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Journal Articles

Walking the Walk: Inclusion of Lived Experience Experts in the Design of the National Hemophilia Foundation's National Research Blueprint for Those Living with Inherited Bleeding Disorders

Maria E. E Santaella, Samantha Carlson, LMSW, Donna DiMichele, Keri Norris, Sammie Valadez, Leonard A. Valentino, Esmeralda Vazquez, Michelle Witkop, Michael Recht

Blood (2023) 142 (Supplement 1): 7216.

https://doi.org/10.1182/blood-2023-186109

Published: 2023

Journal Articles

National Hemophilia Foundation Champions a National Research Blueprint Defining a Community-Coordinated Research Ecosystem to Accelerate Progress in Inherited Bleeding Disorders

Michelle Witkop, Maria E. Santaella, Michael Recht, Keri Norris, Brett Spitale, Esmeralda Vasquez, Donna DiMichele, Kevin Mills

Blood (2022) 140 (Supplement 1): 5021–5022.

https://doi.org/10.1182/blood-2022-170842

Published: 2022

Journal Articles

National Hemophilia Foundation Convenes Diverse Community Voices to Define an Actionable National Research Blueprint for Inherited Bleeding Disorders

Michelle L Witkop, Michael Recht, Donna DiMichele, Kevin Mills, Leonard A. Valentino, Maria E Santaella

Blood (2021) 138 (Supplement 1): 4952.

https://doi.org/10.1182/blood-2021-149518

Published: 2021

Journal Articles

National Hemophilia Foundation Enlists Diverse Patient Voices to Inform a National Research Blueprint for Inherited Bleeding Disorders

Maria E Santaella, Michelle L Witkop, Kevin Mills, Michael Recht, Donna DiMichele, Leonard A. Valentino

Blood (2021) 138 (Supplement 1): 1904.

https://doi.org/10.1182/blood-2021-147857

Published: 2021

Journal Articles

Thrombin Generation and Bleeding in Hemophilia Inhibitor Patients during Immune Tolerance Induction

Margaret V. Ragni, MD MPH, Donna DiMichele, MD, Charles R.M. Hay, MD FRCP, FRCPath, Lynn M. Malec, MD, Craig D. Seaman, MD, Jonathan Yabes, PhD, Jie Li, MS, Saulius Butenas, PhD, Kathleen Brumel-Ziedins, PhD

Blood (2014) 124 (21): 1514.

https://doi.org/10.1182/blood.V124.21.1514.1514

Published: 2014

Journal Articles

Healthy People 2020 Blood Disorders and Blood Safety: A Vision of Improved Health for Patients with Sickle Cell Disease, Thalassemias and Hemophilia

Ellen M. Werner, PhD, Lorraine Brown, RN, BSN, CPHP, Kathryn L. Hassell, MD, Donna DiMichele, MD

Blood (2011) 118 (21): 4771.

https://doi.org/10.1182/blood.V118.21.4771.4771

Published: 2011

Journal Articles

Neoangiogenesis contributes to the development of hemophilic synovitis

Suchitra S. Acharya, Rosandra N. Kaplan, Dan Macdonald, Oluwa T. Fabiyi, Donna DiMichele, David Lyden

Blood (2011) 117 (8): 2484–2493.

https://doi.org/10.1182/blood-2010-05-284653

Published: 2011

Journal Articles

Paroxysmal Nocturnal Hemoglobinuria (PNH) In Pediatric Patients: Review of a Single Center Series

Kevin J. Curran, MD, Nancy A. Kernan, MD, Susan E. Prockop, MD, Andromachi Scaradavou, MD, Trudy N. Small, MD, Hugo Castro-Malaspina, MD, David Araten, MD, Donna DiMichele, MD, Richard J. O'Reilly, MD, Farid Boulad, MD

Blood (2010) 116 (21): 2231.

https://doi.org/10.1182/blood.V116.21.2231.2231

Published: 2010

Journal Articles

Defining Severity for Rare Factor Deficiencies. Insights from the North American Rare Bleeding Disorder Registry(NARBDR).

Suchitra S Acharya, MD, Donna DiMichele, MD

Blood (2008) 112 (11): 2276.

https://doi.org/10.1182/blood.V112.11.2276.2276

Published: 2008

Journal Articles

Recombinant Activated Factor VII (rFVIIa) Dosing and Efficacy in the Treatment of Cranial Hemorrhage in Hemophilia Patients with Inhibitors: An Analysis of the Hemophilia and Thrombosis Research Society Registry (HTRS) (2004–2008).

Charles T Nakar, MD, David L. Cooper, MD, MBA, Donna DiMichele, MD

Blood (2008) 112 (11): 2278.

https://doi.org/10.1182/blood.V112.11.2278.2278

Published: 2008

Journal Articles

U.S. Inhibitor Pilot Project: Participant Characteristics and Infusion Log Adherence.

