Long-term management considerations after allogeneic HCT and GT
| Management area . | Specific needs . |
|---|---|
| Transplant related | Regular follow-ups for GVHD and infection screening |
| Engraftment and chimerism monitoring | |
| SCD | Annual eye assessments for retinopathy screening |
| Ongoing assessment of organ function especially in areas of previous damage (kidney, lung, etc) | |
| Chronic pain management | Assessment for any evidence of ongoing pain due to previous bone/muscular damage or caused by opioid-induced hyperalgesia |
| Long-term pain plan discussion including goals of weaning off opioids or switching to buprenorphine-based pain management | |
| Psychosocial monitoring | Evaluation for depression, anxiety, and posttraumatic stress disorder |
| Counseling for emotional and psychological adjustment | |
| Social determinants of health assessment | |
| Neurocognitive monitoring | Neurocognitive testing to assist people with entering school or workforce |
| Referral for neurocognitive rehabilitation of needed | |
| Evaluation for any progression of previous infarcts or CNS-vascular damage | |
| Lifestyle adjustment | Ensure individual understands the needing for continuous health care coverage |
| Guidance on healthy diet and physical activity | |
| Education on navigating and understanding the adult health care systems | |
| Identification of other health providers (PCP and GYN) needed for the adult |
| Management area . | Specific needs . |
|---|---|
| Transplant related | Regular follow-ups for GVHD and infection screening |
| Engraftment and chimerism monitoring | |
| SCD | Annual eye assessments for retinopathy screening |
| Ongoing assessment of organ function especially in areas of previous damage (kidney, lung, etc) | |
| Chronic pain management | Assessment for any evidence of ongoing pain due to previous bone/muscular damage or caused by opioid-induced hyperalgesia |
| Long-term pain plan discussion including goals of weaning off opioids or switching to buprenorphine-based pain management | |
| Psychosocial monitoring | Evaluation for depression, anxiety, and posttraumatic stress disorder |
| Counseling for emotional and psychological adjustment | |
| Social determinants of health assessment | |
| Neurocognitive monitoring | Neurocognitive testing to assist people with entering school or workforce |
| Referral for neurocognitive rehabilitation of needed | |
| Evaluation for any progression of previous infarcts or CNS-vascular damage | |
| Lifestyle adjustment | Ensure individual understands the needing for continuous health care coverage |
| Guidance on healthy diet and physical activity | |
| Education on navigating and understanding the adult health care systems | |
| Identification of other health providers (PCP and GYN) needed for the adult |
CNS, central nervous system; GYN, Gynaecologist; PCP, Primary Care Physician.