Provider interactions regarding the VTE event
| Characteristic . | All participants (N = 1058) . |
|---|---|
| Source of information regarding first blood clot diagnosis∗ | |
| Doctor, physician assistant, or nurse practitioner | 989 (93.5) |
| Nurse | 133 (12.6) |
| Friend or family member | 64 (6.0) |
| Patient advocate | 7 (0.7) |
| Social worker | 3 (0.3) |
| Other | 70 (6.6) |
| Time spent with provider when told about the first blood clot diagnosis | |
| ≤5 minutes | 257 (24.3) |
| 6-10 minutes | 343 (37.0) |
| 11-20 minutes | 160 (17.3) |
| 21-30 minutes | 90 (9.7) |
| 31-60 minutes | 32 (3.5) |
| >60 minutes | 45 (4.9) |
| Alone at the time of diagnosis | 507 (48.1) |
| Did you understand your diagnosis when it was first told to you? | |
| Yes, completely | 188 (17.9) |
| Yes, for the most part | 332 (31.5) |
| Some of it made sense and some of it did not | 213 (20.2) |
| Not entirely | 193 (18.3) |
| I was completely lost | 127 (12.1) |
| Visits needed for correct diagnosis | |
| 1 | 740 (70.4) |
| 2 | 127 (12.1) |
| 3 | 89 (8.5) |
| 4 | 44 (4.2) |
| ≥5 | 50 (4.8) |
| Felt signs and symptoms were taken seriously at first presentation | |
| Yes | 756 (72.1) |
| No | 293 (27.9) |
| Reasons why signs and symptoms not taken seriously (n = 293)∗ | |
| Young age | 126 (43.0) |
| Gender or sex | 56 (19.1) |
| Advanced age | 11 (3.8) |
| Race/ethnicity | 9 (3.1) |
| Lack of health insurance | 8 (2.7) |
| Race/ethnicity differed from that of health care provider | 6 (2.0) |
| Member of the LGBTQ+ community | 2 (0.7) |
| Other | 175 (59.7) |
| Offered printed or electronic information at the time of first diagnosis | |
| Yes | 166 (15.7) |
| No | 695 (65.8) |
| Do not recall | 195 (18.5) |
| Type of information provided at the time of first diagnosis (n = 166)∗ | |
| Pamphlets/written material | 135 (81.3) |
| Website | 14 (8.4) |
| Electronic, such as a video | 4 (2.4) |
| Other | 9 (5.4) |
| Do not recall | 22 (13.3) |
| Topics of information provided at the time of first diagnosis (n = 166)∗ | |
| Follow-up recommendations | 107 (64.5) |
| Treatment options | 91 (54.8) |
| Causes | 81 (48.8) |
| Risk of death or disability | 53 (31.9) |
| Incidence | 30 (18.1) |
| Other | 7 (4.2) |
| Do not recall | 21 (12.7) |
| Appropriateness of information provided at first diagnosis (n = 166) | |
| Helpful and adequate in helping understand diagnosis | 80 (48.8) |
| Too basic, provided little knowledge | 62 (37.8) |
| Too complex and difficult to understand | 4 (2.4) |
| Do not recall | 18 (11.0) |
| Characteristic . | All participants (N = 1058) . |
|---|---|
| Source of information regarding first blood clot diagnosis∗ | |
| Doctor, physician assistant, or nurse practitioner | 989 (93.5) |
| Nurse | 133 (12.6) |
| Friend or family member | 64 (6.0) |
| Patient advocate | 7 (0.7) |
| Social worker | 3 (0.3) |
| Other | 70 (6.6) |
| Time spent with provider when told about the first blood clot diagnosis | |
| ≤5 minutes | 257 (24.3) |
| 6-10 minutes | 343 (37.0) |
| 11-20 minutes | 160 (17.3) |
| 21-30 minutes | 90 (9.7) |
| 31-60 minutes | 32 (3.5) |
| >60 minutes | 45 (4.9) |
| Alone at the time of diagnosis | 507 (48.1) |
| Did you understand your diagnosis when it was first told to you? | |
| Yes, completely | 188 (17.9) |
| Yes, for the most part | 332 (31.5) |
| Some of it made sense and some of it did not | 213 (20.2) |
| Not entirely | 193 (18.3) |
| I was completely lost | 127 (12.1) |
| Visits needed for correct diagnosis | |
| 1 | 740 (70.4) |
| 2 | 127 (12.1) |
| 3 | 89 (8.5) |
| 4 | 44 (4.2) |
| ≥5 | 50 (4.8) |
| Felt signs and symptoms were taken seriously at first presentation | |
| Yes | 756 (72.1) |
| No | 293 (27.9) |
| Reasons why signs and symptoms not taken seriously (n = 293)∗ | |
| Young age | 126 (43.0) |
| Gender or sex | 56 (19.1) |
| Advanced age | 11 (3.8) |
| Race/ethnicity | 9 (3.1) |
| Lack of health insurance | 8 (2.7) |
| Race/ethnicity differed from that of health care provider | 6 (2.0) |
| Member of the LGBTQ+ community | 2 (0.7) |
| Other | 175 (59.7) |
| Offered printed or electronic information at the time of first diagnosis | |
| Yes | 166 (15.7) |
| No | 695 (65.8) |
| Do not recall | 195 (18.5) |
| Type of information provided at the time of first diagnosis (n = 166)∗ | |
| Pamphlets/written material | 135 (81.3) |
| Website | 14 (8.4) |
| Electronic, such as a video | 4 (2.4) |
| Other | 9 (5.4) |
| Do not recall | 22 (13.3) |
| Topics of information provided at the time of first diagnosis (n = 166)∗ | |
| Follow-up recommendations | 107 (64.5) |
| Treatment options | 91 (54.8) |
| Causes | 81 (48.8) |
| Risk of death or disability | 53 (31.9) |
| Incidence | 30 (18.1) |
| Other | 7 (4.2) |
| Do not recall | 21 (12.7) |
| Appropriateness of information provided at first diagnosis (n = 166) | |
| Helpful and adequate in helping understand diagnosis | 80 (48.8) |
| Too basic, provided little knowledge | 62 (37.8) |
| Too complex and difficult to understand | 4 (2.4) |
| Do not recall | 18 (11.0) |
Data are shown as n (%). Data are missing for the time spent with provider (n = 131), alone at diagnosis (n = 4), understanding of diagnosis (n = 5), visits needed for correct diagnosis (n = 7), symptoms taken seriously (n = 9), satisfaction with explanation (n = 10), offered information (n = 2), and appropriateness of information (n = 2). LGBTQ+, Lesbian, Gay, Bisexual, Transgender, Queer/Questioning, and Others.
Respondents could select >1 response option, and thus totals may sum to >100%.