Melissa S. Creary, MPH, John M. Soucie, PhD, Connie H. Miller, PhD, W.C. Hooper, PhD, Thomas C. Abshire, MD, Doreen B. Brettler, MD, Paula L. Pockenstedt, MD, Jorge DiPaola, MD, Gita Massey, MD, Anne T. Neff, MD, Amy D. Shapiro, MD, Michael D. Tarantino, MD, Brian M. Wicklund, MD, Donna DiMichele, MD, Hemophilia Treatment Centers

Blood (2007) 110 (11): 1162.

https://doi.org/10.1182/blood.V110.11.1162.1162

Published: 2007

Journal Articles

Factor VII Deficiency Remains Post-Puberty Due to Point Mutation in the HNF4 Binding Site in the Coagulant Factor VII Gene.

XingWu Zheng, BS, Theresa M. Tidd, BS, Donna DiMichele, MD, Eleanor S. Pollak, MD

Blood (2005) 106 (11): 1947.

https://doi.org/10.1182/blood.V106.11.1947.1947

Published: 2005

Journal Articles

Initial Results of a Randomized, Prospective Trial of Prophylaxis To Prevent Joint Disease in Young Children with Factor VIII (FVIII) Deficiency.

Marilyn J. Manco-Johnson, MD, Thomas C. Abshire, MD, Deborah Brown, MD, George R. Buchanan, MD, Alan R. Cohen, MD, Donna DiMichele, MD, W. Keith Hoots, MD, Cindy A. Leissinger, MD, Kevin McRedmond, MD, Diane J. Nugent, MD, Amy D. Shapiro, MD, Gregory A. Thomas, MD, Leonard A. Valentino, MD, Brenda Riske, MBA, MPA

Blood (2005) 106 (11): 3.

https://doi.org/10.1182/blood.V106.11.3.3

Published: 2005

Journal Articles

The FEIBA ® NovoSeven ® Comparative Study (FENOC)—A Randomized Evaluation of By-Passing Agents in Hemophilia Complicated by Inhibitors.

Erik Berntorp, MD, PhD, Sharyne Donfield, PhD, Jennifer Waters, JD, Eva Mattson, RN, Donna DiMichele, MD, Alessandro Gringeri, MD, PhD, Jan Astermark, MD, PhD

Blood (2005) 106 (11): 324.

https://doi.org/10.1182/blood.V106.11.324.324

Published: 2005

Journal Articles

The Variable Success of Managing Bleeding Disorder Related Menorrhagia: A Multicenter Study within the Hemophilia Treatment Center Network.

Peter A. Kouides, MD, Alice J. Cohen, MD, Donna DiMichele, MD, Mary Jane Petruzzi, MD, Parvin Saidi, MD

Blood (2004) 104 (11): 3089.

https://doi.org/10.1182/blood.V104.11.3089.3089

Published: 2004

Journal Articles

End-stage liver disease in persons with hemophilia and transfusion-associated infections

Blood (2002) 100 (5): 1584–1589.

https://doi.org/10.1182/blood.V100.5.1584.h81702001584_1584_1589

Published: 2002

NARROW

Walking the Walk: Inclusion of Lived Experience Experts in the Design of the National Hemophilia Foundation's National Research Blueprint for Those Living with Inherited Bleeding Disorders

National Hemophilia Foundation Champions a National Research Blueprint Defining a Community-Coordinated Research Ecosystem to Accelerate Progress in Inherited Bleeding Disorders

National Hemophilia Foundation Convenes Diverse Community Voices to Define an Actionable National Research Blueprint for Inherited Bleeding Disorders

National Hemophilia Foundation Enlists Diverse Patient Voices to Inform a National Research Blueprint for Inherited Bleeding Disorders

Thrombin Generation and Bleeding in Hemophilia Inhibitor Patients during Immune Tolerance Induction

Healthy People 2020 Blood Disorders and Blood Safety: A Vision of Improved Health for Patients with Sickle Cell Disease, Thalassemias and Hemophilia

Neoangiogenesis contributes to the development of hemophilic synovitis

Paroxysmal Nocturnal Hemoglobinuria (PNH) In Pediatric Patients: Review of a Single Center Series

Defining Severity for Rare Factor Deficiencies. Insights from the North American Rare Bleeding Disorder Registry(NARBDR).

Recombinant Activated Factor VII (rFVIIa) Dosing and Efficacy in the Treatment of Cranial Hemorrhage in Hemophilia Patients with Inhibitors: An Analysis of the Hemophilia and Thrombosis Research Society Registry (HTRS) (2004–2008).

U.S. Inhibitor Pilot Project: Participant Characteristics and Infusion Log Adherence.

Factor VII Deficiency Remains Post-Puberty Due to Point Mutation in the HNF4 Binding Site in the Coagulant Factor VII Gene.

Initial Results of a Randomized, Prospective Trial of Prophylaxis To Prevent Joint Disease in Young Children with Factor VIII (FVIII) Deficiency.

The FEIBA ® NovoSeven ® Comparative Study (FENOC)—A Randomized Evaluation of By-Passing Agents in Hemophilia Complicated by Inhibitors.

The Variable Success of Managing Bleeding Disorder Related Menorrhagia: A Multicenter Study within the Hemophilia Treatment Center Network.

End-stage liver disease in persons with hemophilia and transfusion-associated infections

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American Society of Hematology

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American Society of Hematology

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