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Journal Articles

Clinical Outcomes and Health-Related Quality of Life (HRQoL) Among Randomized Clinical Trial (RCT)-Eligible and RCT-Ineligible Patients: Results from the Connect ® MM Registry

Lynne I. Wagner, PhD, Kathleen Toomey, MD, Sikander Ailawadhi, MD, Sundar Jagannath, Cristina Gasparetto, MD, Brian G.M. Durie, MD, Mohit Narang, MD, Robert M. Rifkin, MD, Howard R. Terebelo, DO, James L. Omel, MD, James W. Hardin, PhD, Hans C. Lee, MD, Shankar Srinivasan, PhD MBA, Liang Liu, MS, Mazaher Dhalla, PharmD, Donna Catamero, ANP-BC, OCN, CCRC, Rafat Abonour, MD

Blood (2019) 134 (Supplement_1): 1843.

https://doi.org/10.1182/blood-2019-126143

Published: 2019

Journal Articles

Validation of Instrument to Assess Hemophilia-Related Distress

Christine L. Kempton, MD MSc, Vaughn Barry, PhD MPH, Tyler W. Buckner, MD MSc, Janet Figueroa, MPH, Shanna Mattis, MPH, Mary Ellen Lynch, PhD, Mary E Stout, MD, Stephanie Whitten, Scott Gillespie, Courtney McCracken, PhD

Blood (2019) 134 (Supplement_1): 936.

https://doi.org/10.1182/blood-2019-122544

Published: 2019

Journal Articles

The Assessment of Health-Related Quality of Life in Relapsed or Refractory Myeloma Patients Receiving Lenalidomide and Low Dose Dexamethasone: A Result of Hola Study

Seok Jin Kim, MD PhD, Yong Park, MD, Yeung-Chul Mun, Jin Seok Kim, MD PhD, Kihyun Kim, MD PhD, Chang-Ki Min, MD PhD

Blood (2018) 132 (Supplement 1): 4853.

https://doi.org/10.1182/blood-2018-99-115447

Published: 2018

Journal Articles

An Evaluation of Promis Health Domains in Adults with Hemophilia: A Cross-Sectional Study

Vaughn Barry, PhD MPH, Tyler W. Buckner, MD MSc, Shanna Mattis, MPH, Mary E Stout, MD, Christine L. Kempton

Blood (2018) 132 (Supplement 1): 493.

https://doi.org/10.1182/blood-2018-99-117216

Published: 2018

Journal Articles

Continuous Mobile Wearable Bio-Monitoring of Newly Diagnosed Multiple Myeloma Patients Undergoing Initial Chemotherapy

Blood (2018) 132 (Supplement 1): 4751.

https://doi.org/10.1182/blood-2018-99-116545

Published: 2018

Journal Articles

Evaluating Time to Pain Progression in Multiple Myeloma

Jessica K Roydhouse, PhD MPH, Vishal Bhatnagar, MD, Mallorie H. Fiero, PhD, Bellinda L King-Kallimanis, PhD, Daniel L. Suzman, MD, Harpreet Singh, MD, Selena Daniels, PharmD, Paul Kluetz, MD

Blood (2018) 132 (Supplement 1): 2299.

https://doi.org/10.1182/blood-2018-99-110616

Published: 2018

Journal Articles

Correlations between Patient-Reported Outcomes and Self-Reported Characteristics in Adults with Hemophilia B and Caregivers of Children with Hemophilia B: Analysis of the Bridging Hemophilia B Experiences, Results and Opportunities into Solutions (B-HERO-S) Study

Tyler W. Buckner, MD MSc, Robert Sidonio, Jr., Michelle Witkop, DNP, FNP-BC, Christine Guelcher, PPCNP-BC, Susan Cutter, MSW, MPA, Wendy E. Owens, MA, Dawn Rotellini, Neeraj Iyer, PhD, David L Cooper, MD

Blood (2017) 130 (Supplement 1): 4730.

https://doi.org/10.1182/blood.V130.Suppl_1.4730.4730

Published: 2017

Journal Articles

Assessing the Validity of the Brief Pain Inventory for Use Among Adults with Sickle Cell Disease

Jordan Driscoll, BA, Mikhil Bamne, PhD, Charles Jonassaint, PhD

Blood (2017) 130 (Supplement 1): 5579.

https://doi.org/10.1182/blood.V130.Suppl_1.5579.5579

Published: 2017

Journal Articles

A Prospective Multi-Centered Registry Is Feasible in Sickle Cell Disease: Globin Regional Network for Data and Discovery (GRNDaD)

Matthew Sears, Caroline Ewing, Sophie Lanzkron, MD, Joshua J. Field, MD, Carolyn C Hoppe, MD, Jane A. Little, MD

Blood (2017) 130 (Supplement 1): 3375.

https://doi.org/10.1182/blood.V130.Suppl_1.3375.3375

Published: 2017

Journal Articles

Impact of Mild to Severe Hemophilia B on Quality of Life Including Pain and Functional Abilities in Affected Men/Women and Caregivers of Affected Boys/Girls: Analysis of Patient Reported Outcomes in the Bridging Hemophilia B Experiences Results and Opportunities into Solutions (B-HERO-S) Study

