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Journal Articles

Impact of Hemophilia a Inhibitor on Joint Health and Health-Related Quality of Life from the Hemophilia Utilization Group Studies Part VIII in the U.S

Megan M. Ullman, MA, MPH, Marilyn J Manco-Johnson, MD, Jonathan C. Roberts, MD, Nicole Crook, RN, Rahul Khairnar, Joanne Wu, MDMS, Steven Carrasco, MPH, Randall Curtis, MBA, Judith Baker, DrPH, MHSA, Duc Quang Tran, Jr., MD, Michael B. Nichol, PhD

Blood (2020) 136 (Supplement 1): 8–9.

https://doi.org/10.1182/blood-2020-142947

Published: 2020

Journal Articles

Application of Thrombomodulin-Thrombin Generation to Diverse Abnormalities of the Protein C System

Marilyn J Manco-Johnson, MD, Linda Jacobson, BS, Dianne Thornhill, PhD, Christine Baird, BS, Beth Boulden Warren, MDMS MSCS

Blood (2020) 136 (Supplement 1): 31–32.

https://doi.org/10.1182/blood-2020-140385

Published: 2020

Journal Articles

Hematology Utilization Group Studies Part VII (HUGS VII): Costs and Impact of Disease in Older Persons with Hemophilia

Randall Curtis, MBA, Marilyn J Manco-Johnson, MD, Barbara A. Konkle, MD, Roshni Kulkarni, MD, Joanne Wu, MDMS, Judith Baker, DrPH, MHSA, Megan M. Ullman, MA, MPH, Duc Quang Tran, Jr., MD, Michael B. Nichol, PhD

Blood (2020) 136 (Supplement 1): 35–36.

https://doi.org/10.1182/blood-2020-141453

Published: 2020

Journal Articles

Role of Low Albumin Levels in Pediatric Patients with Central Venous Catheters at Risk for Thrombosis

Neha Bhasin, MD, Denise Roe, DrPH, Janna M. Journeycake, MD, Chelsea Large, Kathylynn Saboda, MS, Beth Boulden Warren, MD MS, Marilyn J Manco-Johnson, MD, David T. Harris, PhD, Michael Badowski, PhD, Lynn Gerald, Vivian Moreno, Steven R. Lentz, MD PhD

Blood (2019) 134 (Supplement_1): 3650.

https://doi.org/10.1182/blood-2019-124858

Published: 2019

Journal Articles

Prediction of Anti-FVIII Inhibitor Persistence By Anti-FVIII IgG Subclasses in Patients with Severe Hemophilia — A in the Sippet Cohort Study

Flora Peyvandi, MD PhD, Paolo Bucciarelli, MD, Carla Valsecchi, BSc, Marco Boscarino, Roberta Palla, PhD, Elena Santagostino, Amal El-Beshlawy, Mohsen Saleh Elalfy, MD, Vijay M. Ramanan, MBBS,MDDM, Peyman Eshghi, MD, Suresh Hanagavadi, MD, Mehran Karimi, MD, Cecil Ross, MD, Mamta V Manglani, MD, Guy Young, Tulika Seth, MDMBBS,FAAP, Shashikant Apte, MD FRCPA, Dinesh M Nayak, MD, Maria Elisa Mancuso, Johnny Mahlangu, Bonanad Santiago, MD, Monica H Cerqueira, MD PhD, Nadia P Ewing, MD, Christoph Male, MD, Tarek Owaidah, MDFRCPA, Veronica Soto Arellano, MD, Suvankar Majumdar, MBCHB, Mindy Simpson, MD, Mathew Thomas, MD, Ezio Zanon, Marilyn J Manco-Johnson, MD, Monica Martinez, MD, Maria Gabriella Mazzucconi, MD, Daniela Neme, MD, Rogelio Alejandro Paredes-Aguilera, MD, Alessandra N L Prezotti, MD MSc, Klaus Schmitt, MD, Bulent Zulfikar, Prof, Pier Mannuccio Mannucci, MD, Frits Richard Rosendaal, MD

Blood (2018) 132 (Supplement 1): 384.

https://doi.org/10.1182/blood-2018-99-114599

Published: 2018

Journal Articles

Early Prophylaxis Provides Continued Joint Protection in Severe Hemophilia A: Results of the Joint Outcome Continuation Study

Beth Boulden Warren, MD MS, Dianne Thornhill, PhD, Jill Stein, MD, Michael Fadell, MD, Sharon Funk, DPT, Heidi D. Lane, DPT, Carolyn M. Bennett, MD MSc, Amy Shapiro, Michael Recht, MD PhD, Marilyn J Manco-Johnson, MD

Blood (2018) 132 (Supplement 1): 382.

