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Journal Articles

Pharmacokinetics of Plasminogen, Human-Tvmh in Subjects with Plasminogen Deficiency Type 1

Karen Thibaudeau, Joseph M Parker, Pierre Chelle, Andrea N. Edginton, Amy D. Shapiro

Blood (2024) 144 (Supplement 1): 5473.

https://doi.org/10.1182/blood-2024-207949

Published: 2024

Journal Articles

Athn 10 - Novel Variants in Persons with Rare Coagulation Disorders across Hemophilia Treatment Centers in the United States

Diane J. Nugent, Shirley Williams, Suchitra Acharya, Christina Ashburner, Vinod V. Balasa, Nidhi Bhatt, Martin Chandler, Tammuella Chrisentery-Singleton, Nicole Crook, Hilda Ding, Carol Fedor, Ravitharan Krishnadasan, Jonathan C. Roberts, Beverly Schaefer, Ayesha Zia, Amy D. Shapiro

Blood (2024) 144 (Supplement 1): 1216.

https://doi.org/10.1182/blood-2024-201837

Published: 2024

Journal Articles

Partners Physician Academy: Effectiveness of a Program to Address Gaps in Hemostasis Training for Early Career Hematologists

Laura Tyrrell, Sonia Nasr, Amy D. Shapiro

Blood (2024) 144 (Supplement 1): 614.

https://doi.org/10.1182/blood-2024-203420

Published: 2024

Journal Articles

Annualized Bleeding Rates in Patients with Hemophilia a or B and Inhibitors with and without Target Joints at Baseline: Results from the Concizumab Phase 3 Explorer7 Study

Amy D. Shapiro, Shashikant Apte, Ana Boban, Renée Brown Frandsen, Silvia Linari, Johnny Mahlangu, Camila Martins Mazini Tavares, Tadashi Matsushita, Salim Nekkal, Jameela Sathar, Anthony K C Chan

Blood (2024) 144 (Supplement 1): 715.

https://doi.org/10.1182/blood-2024-209759

Published: 2024

Journal Articles

Real-World Adherence and Persistence to Emicizumab Using a National US Claims Database

Amy D. Shapiro, Robert Schuldt, Zhiyu Xia, Carmen Ng, Lucy Lee, Juliana M.L. Biondo, Janet S Lee

Blood (2024) 144 (Supplement 1): 3699.

https://doi.org/10.1182/blood-2024-199645

Published: 2024

Journal Articles

Emicizumab Prophylaxis in People with Moderate or Mild Hemophilia A Aged ≥40 Years, with and without Comorbidities - Findings from the Phase III HAVEN 6 Study

Víctor Jiménez-Yuste, Eunice Tzeng, Elise Lim, Giuliana Ventriglia, Amy D. Shapiro, Johannes Oldenburg, Johnny Mahlangu

Blood (2023) 142 (Supplement 1): 5495.

https://doi.org/10.1182/blood-2023-173016

Published: 2023

Journal Articles

Characterizing a Cohort of Patients with Hemophilia B Treated with Fidanacogene Elaparvovec from the Phase 3 Benegene-2 Study Who Returned to Factor IX Prophylaxis

Laurent Frenzel, Kaan Kavakli, Robert Klamroth, Shyh-Shin Chiou, Amy D. Shapiro, Pengling Sun, Joanne Fuiman, John McKay, Annie F. Fang, Francesca Biondo, Frank Plonski, Jeremy Rupon

Blood (2023) 142 (Supplement 1): 2257.

https://doi.org/10.1182/blood-2023-181223

Published: 2023

Journal Articles

Factor VIII Use in the Treatment of Breakthrough Bleeds in People with Moderate or Mild Hemophilia A without Factor VIII Inhibitors Receiving Emicizumab Prophylaxis: The Phase III HAVEN 6 Experience

Víctor Jiménez-Yuste, Elise Lim, Ketna Mistry, Giuliana Ventriglia, Amy D. Shapiro

Blood (2023) 142 (Supplement 1): 3999.

https://doi.org/10.1182/blood-2023-173081

Published: 2023

Journal Articles

Treatment-Related Clinical and Humanistic Unmet Needs in Hemophilia A without Inhibitors

Allison P Wheeler, John Waller, Sanket Shah, Mohd Nawi bin Wahid, Jennifer Dusendang, Amy D. Shapiro

Blood (2023) 142 (Supplement 1): 508.