Tyler W. Buckner, MD MSc, Michelle Witkop, DNP, FNP-BC, Christine Guelcher, PPCNP, Robert F. Sidonio, Jr., MD, Christopher E. Walsh, MD PhD, Craig M. Kessler, MD, David Clark, PhD, Wendy E. Owens, MA, Neil Frick, MS, Neeraj N Iyer, PhD, David L Cooper, MD MBA

Blood (2016) 128 (22): 251.

https://doi.org/10.1182/blood.V128.22.251.251

Published: 2016

Journal Articles

Linear and Logistic Regression Models of Patient-Reported Outcomes and Patient Characteristics in US Adults with Hemophilia from the Pain, Functional Impairment, and Quality of Life (P-FiQ) Study

Katharine Batt, MD MSc, Michael Recht, MD PhD, Michael Wang, MD, Doris V. Quon, MD PhD, Lisa N Boggio, MD MS, Craig M. Kessler, MD, Tyler W. Buckner, MD MSc, Anne T. Neff, MD, Neeraj N Iyer, PhD, David L Cooper, MD MBA, Christine L Kempton, MD MSc

Blood (2016) 128 (22): 252.

https://doi.org/10.1182/blood.V128.22.252.252

Published: 2016

Journal Articles

Health-Related Quality of Life of Patients with Newly Diagnosed Multiple Myeloma Receiving Any or Lenalidomide Maintenance after Autologous Stem Cell Transplant in the Connect ® MM Disease Registry

Rafat Abonour, MD, Brian G.M. Durie, MD, Sundar Jagannath, MD, Jatin J. Shah, MD, Mohit Narang, MD, Howard R. Terebelo, DO, Cristina J. Gasparetto, MD, Kathleen Toomey, MD, James W. Hardin, PhD, Amani Kitali, MPH, PMP, Craig Gibson, PhD, Shankar Srinivasan, PhD, Arlene S. Swern, PhD, Robert M. Rifkin, MD

Blood (2016) 128 (22): 537.

https://doi.org/10.1182/blood.V128.22.537.537

Published: 2016

Journal Articles

Economic Burden of Relapsed or Refractory Multiple Myeloma: Results from an International Trial

Donald Robinson, Jr., Robert Z. Orlowski, MD PhD, Jianming He, PhD, Annette Lam, Ning Zhao, Andrew Z Cakana, MB, ChB, MD Sc, FRCPath

Blood (2015) 126 (23): 875.

https://doi.org/10.1182/blood.V126.23.875.875

Published: 2015

Journal Articles

Impact of Pain and Functional Impairment in US Adult People with Hemophilia (PWH): Patient-Reported Outcomes and Musculoskeletal Evaluation in the Pain, Functional Impairment, and Quality of Life (P-FiQ) Study

Christine L Kempton, MD MSc, Michael Recht, MD PhD, Anne Neff, MD, Michael Wang, MD, Tyler W. Buckner, MD MSc, Amit Soni, MD, Doris Quon, MD PhD, Michelle Witkop, DNP, FNP-BC, Lisa Boggio, MD, David L Cooper, MD MBA

Blood (2015) 126 (23): 39.

https://doi.org/10.1182/blood.V126.23.39.39

Published: 2015

Journal Articles

The Significant Contribution of Pain in Determining the Health Status of Patients with Multiple Myeloma (MM)

Tito R. Mendoza, PhD, Amylou C. Dueck, PhD, Qiuling Shi, PhD, Haijun Ma, PhD, Jeffrey Zhang, PhD, Yi Qian, PhD, Charles S. Cleeland, PhD

Blood (2015) 126 (23): 4495.

https://doi.org/10.1182/blood.V126.23.4495.4495

Published: 2015

Journal Articles

Fatigue, Quality of Life and Related Symptoms: Patient Reported Outcomes in Myelodysplastic Syndrome, Aplastic Anemia and Paroxysmal Nocturnal Hemoglobinuria

Carmelita P. Escalante, MD, Stephanie Chisolm, PhD, Juhee Song, PhD, Marsha Richardson, MSW, Salkeld Ellen, PhD, Tony Lam, PhD, Etsuko Aoki, MDPhD, Guillermo Garcia-Manero, MD

Blood (2015) 126 (23): 4456.

https://doi.org/10.1182/blood.V126.23.4456.4456

Published: 2015

Journal Articles

Distress in Patients with Bleeding Disorders

Vaughn Barry, PhD MPH, Duc Q. Tran, MD, Mary Ellen Lynch, PhD, Hilary G Cohen, LCSW, CTS, DVC (III), Cedric Truss, MSHI, Kesley Tyson, MS, CCRP, Ana G. Antun, MD, Anthony DeBalsi, NP, Shanna Mattis, MPH, Maria J.A. Ribeiro, MD, Sidney F. Stein, MD, Christine L. Kempton, MD

Blood (2014) 124 (21): 201.

