Page 1 | Search Results | Blood | American Society of Hematology

1-20 of 30

Sort by

Sort Order Select

Journal Articles

Functional Assessment of Chronic Illness Therapy-Fatigue Scale (FACIT-Fatigue): Cognitive Debriefing in Patients with Chronic Lymphocytic Leukemia (CLL)

Helena Chung, MA BA, Daniel Eek, PhD, Calvin Krogh, MBA MPH, Matthew Blowfield, MSc, Oren Meyers, PhD, Toby A. Eyre

Blood (2019) 134 (Supplement_1): 4777.

https://doi.org/10.1182/blood-2019-122849

Published: 2019

Journal Articles

Development of Patient-Reported Outcome Measures (Symptoms and Impacts) in Adults with Pyruvate Kinase Deficiency

Sam Salek, PhDRPh FFPM MCMS MRPSGB FESCP, Audra N. Boscoe, PhD, Chris Evans, PhD, Shayna Egan, MPH, Ted Wells, Sarah Piantedosi, Jennifer Cohen, Robert J Klaassen, MD FRCPC, Rachael F. Grace, MD, Mike Storm, MSc

Blood (2019) 134 (Supplement_1): 3447.

https://doi.org/10.1182/blood-2019-128524

Published: 2019

Journal Articles

Final Development of the First Generic Quality of Life and Symptoms Measure Specific for Hematological Malignancies: The HM-PRO

Pushpendra Goswami, PhD MSc, BPharm, Tatiana Ionova, DSc, Esther Natalie Oliva, PhD, Roger Else, Jonathan Kell, MD, Adele K. Fielding, MBBS,PhDFRCP,FRCPath, Daniel Jennings, Marina Karakantza, MD, Saad Al-Ismail, MD, Graham P. Collins, MA, MBBS, MRCP, FRCPath, DPhil, Stewart McConnell, Catherine Langton, Sam Salek, PhDRPh FFPM MCMS MRPSGB FESCP

Blood (2019) 134 (Supplement_1): 3484.

https://doi.org/10.1182/blood-2019-129030

Published: 2019

Journal Articles

A Novel Patient Reported Outcome Instrument Assessing the Symptoms of Paroxysmal Nocturnal Hemoglobinuria

R Paola Daly, Jessica J Jalbert, PhD, Shannon Keith, Tara Symonds, Jamile M. Shammo, MD

Blood (2019) 134 (Supplement_1): 385.

https://doi.org/10.1182/blood-2019-125844

Published: 2019

Journal Articles

The Psychometric Properties of the ITP Life Quality Index Assessed in a Large Multinational "Real-World" Cohort of Immune Thrombocytopaenia Patients

Philip Griffiths, Laura Grant, Nicola Bonner, MSc, Denise D'Alessio, MBA, Quentin A. Hill, Drew Provan, MD, Waleed Ghanima, MD PhD, Nichola Cooper, MD MRCP, Ricardo Viana, PhD

Blood (2019) 134 (Supplement_1): 386.

https://doi.org/10.1182/blood-2019-125766

Published: 2019

Journal Articles

Content Validation of Sickle Cell Pain Diaries for Caregivers: Results from Interviews with Caregivers

Miranda Bailey, Patricia Stebbins, MPPM, Denise D'Alessio, MBA, April Mitchell, BSc, Cory Saucier, MPH, Michelle K White, PhD

Blood (2018) 132 (Supplement 1): 3572.

https://doi.org/10.1182/blood-2018-99-119410

Published: 2018

Journal Articles

Measurement of Sickle Cell Disease Symptoms from the Patient Perspective: Considerations for Clinical Trials

Funke Ojo, MPH, Leighann Litcher-Kelly, PhD, Iyar Mazar, Brittany Klooster, Sarah Ollis, Emily Chaston, Adam Roeder, Marsha J. Treadwell, PhD, David Reasner

Blood (2018) 132 (Supplement 1): 3571.

https://doi.org/10.1182/blood-2018-99-116682

Published: 2018

Journal Articles

Content Validation of the Sickle Cell Pain Diary-Self Report

Miranda Bailey, Patricia Stebbins, MPPM, Denise D'Alessio, MBA, Kimberly Raymond, PhD, Michelle K White, PhD

Blood (2018) 132 (Supplement 1): 2277.

https://doi.org/10.1182/blood-2018-99-119205

Published: 2018

Journal Articles

Caregiver Perceptions of Adolescent Self-Management Skills Predicts Higher Disease Knowledge Among Adolescents with SCD

Anjelica C Saulsberry, BS, Jason Hodges, PhD, Justin Williams, PhD, Megan Loew, MS, Sheila Anderson, RN, Audrey Cole, RN, Guolian Kang, PhD, Chen Li, MS, Robert Cronin, MD MS, Jerlym Porter, PhD MPH, Jane S Hankins, MD MS

