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Journal Articles

Characteristics of Males with Hemophilia in the United States Hemophilia Treatment Center Network (USHTCN) with New-Onset Elevated Inhibitor Titers, December 15, 2013 - December 31, 2016

Marilyn J Manco-Johnson, MD, J. Michael Soucie, PhD, Anjali Sharathkumar, MBBS, MDMS, Fiona Bethea, MPH, Christine L Kempton, Amanda B. Payne, MPH, Michael Wang, MD, Connie H Miller, PhD

Blood (2017) 130 (Supplement 1): 3408.

https://doi.org/10.1182/blood.V130.Suppl_1.3408.3408

Published: 2017

Journal Articles

Ethical Decision Making Framework in Previously Untreated Severe Hemophilia A Patients

Ashley Foster Lanzel, MD, J. Michael Soucie, PhD, Shannon L. Meeks, MD, Robert F. Sidonio, Leonard Ortmann, PhD, Drue H Barrett, PhD

Blood (2017) 130 (Supplement 1): 5583.

https://doi.org/10.1182/blood.V130.Suppl_1.5583.5583

Published: 2017

Journal Articles

Centralized Laboratory Testing for Inhibitors in the U.S. Hemophilia Treatment Centers Network: Testing Protocol and Results on 10,178 Specimens

Connie H Miller, PhD, Dorothy Ellingsen, Jennifer Driggers, Brian Boylan, Amanda B. Payne, MPH, Fiona Bethea, MPH, Vanessa R Byams, MPH, J. Michael Soucie, PhD, Christopher J. Bean, PhD

Blood (2017) 130 (Supplement 1): 3692.

https://doi.org/10.1182/blood.V130.Suppl_1.3692.3692

Published: 2017

Journal Articles

Prophylaxis usage, bleeding rates, and joint outcomes of hemophilia, 1999 to 2010: a surveillance project

Marilyn J. Manco-Johnson, J. Michael Soucie, Joan Cox Gill

Blood (2017) 129 (17): 2368–2374.

https://doi.org/10.1182/blood-2016-02-683169

Published: 2017

Journal Articles

Men with severe hemophilia in the United States: birth cohort analysis of a large national database

Marshall A. Mazepa, Paul E. Monahan, Judith R. Baker, Brenda K. Riske, J. Michael Soucie

Blood (2016) 127 (24): 3073–3081.

https://doi.org/10.1182/blood-2015-10-675140

Published: 2016

Includes: Supplemental data

Journal Articles

Investigation Of a Cluster Of Inhibitors Among Previously Treated Hemophilia Patients (PTPs) At A Single Hospital In The United States

Nafisa Ghaji, MB BS MPH, Nigel S Key, MBChB, Connie H. Miller, PhD, Brenda Nielsen, MSN, RN, Tyler W. Buckner, MD, Sheh-Li Chen, Pharm D, W Craig Hooper, PhD, J. Michael Soucie, Ph.D.

Blood (2013) 122 (21): 1114.

https://doi.org/10.1182/blood.V122.21.1114.1114

Published: 2013

Journal Articles

Females With FVIII Deficiency Have Reduced Mean Overall Joint Range Of Motion

Robert F. Sidonio, Jr., MD, MSc, Fatima Mili, MD, PhD, Tengguo Li, PhD, Connie H. Miller, PhD, W Craig Hooper, PhD, Michael R. DeBaun, MD, MPH, J. Michael Soucie, Ph.D.

Blood (2013) 122 (21): 3601.

https://doi.org/10.1182/blood.V122.21.3601.3601

Published: 2013

Journal Articles

Continued Transmission of Parvovirus B19 in Plasma-Derived Factor Concentrates After the Implementation of B19 Nucleic Acid Plasma Minipool Screening,

J. Michael Soucie, Ph.D., Christine De Staercke, PhD, Meera B. Chitlur, MD, Ralph A. Gruppo, MD, W Craig Hooper, PhD, Craig M. Kessler, MD, Roshni Kulkarni, MD, Marilyn J. Manco-Johnson, MD, Paul E. Monahan, MD, Meredith Oakley, MPH, Jerry Powell, MD, Meredith Pyle, MS, Michael Recht, MD, PhD, Brenda Riske, MS, MBA, MPA, Hernan Sabio, MD, Sean Trimble, MPH

Blood (2011) 118 (21): 3378.

https://doi.org/10.1182/blood.V118.21.3378.3378

Published: 2011

Journal Articles

Risk Factors for Inhibitor Development in Mild and Moderate Hemophilia A: A Case-Control Study.

