyadina, Denis A Fedorenko, Nikita E Mochkin, Kira A Kurbatova, Tatyana P Nikitina, Gary I Gorodokin

Blood (2010) 116 (21): 2561.

https://doi.org/10.1182/blood.V116.21.2561.2561

Published: 2010

Journal Articles

Validation of the Korean Version of the Minneapolis-Manchester Quality of Life Instrument for Childhood Cancer Survivors

Hyeon Jin Park, Yoon Yi Kim, Young Ae Kim, Young Ho Yun, Byung Ho Nam, Ha Kyoung Kim, Smita Bhatia, Young Joo Kwon, Soo Hyun Lee, Byung-Kiu Park, Thad. T Ghim, Hyoung Jin Kang, Hee Young Shin, Hyo Seop Ahn

Blood (2008) 112 (11): 1319.

https://doi.org/10.1182/blood.V112.11.1319.1319

Published: 2008

Journal Articles

Development and Initial Validation of the Immune Thrombocytopenic Purpura Patient Assessment Questionnaire (ITP-PAQ), a Disease-Specific Health-Related Quality of Life (HRQoL) Questionnaire.

Susan D. Mathias, MPH, James B. Bussel, MD, James N. George, MD, Robert McMillan, MD, Gary J. Okano, RPh, PhD, Janet L. Nichol, MS

Blood (2006) 108 (11): 1078.

https://doi.org/10.1182/blood.V108.11.1078.1078

Published: 2006

Journal Articles

Symptom Assessment in Patients with Chronic Lymphocytic Leukemia: Validation and Application of the M.D. Anderson Symptom Inventory.

Xin Shelley Wang, MD, MPH, Alessandra Ferrajoli, MD, Jackie B. Broadway, RN, Gary M. Mobley, MA, Tito R. Mendoza, PhD, Michael J. Keating, M.B.BS, Charles Cleeland, PhD

Blood (2005) 106 (11): 5000.

https://doi.org/10.1182/blood.V106.11.5000.5000

Published: 2005

NARROW

Validation of Instrument to Assess Hemophilia-Related Distress

Final Development of the First Generic Quality of Life and Symptoms Measure Specific for Hematological Malignancies: The HM-PRO

Examining Convergent Construct Validity and Inter-Rater Reliability Between ESMO-MCBS and ASCO-VF When Evaluating Hematologic Malignancies

Defining Vaso-Occlusive Crises in Sickle Cell Disease from the Perspective of the Patient: Development of a New Toolbox to Measure Treatment Outcomes

Validation of Outcome Instruments for Venous Thrombosis in Children

A Systematic Literature Review of Patient-Reported Outcome Instruments Used in Sickle Cell Disease

Validation of Pain report it Neuropathic Pain Scale in African American Adults with Sickle Cell Disease

Evaluating Patient Preference for Haemophilia a Treatment

Psychometric Performance Of The EORTC Quality-Of-Life Core Questionnaire (QLQ-C30) and QLQ-Multiple Myeloma (QLQ-MY20) In Relapsed/Refractory Multiple Myeloma (RRMM)

Psychometric Evaluation Of Health-Related Quality Of Life Assessments From The Along and Blong Hemophilia Clinical Trials

Measuring the symptom burden associated with the treatment of chronic myeloid leukemia

PedsQL™ Sickle Cell Disease Module: Feasibility, Reliability and Validity

The Myleloproliferative Neoplasm Symptom Assessment Form (MPN-SAF) Derived Total Symptom Score (TSS): An International Trial of 1433 Patients with Myeloproliferative Neoplasms (MPNs),

Reliability and Validity of the FACT-AN In Patients with Low or Int-1-Risk Myelodysplastic Syndromes with Deletion 5q.

New Instrument for Comprehensive Symptom Profile Assessment In Patients with Malignant Lymphomas

Validation of the Korean Version of the Minneapolis-Manchester Quality of Life Instrument for Childhood Cancer Survivors

Development and Initial Validation of the Immune Thrombocytopenic Purpura Patient Assessment Questionnaire (ITP-PAQ), a Disease-Specific Health-Related Quality of Life (HRQoL) Questionnaire.

Symptom Assessment in Patients with Chronic Lymphocytic Leukemia: Validation and Application of the M.D. Anderson Symptom Inventory.

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American Society of Hematology

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American Society of Hematology

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