Neurology, quality-of-life, and health services specialty collection measures
| Measure . | Protocol age range . | Protocol source; reference no. . |
|---|---|---|
| 1. Quality of care | 17 y and younger | Consumer Assessment of Healthcare Providers and Systems Health Plan Survey 4.0 |
| 18 y and older | 49 | |
| 2. Quality of life in SCD | 2-18 y | 50 |
| 18 y and older | 49 | |
| 3. Quality of life | 8-17 y | PROMIS-25 Profile (version 1.1) |
| 18 y and older | PROMIS-29 Profile (version 2.0) | |
| 4. Self-efficacy in SCD | 18 y and older | 51 |
| 5. Intelligence scale | 0-3 y, 6 mo | Bayley Scales of Infant and Toddler Development (3rd ed) |
| 2 y, 6 mo to 7 y, 7 mo | Wechsler Preschool and Primary Scale of Intelligence (4th ed) | |
| 6-17 y | Wechsler Intelligence Scale for Children (5th ed) | |
| 16-90 y | Wechsler Adult Intelligence Scale (4th ed) | |
| 6. Adaptive behavior/adaptive function | 0-90 y | Vineland Adaptive Behavior Scales (2nd ed) |
| 7. Functionality after stroke | 0-18 y | 52 |
| 18 y and older | 53 | |
| 8. Stroke impact/outcome | 2-18 y | 54 |
| 18 y and older | 55 | |
| 9. Stroke risk in children with sickle cell disease | 2 y and older | 56, 57 |
| 2 y and older | 58, 59 | |
| 10. Sustained and selective attention | 8 y and older | Conners Continuous Performance Test (3rd ed) |
| Brain arterial blood supply (SI) | All ages | 7 |
| Brain Morphology (SI) | All ages | 60 |
| All ages | 61 |
| Measure . | Protocol age range . | Protocol source; reference no. . |
|---|---|---|
| 1. Quality of care | 17 y and younger | Consumer Assessment of Healthcare Providers and Systems Health Plan Survey 4.0 |
| 18 y and older | 49 | |
| 2. Quality of life in SCD | 2-18 y | 50 |
| 18 y and older | 49 | |
| 3. Quality of life | 8-17 y | PROMIS-25 Profile (version 1.1) |
| 18 y and older | PROMIS-29 Profile (version 2.0) | |
| 4. Self-efficacy in SCD | 18 y and older | 51 |
| 5. Intelligence scale | 0-3 y, 6 mo | Bayley Scales of Infant and Toddler Development (3rd ed) |
| 2 y, 6 mo to 7 y, 7 mo | Wechsler Preschool and Primary Scale of Intelligence (4th ed) | |
| 6-17 y | Wechsler Intelligence Scale for Children (5th ed) | |
| 16-90 y | Wechsler Adult Intelligence Scale (4th ed) | |
| 6. Adaptive behavior/adaptive function | 0-90 y | Vineland Adaptive Behavior Scales (2nd ed) |
| 7. Functionality after stroke | 0-18 y | 52 |
| 18 y and older | 53 | |
| 8. Stroke impact/outcome | 2-18 y | 54 |
| 18 y and older | 55 | |
| 9. Stroke risk in children with sickle cell disease | 2 y and older | 56, 57 |
| 2 y and older | 58, 59 | |
| 10. Sustained and selective attention | 8 y and older | Conners Continuous Performance Test (3rd ed) |
| Brain arterial blood supply (SI) | All ages | 7 |
| Brain Morphology (SI) | All ages | 60 |
| All ages | 61 |