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Kim Smith-Whitley
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Journal Articles

Development of an Age-Appropriate, Multi-Media Educational Digital Hub for Adolescents with Sickle Cell Trait

Corinna L. Schultz, Morgan Thomas, Melanie L Pitone, Judith Feinson, Sarah McGuinness, Alison Taggi Pinto, Kelsey Higgins, Kim Smith-Whitley, Melissa A. Alderfer
Journal: Blood
Blood (2024) 144 (Supplement 1): 3627.
https://doi.org/10.1182/blood-2024-211975
Published: 2024
Journal Articles

Community Health Worker and Mobile Health Programs to Help Young Adults with Sickle Cell Disease Transition to Using Adult Healthcare Services – the Comets Study; Results from Patient-Reported Outcomes at 6 Months

Sophia Jan, Caren Steinway, Tanisha Belton, Justine Shults, Laura Bennett, Heather Griffis, Banu Aygun, Abena Appiah-Kubi, Nataly Apollonsky, Donna Boruchov, Omar Niss, Lisa A. Schwartz, Lori E. Crosby, Lamia Barakat, Biree Andemariam, David Rubin, Kim Smith-Whitley
Journal: Blood
Blood (2024) 144 (Supplement 1): 1066.
https://doi.org/10.1182/blood-2024-205273
Published: 2024
Journal Articles

Community Health Worker Engagement with Adolescents and Young Adults with Sickle Cell Disease: Findings from the Comets Study

Jayanne Forrest, Caren Steinway, Eelia Shaw, Sophia Jan, Banu Aygun, Abena Appiah-Kubi, Nataly Apollonsky, Donna Boruchov, Omar Niss, Biree Andemariam, Kim Smith-Whitley, Symme Trachtenberg, Tanisha Belton
Journal: Blood
Blood (2024) 144 (Supplement 1): 617.
https://doi.org/10.1182/blood-2024-206036
Published: 2024
Journal Articles

Sctalk: A Pilot Trial Using Implementation Science to Improve Documentation and Disclosure of Sickle Cell Trait during Infancy

Corinna L. Schultz, Kelsey Higgins, Alison Taggi Pinto, Morgan Thomas, Melanie L Pitone, Judith Feinson, Amanda M. Lewis, Jobayer Hossain, Kim Smith-Whitley, Lewis L Hsu, Melissa A. Alderfer
Journal: Blood
Blood (2024) 144 (Supplement 1): 5008.
https://doi.org/10.1182/blood-2024-210963
Published: 2024
Journal Articles

Habit Efficacy Trial: A Multi-Site Randomized Controlled Trial of Community Health Worker Support to Increase Hydroxyurea Adherence of Youth with Sickle Cell Disease

Nancy S. Green, Deepa Manwani, Banu Aygun, Abena Appiah-Kubi, Kim Smith-Whitley, Haomiao Jia, Arlene Smaldone
Journal: Blood
Blood (2023) 142 (Supplement 1): 3901.
https://doi.org/10.1182/blood-2023-190031
Published: 2023
Journal Articles

SCD and COVID-19 Vaccines: What Do Pediatric Patients Want to Know?

Lisa M Shook, Amy Lang, Allison A. King, Kim Smith-Whitley, Alexis A. Thompson, Christina M Barriteau, Lisa Schwartz, Cami Mosely, Eniola Oke, Fatoumatou Jallow, Lori E. Crosby
Journal: Blood
Blood (2023) 142 (Supplement 1): 7199.
https://doi.org/10.1182/blood-2023-188984
Published: 2023
Journal Articles

Sickle Cell Disease Electronic Health Record Population Management Approach to Support Delivery of High-Quality Care: Leaving Paper Lists behind

Kim Smith-Whitley, Elizabeth Brooks, Alicia Brandemarte, Cynthia Norris
Journal: Blood
Blood (2023) 142 (Supplement 1): 787.
https://doi.org/10.1182/blood-2023-190553
Published: 2023
Journal Articles

Pediatricians’ Disclosure and Documentation of Sickle Cell Trait Found on Newborn Screening: Barriers and Possible Implementation Strategies

