Table 1.

Patients’ view of the heterogeneity of CLL

QuestionNYes (%)No (%)Not sure (%)
Do you know about the different risk groups of patients with CLL? 377 149 (40) 141 (37) 87 (23) 
In the educational courses, did you receive any information to help you understand the different risk groups of patients with CLL? 320 84 (26) 194 (61) 42 (13) 
Do you know about any laboratory tests to identify each patient’s risk level? 312 109 (35) 166 (53) 37 (12) 
Do you know about any treatment differences between the different CLL risk groups? 328 86 (26) 160 (49) 82 (25) 
Do you agree all patients should be tested to identify patients at high risk? 373 261 (70) 29 (8) 82 (22) 
Are you a patient at high risk? 304 56 (18) 91 (30) 157 (52) 
QuestionNYes (%)No (%)Not sure (%)
Do you know about the different risk groups of patients with CLL? 377 149 (40) 141 (37) 87 (23) 
In the educational courses, did you receive any information to help you understand the different risk groups of patients with CLL? 320 84 (26) 194 (61) 42 (13) 
Do you know about any laboratory tests to identify each patient’s risk level? 312 109 (35) 166 (53) 37 (12) 
Do you know about any treatment differences between the different CLL risk groups? 328 86 (26) 160 (49) 82 (25) 
Do you agree all patients should be tested to identify patients at high risk? 373 261 (70) 29 (8) 82 (22) 
Are you a patient at high risk? 304 56 (18) 91 (30) 157 (52) 
Fixed (%)Until progression (%)
If you were a patient with CLL at high risk, what would you prefer as a duration of the treatment? 270 185 (69) 85 (31) 
Fixed (%)Until progression (%)
If you were a patient with CLL at high risk, what would you prefer as a duration of the treatment? 270 185 (69) 85 (31) 
Oral (%)Intravenous (%)
If you were a patient with CLL at high risk, what would you prefer for administration? 296 232 (78) 64 (22) 
Oral (%)Intravenous (%)
If you were a patient with CLL at high risk, what would you prefer for administration? 296 232 (78) 64 (22) 
Outpatient (%)Inpatient (%)
If you were a patient with CLL at high risk, what would you prefer for convenience? 283 257 (91) 26 (9) 
Outpatient (%)Inpatient (%)
If you were a patient with CLL at high risk, what would you prefer for convenience? 283 257 (91) 26 (9) 
All patients incl. high-risk (%)All patients excl. high-risk (%)None (%)Not sure (%)
Should immunochemotherapy still be offered to patients at high risk (or to all patients)? 357 86 (24) 26 (7) 22 (6) 223 (62) 
All patients incl. high-risk (%)All patients excl. high-risk (%)None (%)Not sure (%)
Should immunochemotherapy still be offered to patients at high risk (or to all patients)? 357 86 (24) 26 (7) 22 (6) 223 (62) 
Chemoimmunotherapy (%)New targeted agents (%)No preference (%)Discuss with physician first (%)
What treatment would you like to receive if you were a patient at high risk? (>1 answer permitted) 350 38 (11) 57 (16) 170 (49) 133 (38) 
Chemoimmunotherapy (%)New targeted agents (%)No preference (%)Discuss with physician first (%)
What treatment would you like to receive if you were a patient at high risk? (>1 answer permitted) 350 38 (11) 57 (16) 170 (49) 133 (38) 

Educational course were not defined for survey respondents, and therefore subject to individual interpretation.

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