Numbers of males in the United Kingdom with hemophilia A or B and registered in the UK Haemophilia Centre Doctors' Organisation nationwide database 1977 to 1998
| . | Infected with HIV . | Not infected with HIV* . | |||
|---|---|---|---|---|---|
| Severe† . | Moderate† . | Mild†‡ . | Total . | ||
| Type of hemophilia | |||||
| A | 1204 (97.7) | 2706 (84.0) | 1110 (75.2) | 1058 (80.2) | 4874 (81.0) |
| B | 28 (2.3) | 516 (16.0) | 366 (24.8) | 262 (19.8) | 1144 (19.0) |
| Vital status on January 1, 2000 | |||||
| Alive and resident in United Kingdom | 434 (35.2) | 1013 (76.7) | 1246 (84.4) | 2636 (81.8) | 4895 (81.3) |
| Dead | 788 (63.9) | 250 (18.9) | 177 (12.0) | 435 (13.5) | 862 (14.3) |
| Emigrated | 6 (0.5) | 14 (1.1) | 10 (0.7) | 43 (1.3) | 67 (1.1) |
| Lost to follow-up | 4 (0.3) | 43 (3.2) | 43 (2.9) | 108 (3.4) | 194 (3.2) |
| Total‖ | 1232 (100.0) | 1320 (100.0) | 1476 (100.0) | 3222 (100.0) | 6018 (100.0) |
| . | Infected with HIV . | Not infected with HIV* . | |||
|---|---|---|---|---|---|
| Severe† . | Moderate† . | Mild†‡ . | Total . | ||
| Type of hemophilia | |||||
| A | 1204 (97.7) | 2706 (84.0) | 1110 (75.2) | 1058 (80.2) | 4874 (81.0) |
| B | 28 (2.3) | 516 (16.0) | 366 (24.8) | 262 (19.8) | 1144 (19.0) |
| Vital status on January 1, 2000 | |||||
| Alive and resident in United Kingdom | 434 (35.2) | 1013 (76.7) | 1246 (84.4) | 2636 (81.8) | 4895 (81.3) |
| Dead | 788 (63.9) | 250 (18.9) | 177 (12.0) | 435 (13.5) | 862 (14.3) |
| Emigrated | 6 (0.5) | 14 (1.1) | 10 (0.7) | 43 (1.3) | 67 (1.1) |
| Lost to follow-up | 4 (0.3) | 43 (3.2) | 43 (2.9) | 108 (3.4) | 194 (3.2) |
| Total‖ | 1232 (100.0) | 1320 (100.0) | 1476 (100.0) | 3222 (100.0) | 6018 (100.0) |
Data are presented as number of patients (%).
Includes all individuals who died prior to January 1, 1985, as HIV testing was not generally available before then and it has been shown that HIV had little impact on mortality prior to 1985.5
Severe: clotting factor concentration less than 1 international unit per deciliter, moderate: 1-5; mild: >5.
Includes 121 individuals with unknown severity.
Excluding individuals treated in the United Kingdom who usually live overseas.