Professional characteristics of hemophilia patients born before or after the introduction of prophylaxis
| . | Severe . | Moderate . | Mild . | General population, % . |
|---|---|---|---|---|
| Born before introduction prophylaxis (31–64 y), no. | 200 | 77 | 260 | — |
| Full-time education | 0 | 0 | 0 | N/A |
| Part-time education | 11 (6)* | 3 (4)‡ | 12 (5)‡ | N/A |
| Full-time work | 99 (50) | 53 (67) | 187 (72) | 73 |
| Part-time work | 35 (18) | 3 (4) | 23 (9) | 10 |
| Unemployed | 3 (4) | 3 (1) | 2 | |
| Occupational disability (more than 80%) | 69 (36)† | 17 (22) | 3 (1) | 11 |
| Retired | 7 (4) | 2 (3) | 10 (4) | |
| Born after introduction prophylaxis (16–30 y), no. | 79 | 37 | 68 | — |
| Full-time education§ | 33 (42) | 15 (41) | 32 (47) | N/A |
| Part-time education¶ | 6 (8) | 5 (14) | 9 (13) | N/A |
| Full-time work | 27 (34) | 19 (51) | 30 (44) | 52 |
| Part-time work | 21 (27) | 4 (11) | 13 (19) | 24 |
| Unemployed | 1 (1) | 0 | 0 | 5.4 |
| Occupational disability (more than 80%) | 4 (5) | 1(3) | 1(2) | 3 |
| . | Severe . | Moderate . | Mild . | General population, % . |
|---|---|---|---|---|
| Born before introduction prophylaxis (31–64 y), no. | 200 | 77 | 260 | — |
| Full-time education | 0 | 0 | 0 | N/A |
| Part-time education | 11 (6)* | 3 (4)‡ | 12 (5)‡ | N/A |
| Full-time work | 99 (50) | 53 (67) | 187 (72) | 73 |
| Part-time work | 35 (18) | 3 (4) | 23 (9) | 10 |
| Unemployed | 3 (4) | 3 (1) | 2 | |
| Occupational disability (more than 80%) | 69 (36)† | 17 (22) | 3 (1) | 11 |
| Retired | 7 (4) | 2 (3) | 10 (4) | |
| Born after introduction prophylaxis (16–30 y), no. | 79 | 37 | 68 | — |
| Full-time education§ | 33 (42) | 15 (41) | 32 (47) | N/A |
| Part-time education¶ | 6 (8) | 5 (14) | 9 (13) | N/A |
| Full-time work | 27 (34) | 19 (51) | 30 (44) | 52 |
| Part-time work | 21 (27) | 4 (11) | 13 (19) | 24 |
| Unemployed | 1 (1) | 0 | 0 | 5.4 |
| Occupational disability (more than 80%) | 4 (5) | 1(3) | 1(2) | 3 |
Data presented are numbers (%) except where indicated.
N/A indicates not available; and —, exact number not known.
Eight patients were involved in either full-time or part-time work.
15 patients were both disabled and involved in either full-time or part-time work.
Thirteen patients were also involved in full-time or part-time work and 1 patient was disabled.
Twelve patients with severe hemophilia were also involved in part-time work and 13 patients with moderate or mild hemophilia.
Five patients with severe hemophilia and 12 with moderate/mild hemophilia hemophilia were involved in either full-time or part-time work.