https://doi.org/10.1182/blood-2023-179128

Published: 2023

Journal Articles

Adherence to Clotting Factor Treatment and Association with Bleeding and Health-Related Quality of Life in Persons with Hemophilia

Duc Quang Tran Jr., Megan M. Ullman, Brenda Riske, Cathy Buranahirun-Burns, Amy D. Shapiro, Margaret V. Ragni, Barbara A. Konkle, Nicole Crook, Jonathan C. Roberts, Randall Curtis, Joanne Wu, Michael B. Nichol

Blood (2023) 142 (Supplement 1): 7334.

https://doi.org/10.1182/blood-2023-187387

Published: 2023

Journal Articles

Assessment of Emicizumab Adherence: Psychometrics and Applications of Novel Self-Report Measure Veritas-Nexgen

Amanda Okolo, William K. Kronenberger, Chris Roberson, Isaac A. Janson, Mackenzie Nolte, Lisa Littner, James Okungade, Amy D. Shapiro

Blood (2022) 140 (Supplement 1): 10767–10768.

https://doi.org/10.1182/blood-2022-169861

Published: 2022

Journal Articles

Performance of the Comprehensive Assessment Tool for Challenges in Hemophilia (CATCH) 2.0

Marquita Decker-Palmer, Susan Mathias, Hilary Colwell, Ross Crosby, Brittany Gentile, Janet Chupka, Robert F. Sidonio, Jr., Michael Recht, Amy D. Shapiro, James Zazzali

Blood (2022) 140 (Supplement 1): 11328–11329.

https://doi.org/10.1182/blood-2022-157932

Published: 2022

Journal Articles

Health-Related Quality of Life in Patients with Hemophilia A or B with Inhibitors on Concizumab Prophylaxis: Results from the Phase 3 explorer7 Study

Amy D. Shapiro, Aby Abraham, Silvia Linari, Jesper Skov Neergaard, Jan Odgaard-Jensen, Jay Jay Thaung Zaw, Huyen Tran

Blood (2022) 140 (Supplement 1): 2732–2734.

https://doi.org/10.1182/blood-2022-166306

Published: 2022

Journal Articles

Efanesoctocog Alfa Half-Life and Clearance Are Independent of von Willebrand Factor in Severe Hemophilia A: A Post Hoc Analysis from Phase 1/2a Studies

Janice M. Staber, Toshko Lissitchkov, Barbara A. Konkle, Amy D. Shapiro, Doris V. Quon, Roshni Kulkarni, Melinda Hamilton, Ekta Seth Chhabra, Suresh Katragadda, Arman Altincatal, Annemieke Willemze, Jennifer Dumont, Margaret V. Ragni

Blood (2021) 138 (Supplement 1): 1035.

https://doi.org/10.1182/blood-2021-148534

Published: 2021

Journal Articles

Perioperative Outcomes Associated with Inhibitor Status in Patients with Hemophilia - a Retrospective Cohort Study

Omotola O. Olasupo, Charles Nakar, Alfonso Iorio, Craig Haddix, Thushara Mathew, Lynn M Malec, Davide Matino, Lawrence Mbuagbaw, Jean-Eric Tarride, Amy D. Shapiro

Blood (2021) 138 (Supplement 1): 4990.

https://doi.org/10.1182/blood-2021-147550

Published: 2021

Journal Articles

Prophylaxis with rFIXFc Reduces the Frequency and Delays Time to First Spontaneous Bleed Event in Previously Untreated Patients with Hemophilia B: A Post Hoc Analysis of the PUPs B-LONG Trial

Beatrice Nolan, Michael Recht, Pablo Rendo, Aletta Falk, Meredith Foster, Sandra Casiano, Antoine Rauch, Amy D. Shapiro

Blood (2021) 138 (Supplement 1): 498.

https://doi.org/10.1182/blood-2021-148765

Published: 2021

Journal Articles

Eptacog Beta Efficacy in Children and Adolescents with Hemophilia A or B and Inhibitors: Subset Analysis Suggests Improved Caregiver Capacity to Assess Bleeding Episode Resolution with Subject Age

Blood (2021) 138 (Supplement 1): 3195.

https://doi.org/10.1182/blood-2021-147434

Published: 2021

Journal Articles

A Novel Methodology for Building Longitudinal, Patient-Centric Real World Datasets in Hemophilia A

Mark W Skinner, Gillian Hanson, Tao Xu, Richard Ofori-Asenso, Richard H. Ko, Emily Cibelli, Francis Nissen, Michelle Witkop, Fabian Sanabria, Amy D. Shapiro