https://doi.org/10.1182/blood.V124.21.201.201

Published: 2014

Journal Articles

Topical Sodium Nitrite Is Effective In Reducing Leg Ulcer-Associated Pain In Patients With Sickle Cell Disease

Caterina P. Minniti, MD, Caroline Cantilena, Dihua Xu, MD, Anna K. Conrey, RN, Marlene Peters-Lawrence, RN, RT, George Grimes, Pharm.D., James Nichols, RN, Karen Axelrod, Kathleen Rizzo, Gregory J. Kato, MD

Blood (2013) 122 (21): 2236.

https://doi.org/10.1182/blood.V122.21.2236.2236

Published: 2013

Journal Articles

Immune Reconstitution and Quality of Life Analyses After Autologous Transplant for Multiple Myeloma

Craig C. Hofmeister, MD, Mindy A Bowers, BS, Anissa Bingman, M.S., Gerard Lozanski, M.D., Robert A. Baiocchi, M.D., Ph.D., William Falk, B.S., Don M. Benson, Jr., MD, PhD, Yvonne A Efebera, M.D., Kristina Humphries, M.S., Megan Sell, RN, MS, Carli N Greenfield, RN, MSN, ACNP, Mark E Lustberg, MD, PhD, John L. Vaughn, BS, Christian Tyler Earl, Susan Geyer, PhD, Steven M. Devine, MD

Blood (2012) 120 (21): 4460.

https://doi.org/10.1182/blood.V120.21.4460.4460

Published: 2012

Journal Articles

Lack of Seasonal Variation in Bleeding and Patient-Assessed Pain Patterns in Patients with Hemophilia B Receiving On-Demand Therapy

Frank E. Shafer, MD, Lynne Smith, MBA, Nicholas Vendetti, MS, Pablo Rendo, MD, Marcus E. Carr, MD

Blood (2012) 120 (21): 1136.

https://doi.org/10.1182/blood.V120.21.1136.1136

Published: 2012

NARROW

Clinical Outcomes and Health-Related Quality of Life (HRQoL) Among Randomized Clinical Trial (RCT)-Eligible and RCT-Ineligible Patients: Results from the Connect ® MM Registry

Validation of Instrument to Assess Hemophilia-Related Distress

The Assessment of Health-Related Quality of Life in Relapsed or Refractory Myeloma Patients Receiving Lenalidomide and Low Dose Dexamethasone: A Result of Hola Study

An Evaluation of Promis Health Domains in Adults with Hemophilia: A Cross-Sectional Study

Continuous Mobile Wearable Bio-Monitoring of Newly Diagnosed Multiple Myeloma Patients Undergoing Initial Chemotherapy

Evaluating Time to Pain Progression in Multiple Myeloma

Correlations between Patient-Reported Outcomes and Self-Reported Characteristics in Adults with Hemophilia B and Caregivers of Children with Hemophilia B: Analysis of the Bridging Hemophilia B Experiences, Results and Opportunities into Solutions (B-HERO-S) Study

Assessing the Validity of the Brief Pain Inventory for Use Among Adults with Sickle Cell Disease

A Prospective Multi-Centered Registry Is Feasible in Sickle Cell Disease: Globin Regional Network for Data and Discovery (GRNDaD)

Impact of Mild to Severe Hemophilia B on Quality of Life Including Pain and Functional Abilities in Affected Men/Women and Caregivers of Affected Boys/Girls: Analysis of Patient Reported Outcomes in the Bridging Hemophilia B Experiences Results and Opportunities into Solutions (B-HERO-S) Study

Linear and Logistic Regression Models of Patient-Reported Outcomes and Patient Characteristics in US Adults with Hemophilia from the Pain, Functional Impairment, and Quality of Life (P-FiQ) Study

Health-Related Quality of Life of Patients with Newly Diagnosed Multiple Myeloma Receiving Any or Lenalidomide Maintenance after Autologous Stem Cell Transplant in the Connect ® MM Disease Registry

Economic Burden of Relapsed or Refractory Multiple Myeloma: Results from an International Trial

Impact of Pain and Functional Impairment in US Adult People with Hemophilia (PWH): Patient-Reported Outcomes and Musculoskeletal Evaluation in the Pain, Functional Impairment, and Quality of Life (P-FiQ) Study

The Significant Contribution of Pain in Determining the Health Status of Patients with Multiple Myeloma (MM)

Fatigue, Quality of Life and Related Symptoms: Patient Reported Outcomes in Myelodysplastic Syndrome, Aplastic Anemia and Paroxysmal Nocturnal Hemoglobinuria

Distress in Patients with Bleeding Disorders

Topical Sodium Nitrite Is Effective In Reducing Leg Ulcer-Associated Pain In Patients With Sickle Cell Disease

Immune Reconstitution and Quality of Life Analyses After Autologous Transplant for Multiple Myeloma

Lack of Seasonal Variation in Bleeding and Patient-Assessed Pain Patterns in Patients with Hemophilia B Receiving On-Demand Therapy

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American Society of Hematology

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American Society of Hematology

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