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Journal Articles

Clinical Monitoring Practices Among Adult Patients with Pyruvate Kinase Deficiency Who Have Never Been Transfused

Stefan W Eber, Andreas Glenthøj, Bertil Glader, Dagmar Pospisilova, Eduard J. van Beers, Rachael F. Grace, Joan-Lluis Vives Corrons, Hitoshi Kanno, Kevin H.M. Kuo, Paola Bianchi, Audra Boscoe, Bryan McGee, Yan Yan, Junlong Li, Janet H. Ford, Carl Lander
Journal: Blood
Blood (2024) 144 (Supplement 1): 3696.
https://doi.org/10.1182/blood-2024-200739
Published: 2024
Journal Articles

Association of Hemoglobin Levels with Healthcare Resource Utilization and Costs in Non-Transfusion-Dependent α- and β-Thalassemia: A Retrospective Observational Study Using Real-World Data

Arielle L Langer, Amey Rane, Louise Lombard, Keely S Gilroy, Junlong Li, Jing Zhao, Carolyn R Lew, Brian M Davis, Ryan Ross, Sujit Sheth
Journal: Blood
Blood (2023) 142 (Supplement 1): 5244.
https://doi.org/10.1182/blood-2023-189236
Published: 2023
Journal Articles

Mitapivat Treatment Reduces Levels of Interference in Work/School Activity for Adult Patients with Pyruvate Kinase Deficiency

Jennifer A Rothman, Parija Patel, Jing Zhao, Susan Morris, Junlong Li, Hanny Al-Samkari
Journal: Blood
Blood (2023) 142 (Supplement 1): 2365.
https://doi.org/10.1182/blood-2023-180697
Published: 2023
Journal Articles

Long-Term Improvements in Patient-Reported Outcomes in Patients with Pyruvate Kinase Deficiency Treated with Mitapivat

Kevin H.M. Kuo, Rachael F. Grace, Eduard J. van Beers, Wilma Barcellini, Andreas Glenthøj, Susanne Holzhauer, Parija Patel, Vanessa Beynon, Junlong Li, Erin Zagadailov, Hanny Al-Samkari
Journal: Blood
Blood (2022) 140 (Supplement 1): 1223–1225.
https://doi.org/10.1182/blood-2022-168954
Published: 2022
Journal Articles

Clinical Burden of Alpha- and Beta-Thalassemia Compared to Matched Controls in the Real-World Setting

Arielle L. Langer, Louise Lombard, Keely Gilroy, Junlong Li, Jing Zhao, Carolyn R. Lew, Erin Bullock, Brian M Davis, Sujit Sheth
Journal: Blood
Blood (2022) 140 (Supplement 1): 5362–5364.
https://doi.org/10.1182/blood-2022-167265
Published: 2022
Journal Articles

Validation of the Pyruvate Kinase Deficiency Diary (PKDD): A Patient-Reported Outcome Measure for Pyruvate Kinase (PK) Deficiency

Shayna Egan, Erin Zagadailov, Adrian Jewett, Junlong Li, Feng Tai, Audra Boscoe, David A. Andrae
Journal: Blood
Blood (2021) 138 (Supplement 1): 4144.
https://doi.org/10.1182/blood-2021-148278
Published: 2021
Journal Articles

Validation of the Pyruvate Kinase Deficiency Impact Assessment (PKDIA): A Patient-Reported Outcome Measure for Pyruvate Kinase (PK) Deficiency

Shayna Egan, Erin Zagadailov, Adrian Jewett, Junlong Li, Feng Tai, Audra Boscoe, David A. Andrae
Journal: Blood
Blood (2021) 138 (Supplement 1): 4145.
https://doi.org/10.1182/blood-2021-148364
Published: 2021