Corinna L. Schultz, Alison Taggi Pinto, Morgan Thomas, Melanie Pitone, Michael Cellucci, Robin E Miller, Kim Smith-Whitley, Melissa A. Alderfer
Journal: Blood
Blood (2022) 140 (Supplement 1): 10875–10876.
https://doi.org/10.1182/blood-2022-170229
Published: 2022
Journal Articles

Optimizing Shared Decision Making about Hydroxyurea in Young Children with Sickle Cell Anemia

Aimee K. Hildenbrand, Allison A. King, Constance A Mara, Yolanda Johnson, Lisa M Shook, Catharine Whitacre, Maria T Britto, Charles T. Quinn, William Brinkman, Rogelle Hackworth, Jean L. Raphael, Venee N. Tubman, Alexis A. Thompson, Kim Smith-Whitley, Sherif M. Badawy, Susan E. Creary, Neha Bhasin, Marsha Treadwell, Steven K Reader, Angeli Rampersad, Amy Sobota, Lori E. Crosby
Journal: Blood
Blood (2022) 140 (Supplement 1): 10857–10859.
https://doi.org/10.1182/blood-2022-167914
Published: 2022
Journal Articles

Barriers to Transition from Pediatric to Adult Care in Adolescents and Young Adults with Sickle Cell Disease: A Mixed-Method Study on the Impact of Systems of Inequity

Kemar V. Prussien, Haley L. Faust, Kim Smith-Whitley, Lamia P. Barakat, Lisa A. Schwartz
Journal: Blood
Blood (2022) 140 (Supplement 1): 2173–2174.
https://doi.org/10.1182/blood-2022-159007
Published: 2022
Journal Articles

Assessing Multi-Level Barriers to Medication Adherence in Youth with Sickle Cell Disease Using Pharmacy-Based Prescription Refill Data

Arlene Smaldone, Deepa Manwani, Banu Aygun, Abena Appiah-Kubi, Kim Smith-Whitley, Nancy S. Green
Journal: Blood
Blood (2022) 140 (Supplement 1): 2149–2150.
https://doi.org/10.1182/blood-2022-157527
Published: 2022
Journal Articles

Effects of the COVID-19 Pandemic on Caregivers of Young Children with Sickle Cell Disease Enrolled in the Engage-HU Trial

Anna M Hood, Aimee K Hildenbrand, Joanna Rebitski, Jasmine Stallworth, Yolanda Johnson, Stacey Gomes, Catharine Whitacre, Constance A Mara, Lisa M Shook, Charles T. Quinn, Jean L. Raphael, Amber M Yates, Sherif M. Badawy, Alexis A. Thompson, Kim Smith-Whitley, Helge Hartung, Allison A. King, Susan E Creary, Neha Bhasin, Steven K Reader, Emily R. Meier, Venee N. Tubman, Lori E. Crosby
Journal: Blood
Blood (2021) 138 (Supplement 1): 1891.
https://doi.org/10.1182/blood-2021-152722
Published: 2021
Journal Articles

GBT021601, a Next Generation HbS Polymerization Inhibitor: Results of Safety, Tolerability, Pharmacokinetics and Pharmacodynamics in Adults Living with Sickle Cell Disease and Healthy Volunteers

R. Clark Clark Brown, Andrew Redfern, Eleanor Lisbon, Carla Washington, Irene Agodoa, Kim Smith-Whitley
Journal: Blood
Blood (2021) 138 (Supplement 1): 3099.
https://doi.org/10.1182/blood-2021-152924
Published: 2021
Journal Articles

National Survey of Pediatric Sickle Cell Providers on Their Contraceptive Practices for Female Patients

Megan Askew, Arlene Smaldone, Melanie A. Gold, Kim Smith-Whitley, John J. Strouse, Zhezhen Jin, Nancy S. Green
Journal: Blood
Blood (2021) 138 (Supplement 1): 1898.
https://doi.org/10.1182/blood-2021-154083
Published: 2021
Journal Articles

Pharmacokinetics/Pharmacodynamics, Safety and Efficacy of Crizanlizumab in Patients with Sickle Cell Disease and a History of Vaso-Occlusive Crises: Results from the Phase II, Multicenter, Open-Label Solace-Adults Study

Darla Liles, MD, Kim Smith-Whitley, MD, R Clark Brown, MD PhD, Nirmish Shah, MD, Santosh M Nair, MD, Chiaki Tanaka, PhD, Shankaranand Bodla, Gessami Sanchez-Olle, PhD, Urs Albers, PhD, Julie Kanter, MD
Journal: Blood
Blood (2020) 136 (Supplement 1): 17–19.
https://doi.org/10.1182/blood-2020-137434
Published: 2020
Journal Articles

