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Journal Articles

The Psychometric Properties of the ITP Life Quality Index Assessed in a Large Multinational "Real-World" Cohort of Immune Thrombocytopaenia Patients

Philip Griffiths, Laura Grant, Nicola Bonner, MSc, Denise D'Alessio, MBA, Quentin A. Hill, Drew Provan, MD, Waleed Ghanima, MD PhD, Nichola Cooper, MD MRCP, Ricardo Viana, PhD
Journal: Blood
Blood (2019) 134 (Supplement_1): 386.
https://doi.org/10.1182/blood-2019-125766
Published: 2019
Journal Articles

Psychometric Evaluation of the Functional Assessment of Chronic Illness Therapy-Fatigue Scale (FACIT-Fatigue) in Patients with Chronic Lymphocytic Leukemia (CLL)

Daniel Eek, PhD, Cristina Ivanescu, PhD, Leanne Kool-Houweling, MSc, David Cella, PhD
Journal: Blood
Blood (2019) 134 (Supplement_1): 4763.
https://doi.org/10.1182/blood-2019-123056
Published: 2019
Journal Articles

Validation of Outcome Instruments for Venous Thrombosis in Children

Julie Smith, BS, Dianne Thornhill, PhD, Neil A Goldenberg, MD PhD, Leonardo R. Brandao, MD MSc, Lillian Sung, MD PhD, Susan Kahn, MD, Marilyn J Manco-Johnson, MD
Journal: Blood
Blood (2017) 130 (Supplement 1): 1101.
https://doi.org/10.1182/blood.V130.Suppl_1.1101.1101
Published: 2017
Journal Articles

Psychometric Properties of the Patient Reported Outcomes Burdens and Experiences (PROBE) Questionnaire

Chatree Chai-Adisaksopha, MD, Mark Skinner, Randall Curtis, MBA, Neil Frick, Michael B. Nichol, PhD, Declan Noone, Brian O'Mahony, David Page, Jeffrey Stonebraker, Alfonso Iorio, MD PhD
Journal: Blood
Blood (2017) 130 (Supplement 1): 5645.
https://doi.org/10.1182/blood.V130.Suppl_1.5645.5645
Published: 2017
Journal Articles

A New Measure Assessing Recovery from a Sickle Cell Crisis

Nicholas J. Vendetti, MS, Katy Benjamin, PhD, Olga Moshkovich, MPH, Kelly Lipman, MPH, Krupa M. Sivamurthy, MD DNB, Andreas M. Pleil, PhD
Journal: Blood
Blood (2016) 128 (22): 2392.
https://doi.org/10.1182/blood.V128.22.2392.2392
Published: 2016
Journal Articles

Prognostic Significance of Quality of Life in Patients Undergoing Allogeneic Hematopoietic Cell Transplantation

Betty K. Hamilton, MD, Lisa Rybicki, MS, Donna M Abounader, Jane Dabney, LISW, Robert M Dean, MD, Hien K. Duong, MD, Brian T. Hill, MD PhD, Aaron Gerds, MDMS, Deepa Jagadeesh, MD MPH, Matt E. Kalaycio, MD, Christine Lawrence, LISW, Linda McLellan, LISW, Brad Pohlman, MD, Ronald M. Sobecks, MD, Brian J. Bolwell, MD, Navneet S. Majhail, MD MS
Journal: Blood
Blood (2014) 124 (21): 2637.
https://doi.org/10.1182/blood.V124.21.2637.2637
Published: 2014
Journal Articles

Development, Establishment Of the Psychometric Properties and Usability Testing Of a Novel Multi-Dimensional Web Based Diary For Children With Sickle Cell Disease

Nitya Bakshi, MBBS, Jennifer Stinson, RN, PhD, CPNP, Ines Lukombo, Diana Ross, MSN, RN, Nonita Mittal, MBBS, Saumya Vinod Joshi, MBBS, Lakshmanan Krishnamurti, MD
Journal: Blood
Blood (2013) 122 (21): 2961.
https://doi.org/10.1182/blood.V122.21.2961.2961
Published: 2013
Journal Articles