Blood (2017) 130 (Supplement 1): 3350.

https://doi.org/10.1182/blood.V130.Suppl_1.3350.3350

Published: 2017

Journal Articles

Defining Vaso-Occlusive Crises in Sickle Cell Disease from the Perspective of the Patient: Development of a New Toolbox to Measure Treatment Outcomes

Andreas M Pleil, PhD, Alexandra Barsdorf, PhD, Michael U. Callaghan, Karin Coyne, PhD, Katy Benjamin, PhD, David Beidler, PhD, Robert J Charnigo, MS

Blood (2017) 130 (Supplement 1): 3415.

https://doi.org/10.1182/blood.V130.Suppl_1.3415.3415

Published: 2017

Journal Articles

Validation of Outcome Instruments for Venous Thrombosis in Children

Julie Smith, BS, Dianne Thornhill, PhD, Neil A Goldenberg, MD PhD, Leonardo R. Brandao, MD MSc, Lillian Sung, MD PhD, Susan Kahn, MD, Marilyn J Manco-Johnson, MD

Blood (2017) 130 (Supplement 1): 1101.

https://doi.org/10.1182/blood.V130.Suppl_1.1101.1101

Published: 2017

Journal Articles

Quantitative Testing of the Myelofibrosis Symptom Assessment Form Version 4.0, a Harmonized Patient-Reported Outcome Measure for Collecting Key Secondary Endpoint Data in Myelofibrosis Clinical Trials

Amylou C. Dueck, PhD, Chad Gwaltney, PhD, Wen-Hung Chen, PhD, Lixia Wang, PhD, Renee Pierson, MBA, Jeremiah Trudeau, PhD, Sonya Eremenco, MA, Stephen Joel Coons, PhD, Ruben A Mesa, MD

Blood (2017) 130 (Supplement 1): 2168.

https://doi.org/10.1182/blood.V130.Suppl_1.2168.2168

Published: 2017

Journal Articles

HM-PRO: A Novel Patient-Reported Outcome Measure in Hematological Malignancy for Use in Clinical Practice

Pushpendra Goswami, PhD MSc, BPharm, Sam Salek, PhDRPh FFPM MCMS MRPSGB FESCP, Tatyana Ionova, PhD, Esther Natalie Oliva, MD, Adele K Fielding, MBBS,PhDFRCP,FRCPath, Marina Karakantza, MD, Saad Al-Ismail, MD, Graham Collins, MD PhD, Stewart McConnell, Catherine Langton, Daniel Jennings, Roger Else, William J. Kell, MD

Blood (2017) 130 (Supplement 1): 2176.

https://doi.org/10.1182/blood.V130.Suppl_1.2176.2176

Published: 2017

Journal Articles

A Systematic Literature Review of Patient-Reported Outcome Instruments Used in Sickle Cell Disease

Grammati Sarri, PhD, Menaka Bhor, PhD, Seye Abogunrin, MB BS, MPH, MSc, Caroline Farmer, PhD, Savita Nandal, MBBS, MD, Dennis A. Revicki, PhD

Blood (2017) 130 (Supplement 1): 4648.

https://doi.org/10.1182/blood.V130.Suppl_1.4648.4648

Published: 2017

Journal Articles

The 10-Item Sickle Cell Disease Severity Measure (SCDSM-10): A Novel Measure of Daily SCD Symptom Severity Developed to Assess Benefit of GBT440, an Experimental HbS Polymerization Inhibitor

Laurie Burke, BPharm, MPH, Jeremy Charles Hobart, MD PhD FRCP, MBBS, BSc, Kathleen Fox, PhD, Josh Lehrer-Graiwer, MD MPhil, FACC, Kenneth Bridges, MD, Martine Kraus, PhD, Eleanor Ramos, MD

Blood (2016) 128 (22): 4760.

https://doi.org/10.1182/blood.V128.22.4760.4760

Published: 2016

Journal Articles

Development of a Novel Patient-Reported Outcome Measure in Haematological Malignancy for Use in Routine Clinical Practice: Item Generation

Pushpendra Goswami, B.Pharmacy, MSc, Sam Salek, PhDRPh FFPM MCMS MRPSGB FESCP, Adele K. Fielding, MB BS, PhD FRCP, FRCPath, Jonathan Kell, MD, Saad Al-Ismail, MD, Esther Oliva, MD, Tatyana Ionova, PhD, Roger Else, Marina Karakantza, MD, Daniel Jennings, Anita Waldmann

Blood (2016) 128 (22): 5985.

https://doi.org/10.1182/blood.V128.22.5985.5985

Published: 2016

Journal Articles

What Are the Most Important Symptoms and Concerns of Patients with Indolent Non-Hodgkin's Lymphoma? Content Validation of the National Comprehensive Cancer Network-Functional Assessment of Cancer Therapy Lymphoma Symptom Index-18 (NFLymSI-18)