Blood (2021) 138 (Supplement 1): 594.

https://doi.org/10.1182/blood-2021-146160

Published: 2021

Journal Articles

Characterizing Mild and Moderate Hemophilia A Patients in the Real World: A Patient-Centric Approach

Michelle Witkop, Tao Xu, Gillian Hanson, Richard Ofori-Asenso, Richard H. Ko, Emily Cibelli, Martynas Aizenas, Mark W Skinner, Fabian Sanabria, Amy D. Shapiro

Blood (2021) 138 (Supplement 1): 2107.

https://doi.org/10.1182/blood-2021-146543

Published: 2021

Journal Articles

Emicizumab Prophylaxis in Persons with Mild or Moderate Hemophilia A: Results from the Interim Analysis of the HAVEN 6 Study

Claude Négrier, Johnny Mahlangu, Michaela Lehle, Pratima Chowdary, Olivier Catalani, Víctor Jiménez-Yuste, Benjamin M. Beckermann, Christophe Schmitt, Cedric Hermans, Giuliana Ventriglia, Jerzy Windyga, Anna Kiialainen, Roseline d'Oiron, Paul Moorehead, Vanda Teodoro, Amy D. Shapiro, Johannes Oldenburg

Blood (2021) 138 (Supplement 1): 343.

https://doi.org/10.1182/blood-2021-146009

Published: 2021

NARROW

Pharmacokinetics of Plasminogen, Human-Tvmh in Subjects with Plasminogen Deficiency Type 1

Athn 10 - Novel Variants in Persons with Rare Coagulation Disorders across Hemophilia Treatment Centers in the United States

Partners Physician Academy: Effectiveness of a Program to Address Gaps in Hemostasis Training for Early Career Hematologists

Annualized Bleeding Rates in Patients with Hemophilia a or B and Inhibitors with and without Target Joints at Baseline: Results from the Concizumab Phase 3 Explorer7 Study

Real-World Adherence and Persistence to Emicizumab Using a National US Claims Database

Emicizumab Prophylaxis in People with Moderate or Mild Hemophilia A Aged ≥40 Years, with and without Comorbidities - Findings from the Phase III HAVEN 6 Study

Characterizing a Cohort of Patients with Hemophilia B Treated with Fidanacogene Elaparvovec from the Phase 3 Benegene-2 Study Who Returned to Factor IX Prophylaxis

Factor VIII Use in the Treatment of Breakthrough Bleeds in People with Moderate or Mild Hemophilia A without Factor VIII Inhibitors Receiving Emicizumab Prophylaxis: The Phase III HAVEN 6 Experience

Treatment-Related Clinical and Humanistic Unmet Needs in Hemophilia A without Inhibitors

Adherence to Clotting Factor Treatment and Association with Bleeding and Health-Related Quality of Life in Persons with Hemophilia

Assessment of Emicizumab Adherence: Psychometrics and Applications of Novel Self-Report Measure Veritas-Nexgen

Performance of the Comprehensive Assessment Tool for Challenges in Hemophilia (CATCH) 2.0

Health-Related Quality of Life in Patients with Hemophilia A or B with Inhibitors on Concizumab Prophylaxis: Results from the Phase 3 explorer7 Study

Efanesoctocog Alfa Half-Life and Clearance Are Independent of von Willebrand Factor in Severe Hemophilia A: A Post Hoc Analysis from Phase 1/2a Studies

Perioperative Outcomes Associated with Inhibitor Status in Patients with Hemophilia - a Retrospective Cohort Study

Prophylaxis with rFIXFc Reduces the Frequency and Delays Time to First Spontaneous Bleed Event in Previously Untreated Patients with Hemophilia B: A Post Hoc Analysis of the PUPs B-LONG Trial

Eptacog Beta Efficacy in Children and Adolescents with Hemophilia A or B and Inhibitors: Subset Analysis Suggests Improved Caregiver Capacity to Assess Bleeding Episode Resolution with Subject Age

A Novel Methodology for Building Longitudinal, Patient-Centric Real World Datasets in Hemophilia A

Characterizing Mild and Moderate Hemophilia A Patients in the Real World: A Patient-Centric Approach

Emicizumab Prophylaxis in Persons with Mild or Moderate Hemophilia A: Results from the Interim Analysis of the HAVEN 6 Study

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American Society of Hematology

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ASH Publications

American Society of Hematology

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