Psychometric Performance Of The EORTC Quality-Of-Life Core Questionnaire (QLQ-C30) and QLQ-Multiple Myeloma (QLQ-MY20) In Relapsed/Refractory Multiple Myeloma (RRMM)

Xavier Leleu, MD, PhD, Maria Teresa Petrucci, MD, Manfred Welslau, Isabelle Vande Broek, Philip T Murphy, MD, MRCPath, Andrew Bottomley, PhD, Pamela Bacon, Philip Lewis, PhD, Hélène Gilet, MSc, Benoit Arnould, PhD, Charalampia Kyriakou
Journal: Blood
Blood (2013) 122 (21): 1721.
https://doi.org/10.1182/blood.V122.21.1721.1721
Published: 2013
Journal Articles

Psychometric Evaluation Of Health-Related Quality Of Life Assessments From The Along and Blong Hemophilia Clinical Trials

Kathleen W Wyrwich, PhD, Priscilla Auguste, MHS, Robyn von Maltzahn, MS, Ren Yu, MA, Sangeeta Krishnan, PharmD, MS, Nigel Dodd, MSc, Sylvia von Mackensen, PhD
Journal: Blood
Blood (2013) 122 (21): 423.
https://doi.org/10.1182/blood.V122.21.423.423
Published: 2013
Journal Articles

Difficulties with Measuring the Patient's Perspective in Non Hodgkin's Lymphoma - a Review of Patient Reported Outcome Measures

Jyotsna Mehta, Florence Joulain, Peter C Trask, Bonnie Teschendorf
Journal: Blood
Blood (2012) 120 (21): 4703.
https://doi.org/10.1182/blood.V120.21.4703.4703
Published: 2012
Journal Articles

Bone Marrow Transplantation Arrests Cerebrovascular Disease Progression and Improves Psychometric Outcomes in Children with Sickle Cell Disease

Neha Bhatnagar, MBChB, MRCPCH, Ruth Erskine, Farah O'Boyle, Subarna Chakravorty, PhD, FRCPath, MRCPCH, Irene Roberts, MD, Josu de la Fuente, PhD, FRCP, FRCPath
Journal: Blood
Blood (2011) 118 (21): 11.
https://doi.org/10.1182/blood.V118.21.11.11
Published: 2011
Journal Articles

Including Patient Input In Patient-Reported Outcome Instrument Development: Examples From the MDASI-CML

Loretta A Williams, PhD, RN, Jorge E. Cortes, MD, Patricia S Ault, MS, ACNP, Araceli Garcia-Gonzalez, MD, Janet L Williams, MPH, Charles S Cleeland, PhD
Journal: Blood
Blood (2010) 116 (21): 2573.
https://doi.org/10.1182/blood.V116.21.2573.2573
Published: 2010
Journal Articles

A Psychometric Analysis of Parents of Children with Leukemia

Huyong Zheng, MD, PhD, Xinyi Wu, RN, Ruidong Zhang, MD, PhD, Liqin Huo, PhD, Huaqing Liu, MD, Xiumei Wang, RN, Yamei Hu, MD, Xiaoyan Lu, MD, Huifang Gao, MD
Journal: Blood
Blood (2008) 112 (11): 1320.
https://doi.org/10.1182/blood.V112.11.1320.1320
Published: 2008
Journal Articles

Comparing Psychosocial Profiles and Outcomes between Patients Undergoing Myeloablative and Non-Myeloablative Allogeneic Transplants.

Linda McLellan, Larry W. Foster, Lisa Rybicki, Jane Dabney, Michele Visnosky, Sungren Sungren, Alison Vellani, Nicole Berry, Kelly Cherni, Laura Bernhard, Jennifer Kosar, Mary Serafin, Karen Sands, Christina Ferraro, Brian J. Bolwell
Journal: Blood
Blood (2006) 108 (11): 77.
https://doi.org/10.1182/blood.V108.11.77.77
Published: 2006