Christine L Kempton, MD, MSc, J. Michael Soucie, Ph.D, Connie H. Miller, PhD, Craig Hooper, PhD, Miguel A. Escobar, MD, Mark T. Reding, MD, Alice J. Cohen, MD, Nigel S. Key, MBChB, Arthur R. Thompson, M.D., Ph.D., Marilyn J. Manco-Johnson, Thomas C. Abshire, MD

Blood (2009) 114 (22): 3184.

https://doi.org/10.1182/blood.V114.22.3184.3184

Published: 2009

Journal Articles

Increased Prevalence of Inhibitors in Mexican-Hispanic Patients with Severe Hemophilia A Enrolled in the Universal Data Collection Project.

Shannon Carpenter, MD, MS, J. Michael Soucie, Ph.D., Sophia Sterner, MD, Rodney J Presley, PhD

Blood (2009) 114 (22): 3488.

https://doi.org/10.1182/blood.V114.22.3488.3488

Published: 2009

Journal Articles

Cardiovascular Disease in Patients with Hemophilia: Single Centre Experience.

Anjali Sharathkumar, MD, Brandy Trawinski, LPN, BLS, J. Michael Soucie, PhD, Anne Greist, MD, Craig Haddix, Amy D. Shapiro, MD

Blood (2008) 112 (11): 2272.

https://doi.org/10.1182/blood.V112.11.2272.2272

Published: 2008

Journal Articles

Intracranial Hemorrhage in Patients with Hemophilia in the Prophylaxis Era.

Char Witmer, MD, Rodney Pressley, PhD, Roshni Kulkarni, J. Michael Soucie, PhD, Catherine Scott Manno, MD

Blood (2008) 112 (11): 3388.

https://doi.org/10.1182/blood.V112.11.3388.3388

Published: 2008

Journal Articles

Primary Prophylaxis Prevents the Onset of Arthropathy: Longitudinal Results of 603 Boys with Severe Factor VIII Deficiency Analyzed through the Centers for Disease Control Universal Data Collection (CDC UDC) Study.

Marilyn J. Manco-Johnson, MD, Chengbin Wang, PhD, Barbara A. Konkle, MD, Robina Ingram-Rich, MS, MPH, Steven Humes, MM, MPH, J. Michael Soucie, PhD

Blood (2008) 112 (11): 3392.

https://doi.org/10.1182/blood.V112.11.3392.3392

Published: 2008

Journal Articles

Similarity in Joint Function Limitation in Type 3 VWD and Moderate Hemophilia A

Suman Sood, MD, Adam Cuker, MD, Chengbin Wang, Ph.D., Ara Metjian, MD, Elaine Y Chiang, J. Michael Soucie, Ph.D., Barbara A. Konkle, MD, Htcn Investigators

Blood (2008) 112 (11): 426.

https://doi.org/10.1182/blood.V112.11.426.426

Published: 2008

Journal Articles

Factor VIII and Factor IX Mutation Analysis in 600 U.S. Hemophilia Patients: Correlation of Mutation Type with History of Inhibitor

Connie H. Miller, PhD, Craig Hooper, PhD, Thomas C. Abshire, MD, Paula L. Bockenstedt, MD, Doreen B. Brettler, MD, Jorge Di Paola, MD, Gita Massey, MD, Anne T. Neff, MD, Amy D. Shapiro, MD, Michael Tarantino, MD, Brian M. Wicklund, MD, MPH, Marilyn J. Manco-Johnson, MD, Amy L. Dunn, MD, Christine Knoll, MD, Melissa Creary, MPH, Jane Benson, Dorothy Ellingsen, Jennifer Driggers, J. Michael Soucie, PhD

Blood (2008) 112 (11): 1017.

https://doi.org/10.1182/blood.V112.11.1017.1017

Published: 2008

Journal Articles

Bleeding Symptoms and Laboratory Correlation in 150 Patients with Severe von Willebrand Disease.

Ara D. Metjian, MD, Suman L. Sood, MD, Adam Cuker, MD, Susan M. Peterson, ARNP, Chengbin Wang, Ph.D, J. Michael Soucie, Ph.D, Barbara A. Konkle, MD, UDC Investigators

Blood (2007) 110 (11): 2134.

https://doi.org/10.1182/blood.V110.11.2134.2134

Published: 2007

Journal Articles

Mortality Rate and Risk Factors among Males with Hemophilia Receiving Care in U.S. Hemophilia Treatment Centers (HTCs).

