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Journal Articles

Patient-Centered Evaluation of Clinical Benefit in Acute Myeloid Leukemia: Importance of Early Engagement with Patients

Jill A. Bell, PhD MS, Farrah Anne Pompilus, MA, Alissa Rams, BA, Yanyan Zhu, PhD MPH, Anna Ciesluk, MPH, Rafael Bejar, MD PhD, Robert J. Fram, MD, Douglas V. Faller, MD PhD, Patrick Marquis, MD MBA
Journal: Blood
Blood (2019) 134 (Supplement_1): 5898.
https://doi.org/10.1182/blood-2019-128517
Published: 2019
Journal Articles

Development of a Concept-Driven Disease Impact Instrument from Patients with Hemophilia (Pediatric and Adult) and Caregivers

Jessica T. Markowitz, Esprit Ma, Paul Solari, Patrick Marquis, Amy D. Shapiro, MD, Barbara Konkle, MD, Peter Trask, Edmund Pezalla, Anna Christian, Michelle Rice, Wendy E. Owens, MA, Kimberly Haugstad, Yaping Xu, Richard H. Ko, Jennifer Whiteley, Robert F. Sidonio
Journal: Blood
Blood (2017) 130 (Supplement 1): 4732.
https://doi.org/10.1182/blood.V130.Suppl_1.4732.4732
Published: 2017
Journal Articles

Enhancing the Content of the EORTC QLQ-C30 to Maximize the Detection of Treatment Benefit in Higher-Risk Myelodysplastic Syndromes, Chronic Myelomonocytic Leukemia, and Low-Blast Acute Myeloid Leukemia Using the EORTC Item Bank

Jill A Bell, PhD, Aaron Galaznik, MD, Farrah A Pompilus, Sara Strzok, Rafael Bejar, MD PhD, Robert J. Fram, MD, Douglas V. Faller, MD PhD, Patrick Marquis
Journal: Blood
Blood (2017) 130 (Supplement 1): 3457.
https://doi.org/10.1182/blood.V130.Suppl_1.3457.3457
Published: 2017
Journal Articles

Patient Perspectives on Symptom Experience and Impact on Health-Related Quality of Life in Higher-Risk Myelodysplastic Syndromes, Chronic Myelomonocytic Leukemia and Low-Blast Acute Myeloid Leukemia

Jill A Bell, PhD, Aaron Galaznik, MD, Farrah A Pompilus, Sara Strzok, Robert J. Fram, MD, Douglas V. Faller, MD PhD, Patrick Marquis
Journal: Blood
Blood (2017) 130 (Supplement 1): 3458.
https://doi.org/10.1182/blood.V130.Suppl_1.3458.3458
Published: 2017