SCD quality of care indicators by category
| Category . | Domains . | Data Sources . | Reference . |
|---|---|---|---|
| Health care use | • ED visits | Administrative/claims data, chart review, survey | 18 |
| • Hospital admissions | |||
| • Primary care adherence | |||
| Routine health care maintenance | • Penicillin prophylaxis | Administrative/claims data, chart review, survey | 18, 21 |
| • Immunizations | |||
| • Vaccinations | |||
| • TCD screening and management | |||
| • Care planning and management | |||
| • Mental health screening and follow-up | |||
| • Blood pressure screening | |||
| • Ophthalmologic exam | |||
| Newborn screening and follow-up | • Discussion with provider | Administrative/claims data, chart review, survey | 18, 22 |
| • Communication about results | |||
| • Connection to follow-up care | |||
| • Genetic counseling | |||
| Acute | • Prevention and treatment of acute chest syndrome | Administrative/claims data, chart review | 18, 21 |
| • Assessment, treatment, and management of acute pain crises | |||
| • Fever management | |||
| Chronic care Maintenance | • Chronic transfusion management | Administrative/claims data, chart review, survey | 18, 21 |
| • Prevention of stroke | |||
| • Hematopoietic stem cell transplant | |||
| • Asthma care | |||
| • Hydroxyurea treatment | |||
| • Prevention and management of splenic complications | |||
| Transition from pediatric to adult care | Communication between pediatric and adult providers | Administrative/claims data, chart review, survey | 18, 23 |
| • Timing of first adult visit | |||
| • Patient self-efficacy | |||
| • Quality of life | |||
| • Trust with their adult provider |
| Category . | Domains . | Data Sources . | Reference . |
|---|---|---|---|
| Health care use | • ED visits | Administrative/claims data, chart review, survey | 18 |
| • Hospital admissions | |||
| • Primary care adherence | |||
| Routine health care maintenance | • Penicillin prophylaxis | Administrative/claims data, chart review, survey | 18, 21 |
| • Immunizations | |||
| • Vaccinations | |||
| • TCD screening and management | |||
| • Care planning and management | |||
| • Mental health screening and follow-up | |||
| • Blood pressure screening | |||
| • Ophthalmologic exam | |||
| Newborn screening and follow-up | • Discussion with provider | Administrative/claims data, chart review, survey | 18, 22 |
| • Communication about results | |||
| • Connection to follow-up care | |||
| • Genetic counseling | |||
| Acute | • Prevention and treatment of acute chest syndrome | Administrative/claims data, chart review | 18, 21 |
| • Assessment, treatment, and management of acute pain crises | |||
| • Fever management | |||
| Chronic care Maintenance | • Chronic transfusion management | Administrative/claims data, chart review, survey | 18, 21 |
| • Prevention of stroke | |||
| • Hematopoietic stem cell transplant | |||
| • Asthma care | |||
| • Hydroxyurea treatment | |||
| • Prevention and management of splenic complications | |||
| Transition from pediatric to adult care | Communication between pediatric and adult providers | Administrative/claims data, chart review, survey | 18, 23 |
| • Timing of first adult visit | |||
| • Patient self-efficacy | |||
| • Quality of life | |||
| • Trust with their adult provider |
ED, emergency department; TCD, transcranial Doppler.