Mental Health Assessment of Youth with Sickle Cell Disease and Their Primary Caretakers: Baseline Depression and COVID-19 Pandemic-Associated Psychosocial Stress in a Multi-Site Study

Nancy S. Green, MD, Deepa Manwani, MD, Kim Smith-Whitley, MD, Banu Aygun, MD, Abena Appiah-Kubi, MD MPH, Arlene Smaldone, PhD CPNP
Journal: Blood
Blood (2020) 136 (Supplement 1): 41–42.
https://doi.org/10.1182/blood-2020-140866
Published: 2020
Journal Articles

Discordant Beliefs, Perceptions, and Experiences between Patients with Sickle Cell Disease and Their Care Teams: Insights from a Pilot Program to Support Shared Decision-Making

Kim Smith-Whitley, MD, Lewis L. Hsu, MD PhD, Anne Jacobson, MS, Jeffrey D Carter, PhD, Tamar Sapir, PhD
Journal: Blood
Blood (2020) 136 (Supplement 1): 15–17.
https://doi.org/10.1182/blood-2020-136742
Published: 2020
Journal Articles

Addressing Recruitment Challenges in the Engage-HU Trial in Young Children with Sickle Cell Disease

Anna M Hood, PhD, Heather Strong, PhD, Cara Nwankwo, BA, Yolanda Johnson, MLS, Constance A Mara, PhD, Lisa M Shook, DHPE, William Brinkman, MD MD, Francis J Real, MD MD, Melissa Klein, MD MD, Allison A. King, MDMPH,PhD, Cecelia Calhoun, MD, Kim Smith-Whitley, MD, Susan E Creary, MD, Maria T Britto, PhD, Kay Linn Saving, MD, Connie M. Piccone, MD, Jean L. Raphael, MD MPH, Emmanuel Volanakis, MD, Aimee K Hildenbrand, PhD, Steven K Reader, PhD, Sohail Rana, MD, Lynne D. Neumayr, MD, Amber M Yates, MD, Sherif M. Badawy, MD, Alexis A. Thompson, MD, Amy Sobota, MD MPH, Emily Riehm Meier, MD MSHS, Charles T. Quinn, MD, Lori E. Crosby, PhD
Journal: Blood
Blood (2020) 136 (Supplement 1): 26–27.
https://doi.org/10.1182/blood-2020-141471
Published: 2020
Journal Articles

Preclinical Evaluation of ALS20, a New and Improved Lentiviral Vector for Beta-Globinopathies

Laura Breda, PhD, Valentina Ghiaccio, PhD, Silvia Pires Lourenco, MSc, Danuta Jadwiga Jarocha, PhD, Yasuhiro Ikawa, MD PhD, Naoto Tanaka, PhD, Virginia Guzikowski, Carla Casu, PhD, Kim Smith-Whitley, MD, Janet L. Kwiatkowski, MD MSCE, Stefano Rivella, PhD
Journal: Blood
Blood (2019) 134 (Supplement_1): 2242.
https://doi.org/10.1182/blood-2019-124043
Published: 2019
Journal Articles

2'-O-Methoxyethyl Splice-Switching Oligos to Reverse Splicing from IVS2-745 β-Thalassemia Patient Cells: A Foundation for Potential Therapies

Valentina Ghiaccio, PhD, Alisa Dong, PhD, Irene Motta, MD, Shuling Guo, PhD, Raechel Peralta, MS, Susan M Freier, Andy Watt, Yasuhiro Ikawa, MD PhD, Maxwell Chappell, MS, Coralea Stephanou, PhD, Paola Delbini, PhD, Connie Chen, Soteroula Christou, MD, Marina Kleanthous, PhD, Kim Smith-Whitley, MD, Deepa Manwani, MD, Carla Casu, PhD, Maria Domenica Cappellini, MD, Osheiza Abdulmalik, DVM, Stefano Rivella, PhD, Laura Breda, PhD
Journal: Blood
Blood (2019) 134 (Supplement_1): 2244.
https://doi.org/10.1182/blood-2019-127017
Published: 2019