https://doi.org/10.1182/blood-2018-99-117413

Published: 2018

Journal Articles

Chronic Kidney Disease (CKD) in the U.S. Hemophilia Population: A Cohort Study

Blood (2018) 132 (Supplement 1): 2479.

https://doi.org/10.1182/blood-2018-99-119637

Published: 2018

Journal Articles

Epidemiology of Inhibitors in Persons with Severe Hemophilia a in the United States: Analyses of a National Database

Christopher M Sande, BSc, Amanda B Payne, MPH, PhD, Christine L Kempton, MD MSc, Marilyn J Manco-Johnson, MD, Anjali Sharathkumar, MBBS, MDMS

Blood (2018) 132 (Supplement 1): 2470.

https://doi.org/10.1182/blood-2018-99-109978

Published: 2018

Journal Articles

Characteristics of Males with Hemophilia in the United States Hemophilia Treatment Center Network (USHTCN) with New-Onset Elevated Inhibitor Titers, December 15, 2013 - December 31, 2016

Marilyn J Manco-Johnson, MD, J. Michael Soucie, PhD, Anjali Sharathkumar, MBBS, MDMS, Fiona Bethea, MPH, Christine L Kempton, Amanda B. Payne, MPH, Michael Wang, MD, Connie H Miller, PhD

Blood (2017) 130 (Supplement 1): 3408.

https://doi.org/10.1182/blood.V130.Suppl_1.3408.3408

Published: 2017

Journal Articles

Validation of Outcome Instruments for Venous Thrombosis in Children

Julie Smith, BS, Dianne Thornhill, PhD, Neil A Goldenberg, MD PhD, Leonardo R. Brandao, MD MSc, Lillian Sung, MD PhD, Susan Kahn, MD, Marilyn J Manco-Johnson, MD

Blood (2017) 130 (Supplement 1): 1101.

https://doi.org/10.1182/blood.V130.Suppl_1.1101.1101

Published: 2017

Journal Articles

Endothelial Colony Forming Cells from Individuals with Low VWF Levels Demonstrate Impairment in Stimulated VWF Release

Christopher J. Ng, MD, Katrina J. Ashworth, MS, Marilyn J Manco-Johnson, MD, Christopher Baker, MD, Jorge Di Paola, MD

Blood (2017) 130 (Supplement 1): 21.

https://doi.org/10.1182/blood.V130.Suppl_1.21.21

Published: 2017

Journal Articles

Inhibitor Screening in Severe Hemophilia a: A Six-Year Single Center Experience

Beth Boulden Warren, MD, Audra Leblanc, Michael Wang, MD, Christopher J. Ng, MD, Brian R. Branchford, MD, Tyler W. Buckner, MD MSc, Marilyn J Manco-Johnson, MD

Blood (2017) 130 (Supplement 1): 2354.

https://doi.org/10.1182/blood.V130.Suppl_1.2354.2354

Published: 2017

Journal Articles

Disseminated Intravascular Coagulation Predicts Adverse Outcomes in Children with Suspected Sepsis in the Emergency Department

Leonora R Slatnick, MD, Dianne Thornhill, PhD, Sara J Deakayne, MPH, James B. Ford, DO, Halden F Scott, MD, Marilyn J Manco-Johnson, MD, Beth Boulden Warren, MD

Blood (2017) 130 (Supplement 1): 2358.

https://doi.org/10.1182/blood.V130.Suppl_1.2358.2358

Published: 2017

Journal Articles

Chronic Kidney Disease in the U.S. Hemophilia Population: A Cohort Study

Blood (2017) 130 (Supplement 1): 2359.

https://doi.org/10.1182/blood.V130.Suppl_1.2359.2359

Published: 2017

Journal Articles

Alterations in Cytokine Profiles Have Potential Uses As Biomarkers for Pediatric Venous Thromboembolism

Robert L Meller, III, BS, Christine Brzezinski, MS, Christopher J. Ng, MD, Allaura Cox, BS, Julie Smith, BS, Jorge Di Paola, MD, Marilyn J Manco-Johnson, MD, Brian R. Branchford, MD

Blood (2017) 130 (Supplement 1): 1078.

https://doi.org/10.1182/blood.V130.Suppl_1.1078.1078

Published: 2017

Journal Articles

Outcomes of Severe Hemophilia a Patients on Continuous Prophylaxis Relative to Inhibitor Status in the Community Counts Registry

Marilyn J. Manco-Johnson, MD, Vanessa R. Byams, MPH, Roshni Kulkarni, MD, Brandi Dupervil, MPH, Becky Dudley, LCSW, Tyler W. Buckner, MD MSc, Diane Aschman, Pharm D, Meredith Oakley, DVM, MPH, Mariam Voutsis, MPA, Steven Humes, MM, MPH

Blood (2016) 128 (22): 1405.

