Table 4

Circumstances of death in patients 18 years or older and the relationship to transition to adult care

Patient no.Age at transition, yAge at death, yChronic complication of sickle cell diseaseCircumstances of death
N/A* 18.8 Renal failure; dialysis Found dead at home 
17.9 19.2 None known Acute chest syndrome 
18.0 18.3 None known Acute chest syndrome−refused transfusion (Jehovah's Witness) 
18.2 20.6 None known Fell in hospital while pregnant−cerebral hemorrhage 
18.3 19.3 None known Acute chest syndrome complicated by multiorgan failure syndrome 
18.4 23.7 None known Presumed stroke 
18.5 18.7 None known Multiorgan failure syndrome 
Patient no.Age at transition, yAge at death, yChronic complication of sickle cell diseaseCircumstances of death
N/A* 18.8 Renal failure; dialysis Found dead at home 
17.9 19.2 None known Acute chest syndrome 
18.0 18.3 None known Acute chest syndrome−refused transfusion (Jehovah's Witness) 
18.2 20.6 None known Fell in hospital while pregnant−cerebral hemorrhage 
18.3 19.3 None known Acute chest syndrome complicated by multiorgan failure syndrome 
18.4 23.7 None known Presumed stroke 
18.5 18.7 None known Multiorgan failure syndrome 
*

Not applicable: transition delayed beyond 18 years of age because of chronic renal failure.

This was the first patient in the Dallas Newborn Cohort.

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