Table 2.

Sickle cell disease research and scientific panel core tier 2 measures

MeasureProtocol age rangeProtocol source
1. Annual family income 18 y and older National Health Interview Survey 
2. Birthplace All ages American Community Survey 
3. Birthplace of parents All ages American Community Survey 
4. Birthplace of grandparents All ages American Community Survey 
5. Current educational attainment All ages National Health and Nutrition Examination Survey 
6. Current employment status 16 y and older Panel Study of Income Dynamics 
7. Current marital status 18 y and older National Survey of Family Growth 
8. Health insurance coverage 16 y and older National Health and Nutrition Examination Survey 
9. Marital status of primary caregiver* 22 y and younger Silent Cerebral Infarct Multicenter Clinical Trial 
10. Child-reported parental educational attainment 11-16 y Add Health 
11. Pediatric school performance* 2-18 y Pediatric Hydroxyurea Phase III Clinical Trial 
12. Years living in the United States 16 y and older National Health Interview Survey 
13. Medication inventory 45-84 y Multi-Ethnic Study of Arthrosclerosis 
14. Alcohol—lifetime use 16 y and older National Epidemiologic Survey on Alcohol and Related Condition 
15. Tobacco—smoking status 16 y and older Population Assessment of Tobacco and Health 
 18 y and older Population Assessment of Tobacco and Health 
16. Substances—lifetime use 18 y and older National Epidemiologic Survey on Alcohol and Related Conditions 
MeasureProtocol age rangeProtocol source
1. Annual family income 18 y and older National Health Interview Survey 
2. Birthplace All ages American Community Survey 
3. Birthplace of parents All ages American Community Survey 
4. Birthplace of grandparents All ages American Community Survey 
5. Current educational attainment All ages National Health and Nutrition Examination Survey 
6. Current employment status 16 y and older Panel Study of Income Dynamics 
7. Current marital status 18 y and older National Survey of Family Growth 
8. Health insurance coverage 16 y and older National Health and Nutrition Examination Survey 
9. Marital status of primary caregiver* 22 y and younger Silent Cerebral Infarct Multicenter Clinical Trial 
10. Child-reported parental educational attainment 11-16 y Add Health 
11. Pediatric school performance* 2-18 y Pediatric Hydroxyurea Phase III Clinical Trial 
12. Years living in the United States 16 y and older National Health Interview Survey 
13. Medication inventory 45-84 y Multi-Ethnic Study of Arthrosclerosis 
14. Alcohol—lifetime use 16 y and older National Epidemiologic Survey on Alcohol and Related Condition 
15. Tobacco—smoking status 16 y and older Population Assessment of Tobacco and Health 
 18 y and older Population Assessment of Tobacco and Health 
16. Substances—lifetime use 18 y and older National Epidemiologic Survey on Alcohol and Related Conditions 
*

New measures added by the SRSP.

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