Nina M. Larsen, MSPH, Meredith A. Oakley, DVM, MPH, J. Michael Soucie, PhD, for the Universal Data Collection Project (UDC) Investigators

Blood (2007) 110 (11): 1143.

https://doi.org/10.1182/blood.V110.11.1143.1143

Published: 2007

Journal Articles

Experience with a Modified Nijmegen-Bethesda Method for Measurement of Inhibitors in Hemophilia Patients: The CDC Inhibitor Surveillance Pilot Project.

Connie H. Miller, PhD, S. Jean Platt, MT-ASCP, Thomas Abshire, M.D., Doreen Brettler, M.D., Paula Brockenstedt, M.D., Jorge DiPaola, M.D., Gita Massey, M.D., Anne Neff, M.D., Amy Shapiro, M.D., Michael Tarantino, M.D., Brian Wicklund, M.D., Melissa Creary, MA, J. Michael Soucie, Ph.D.

Blood (2007) 110 (11): 1156.

https://doi.org/10.1182/blood.V110.11.1156.1156

Published: 2007

Journal Articles

Using Geographical Information Systems (GIS) To Examine Associations between Characteristics of Males with Hemophilia and Geographic Distance to Hemophilia Treatment Centers (HTCs).

Ann C. McClellan, PhD, J. Michael Soucie, PhD, Roshni Kulkarni, MD

Blood (2006) 108 (11): 3301.

https://doi.org/10.1182/blood.V108.11.3301.3301

Published: 2006

Journal Articles

Joint range-of-motion limitations among young males with hemophilia: prevalence and risk factors

J. Michael Soucie, Christy Cianfrini, Robert L. Janco, Roshni Kulkarni, Julie Hambleton, Bruce Evatt, Angela Forsyth, Sue Geraghty, Keith Hoots, Tom Abshire, Randall Curtis, Ann Forsberg, Heather Huszti, Margaret Wagner, Gilbert C. White, II

Blood (2004) 103 (7): 2467–2473.

https://doi.org/10.1182/blood-2003-05-1457

Published: 2004

NARROW

Characteristics of Males with Hemophilia in the United States Hemophilia Treatment Center Network (USHTCN) with New-Onset Elevated Inhibitor Titers, December 15, 2013 - December 31, 2016

Ethical Decision Making Framework in Previously Untreated Severe Hemophilia A Patients

Centralized Laboratory Testing for Inhibitors in the U.S. Hemophilia Treatment Centers Network: Testing Protocol and Results on 10,178 Specimens

Prophylaxis usage, bleeding rates, and joint outcomes of hemophilia, 1999 to 2010: a surveillance project

Men with severe hemophilia in the United States: birth cohort analysis of a large national database

Investigation Of a Cluster Of Inhibitors Among Previously Treated Hemophilia Patients (PTPs) At A Single Hospital In The United States

Females With FVIII Deficiency Have Reduced Mean Overall Joint Range Of Motion

Continued Transmission of Parvovirus B19 in Plasma-Derived Factor Concentrates After the Implementation of B19 Nucleic Acid Plasma Minipool Screening,

Risk Factors for Inhibitor Development in Mild and Moderate Hemophilia A: A Case-Control Study.

Increased Prevalence of Inhibitors in Mexican-Hispanic Patients with Severe Hemophilia A Enrolled in the Universal Data Collection Project.

Cardiovascular Disease in Patients with Hemophilia: Single Centre Experience.

Intracranial Hemorrhage in Patients with Hemophilia in the Prophylaxis Era.

Primary Prophylaxis Prevents the Onset of Arthropathy: Longitudinal Results of 603 Boys with Severe Factor VIII Deficiency Analyzed through the Centers for Disease Control Universal Data Collection (CDC UDC) Study.

Similarity in Joint Function Limitation in Type 3 VWD and Moderate Hemophilia A

Factor VIII and Factor IX Mutation Analysis in 600 U.S. Hemophilia Patients: Correlation of Mutation Type with History of Inhibitor

Bleeding Symptoms and Laboratory Correlation in 150 Patients with Severe von Willebrand Disease.

Mortality Rate and Risk Factors among Males with Hemophilia Receiving Care in U.S. Hemophilia Treatment Centers (HTCs).

Experience with a Modified Nijmegen-Bethesda Method for Measurement of Inhibitors in Hemophilia Patients: The CDC Inhibitor Surveillance Pilot Project.

Using Geographical Information Systems (GIS) To Examine Associations between Characteristics of Males with Hemophilia and Geographic Distance to Hemophilia Treatment Centers (HTCs).

Joint range-of-motion limitations among young males with hemophilia: prevalence and risk factors

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American Society of Hematology

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American Society of Hematology

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