Complication . | Registry questions/specifics . |
|---|---|
| Heart disease | Does the patient have heart disease requiring medications? |
| Liver disease | 1. Does the patient have clinical findings of liver failure or cirrhosis? |
| 2. Has the patient ever had a liver biopsy? Cirrhosis by biopsy: yes/no? | |
| The registry recorded evidence of cirrhosis on liver biopsy but not specific data regarding active hepatitis C by biopsy, nor was the indication for biopsy recorded. | |
| Endocrinopathies | 1. Has the patient ever been on sex hormone replacement therapy for hypogonadism? |
| 2. Does the patient have thyroid disease requiring treatment? | |
| 3. Does the patient have parathyroid disease requiring treatment? | |
| 4. Does the patient have diabetes requiring any of the following: | |
| Oral hypoglycemic agents and/or insulin? | |
| DFO complications | Has the patient had any of the following considered to be related to DFO treatment, requiring adjustment of DFO dose or implementation of a different regimen of DFO or desensitization? |
| Following that question on the registry intake form was a yes/no past/present table for the each of the complications listed in Table 3. |
Complication . | Registry questions/specifics . |
|---|---|
| Heart disease | Does the patient have heart disease requiring medications? |
| Liver disease | 1. Does the patient have clinical findings of liver failure or cirrhosis? |
| 2. Has the patient ever had a liver biopsy? Cirrhosis by biopsy: yes/no? | |
| The registry recorded evidence of cirrhosis on liver biopsy but not specific data regarding active hepatitis C by biopsy, nor was the indication for biopsy recorded. | |
| Endocrinopathies | 1. Has the patient ever been on sex hormone replacement therapy for hypogonadism? |
| 2. Does the patient have thyroid disease requiring treatment? | |
| 3. Does the patient have parathyroid disease requiring treatment? | |
| 4. Does the patient have diabetes requiring any of the following: | |
| Oral hypoglycemic agents and/or insulin? | |
| DFO complications | Has the patient had any of the following considered to be related to DFO treatment, requiring adjustment of DFO dose or implementation of a different regimen of DFO or desensitization? |
| Following that question on the registry intake form was a yes/no past/present table for the each of the complications listed in Table 3. |