https://doi.org/10.1182/blood.V128.22.1405.1405

Published: 2016

Journal Articles

Breakthrough Bleeding in Hemophilia a Patients on Prophylaxis

Beth Boulden Warren, MD MS, Taylor Blades, MS, Natalie L Smith, BS, Michael Wang, MD, Marilyn J. Manco-Johnson, MD

Blood (2016) 128 (22): 2581.

https://doi.org/10.1182/blood.V128.22.2581.2581

Published: 2016

Journal Articles

Characteristics of Patients without Bleeding in a Pivotal Trial of Extended Half-Life, Pegylated, Full-length Recombinant Factor VIII (BAX 855) in the Treatment of Hemophilia A

Alice D. Ma, MD, Robert Klamroth, Marilyn J. Manco-Johnson, MD, Werner Engl, Jacqueline A Dyck-Jones, PhD, Brigitt E. Abbuehl

Blood (2015) 126 (23): 1105.

https://doi.org/10.1182/blood.V126.23.1105.1105

Published: 2015

Journal Articles

Non-Factor VIII Coagulation Proteins Fail to Predict Joint Outcome in Severe Hemophilia a

Beth Boulden Warren, MD MS, Linda Jacobsen, BS, Elizabeth Villalobos-Menuey, BS, Thomas C. Abshire, MD, Amy D Shapiro, MD, Michael Recht, MD PhD, Deborah Brown, MD, Cindy A. Leissinger, MD, Christine L. Kempton, MD MSc, Heidi Lane, PT, DPT, PCS, Diane J. Nugent, MD, Marilyn J. Manco-Johnson, MD

Blood (2015) 126 (23): 2289.

https://doi.org/10.1182/blood.V126.23.2289.2289

Published: 2015

Journal Articles

Joint Bleeding Patterns in Patients Treated Prophylactically with an Extended Half-Life, Pegylated, Full-Length Recombinant Factor VIII (BAX 855)

Marilyn J. Manco-Johnson, MD, Alice D. Ma, MD, Robert Klamroth, Werner Engl, Lorena Griparic, PhD, Jacqueline A Dyck-Jones, PhD, Brigitt E. Abbuehl

Blood (2015) 126 (23): 2300.

https://doi.org/10.1182/blood.V126.23.2300.2300

Published: 2015

NARROW

Impact of Hemophilia a Inhibitor on Joint Health and Health-Related Quality of Life from the Hemophilia Utilization Group Studies Part VIII in the U.S

Application of Thrombomodulin-Thrombin Generation to Diverse Abnormalities of the Protein C System

Hematology Utilization Group Studies Part VII (HUGS VII): Costs and Impact of Disease in Older Persons with Hemophilia

Role of Low Albumin Levels in Pediatric Patients with Central Venous Catheters at Risk for Thrombosis

Prediction of Anti-FVIII Inhibitor Persistence By Anti-FVIII IgG Subclasses in Patients with Severe Hemophilia — A in the Sippet Cohort Study

Early Prophylaxis Provides Continued Joint Protection in Severe Hemophilia A: Results of the Joint Outcome Continuation Study

Chronic Kidney Disease (CKD) in the U.S. Hemophilia Population: A Cohort Study

Epidemiology of Inhibitors in Persons with Severe Hemophilia a in the United States: Analyses of a National Database

Characteristics of Males with Hemophilia in the United States Hemophilia Treatment Center Network (USHTCN) with New-Onset Elevated Inhibitor Titers, December 15, 2013 - December 31, 2016

Validation of Outcome Instruments for Venous Thrombosis in Children

Endothelial Colony Forming Cells from Individuals with Low VWF Levels Demonstrate Impairment in Stimulated VWF Release

Inhibitor Screening in Severe Hemophilia a: A Six-Year Single Center Experience

Disseminated Intravascular Coagulation Predicts Adverse Outcomes in Children with Suspected Sepsis in the Emergency Department

Chronic Kidney Disease in the U.S. Hemophilia Population: A Cohort Study

Alterations in Cytokine Profiles Have Potential Uses As Biomarkers for Pediatric Venous Thromboembolism

Outcomes of Severe Hemophilia a Patients on Continuous Prophylaxis Relative to Inhibitor Status in the Community Counts Registry

Breakthrough Bleeding in Hemophilia a Patients on Prophylaxis

Characteristics of Patients without Bleeding in a Pivotal Trial of Extended Half-Life, Pegylated, Full-length Recombinant Factor VIII (BAX 855) in the Treatment of Hemophilia A

Non-Factor VIII Coagulation Proteins Fail to Predict Joint Outcome in Severe Hemophilia a

Joint Bleeding Patterns in Patients Treated Prophylactically with an Extended Half-Life, Pegylated, Full-Length Recombinant Factor VIII (BAX 855)

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American Society of Hematology

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ASH Publications

American Society of Hematology

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