Table 1.

Overview of characteristics of participants in the Hemophilia in the Netherlands studies obtained from self-reported data




1972, N = 447

1978, N = 560

1985, N = 935

1992, N = 980

2001, N = 1066
Median age, y (range)   19 (0-74)   23 (0-70)   28 (0-85)   31 (0-84)   36 (0-90)  
Severity of hemophilia, no. of patients (%)      
    Severe, less than 0.01 IU mL   159 (36)*  245 (44)   384 (41)   387 (39)   420 (39)  
    Moderate, 0.01-0.05 IU mL   83 (19)   106 (19)   175 (19)   173 (18)   176 (17)  
    Mild, greater than 0.05-0.4 IU mL   172 (38)   138 (25)   376 (40)   420 (43)   470 (44)  
Type A hemophilia, no. of patients (%)  377 (84)   481 (86)   801 (86)   853 (87)   925 (87)  
Sporadic hemophilia, no. of patients (%)
 
112 (25)
 
128 (23)
 
237 (25)
 
195 (20)
 
246 (23)
 



1972, N = 447

1978, N = 560

1985, N = 935

1992, N = 980

2001, N = 1066
Median age, y (range)   19 (0-74)   23 (0-70)   28 (0-85)   31 (0-84)   36 (0-90)  
Severity of hemophilia, no. of patients (%)      
    Severe, less than 0.01 IU mL   159 (36)*  245 (44)   384 (41)   387 (39)   420 (39)  
    Moderate, 0.01-0.05 IU mL   83 (19)   106 (19)   175 (19)   173 (18)   176 (17)  
    Mild, greater than 0.05-0.4 IU mL   172 (38)   138 (25)   376 (40)   420 (43)   470 (44)  
Type A hemophilia, no. of patients (%)  377 (84)   481 (86)   801 (86)   853 (87)   925 (87)  
Sporadic hemophilia, no. of patients (%)
 
112 (25)
 
128 (23)
 
237 (25)
 
195 (20)
 
246 (23)
 

N indicates the entire population under study.

*

Severity data was missing for 33 patients in 1972, and for 71 patients in 1970.

All other patients are patients with hemophilia B.

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