Karen Kaiser, PhD, Sara Shaunfield, PhD, Kimberly Webster, MA, Karen Keating, MBA, Lara Boyken, Sara Duffey, Jessica Yarber, MD, David Cella, PhD

Blood (2016) 128 (22): 4792.

https://doi.org/10.1182/blood.V128.22.4792.4792

Published: 2016

Journal Articles

Symptoms of Multiple Myeloma: Results of Hybrid Concept Elicitation/Cognitive Debriefing Interviews

Peter C. Trask, PhD MPH, Bhumi Trivedi, MBA, Andrew Palsgrove, BA, William Benton Jones, PhDMBA, Colleen McHorney, PhD

Blood (2014) 124 (21): 5973.

https://doi.org/10.1182/blood.V124.21.5973.5973

Published: 2014

Journal Articles

Development, Establishment Of the Psychometric Properties and Usability Testing Of a Novel Multi-Dimensional Web Based Diary For Children With Sickle Cell Disease

Nitya Bakshi, MBBS, Jennifer Stinson, RN, PhD, CPNP, Ines Lukombo, Diana Ross, MSN, RN, Nonita Mittal, MBBS, Saumya Vinod Joshi, MBBS, Lakshmanan Krishnamurti, MD

Blood (2013) 122 (21): 2961.

https://doi.org/10.1182/blood.V122.21.2961.2961

Published: 2013

Journal Articles

Validation Of a Comprehensive Health Status Assessment Scale In Older Patients (≥ 65 years) With Hematological Malignances. Gah Study

Blood (2013) 122 (21): 2979.

https://doi.org/10.1182/blood.V122.21.2979.2979

Published: 2013

NARROW

Functional Assessment of Chronic Illness Therapy-Fatigue Scale (FACIT-Fatigue): Cognitive Debriefing in Patients with Chronic Lymphocytic Leukemia (CLL)

Development of Patient-Reported Outcome Measures (Symptoms and Impacts) in Adults with Pyruvate Kinase Deficiency

Final Development of the First Generic Quality of Life and Symptoms Measure Specific for Hematological Malignancies: The HM-PRO

A Novel Patient Reported Outcome Instrument Assessing the Symptoms of Paroxysmal Nocturnal Hemoglobinuria

The Psychometric Properties of the ITP Life Quality Index Assessed in a Large Multinational "Real-World" Cohort of Immune Thrombocytopaenia Patients

Content Validation of Sickle Cell Pain Diaries for Caregivers: Results from Interviews with Caregivers

Measurement of Sickle Cell Disease Symptoms from the Patient Perspective: Considerations for Clinical Trials

Content Validation of the Sickle Cell Pain Diary-Self Report

Caregiver Perceptions of Adolescent Self-Management Skills Predicts Higher Disease Knowledge Among Adolescents with SCD

Defining Vaso-Occlusive Crises in Sickle Cell Disease from the Perspective of the Patient: Development of a New Toolbox to Measure Treatment Outcomes

Validation of Outcome Instruments for Venous Thrombosis in Children

Quantitative Testing of the Myelofibrosis Symptom Assessment Form Version 4.0, a Harmonized Patient-Reported Outcome Measure for Collecting Key Secondary Endpoint Data in Myelofibrosis Clinical Trials

HM-PRO: A Novel Patient-Reported Outcome Measure in Hematological Malignancy for Use in Clinical Practice

A Systematic Literature Review of Patient-Reported Outcome Instruments Used in Sickle Cell Disease

The 10-Item Sickle Cell Disease Severity Measure (SCDSM-10): A Novel Measure of Daily SCD Symptom Severity Developed to Assess Benefit of GBT440, an Experimental HbS Polymerization Inhibitor

Development of a Novel Patient-Reported Outcome Measure in Haematological Malignancy for Use in Routine Clinical Practice: Item Generation

What Are the Most Important Symptoms and Concerns of Patients with Indolent Non-Hodgkin's Lymphoma? Content Validation of the National Comprehensive Cancer Network-Functional Assessment of Cancer Therapy Lymphoma Symptom Index-18 (NFLymSI-18)

Symptoms of Multiple Myeloma: Results of Hybrid Concept Elicitation/Cognitive Debriefing Interviews

Development, Establishment Of the Psychometric Properties and Usability Testing Of a Novel Multi-Dimensional Web Based Diary For Children With Sickle Cell Disease

Validation Of a Comprehensive Health Status Assessment Scale In Older Patients (≥ 65 years) With Hematological Malignances. Gah Study

Email alerts

ASH Publications

American Society of Hematology

Email alerts

ASH Publications

American Society of Hematology

This Feature Is Available To Subscribers Only