A comparison of characteristics of JSH Hematologic Disease Registry and DPC study databases
| Database . | JSH Hematologic Disease Registry . | DPC study . |
|---|---|---|
| Who organizes the registration database? | JSH | Ministry of Health, Labor, and Welfare |
| Which patients are registered? | All patients with newly diagnosed hematological diseases at the JSH member hospitals | All patients discharged from the participating hospitals |
| When are the patients registered? | At diagnosis | At reimbursement for an inpatient care |
| What is available from the database? | ||
| Diagnosis of the patients | With ICD10 code | With ICD10 code |
| Number of subtypes | 5 | 3 |
| Gender of the patients | Yes | No |
| Age of the patients | Yes | No |
| Treatment information | No | No |
| Outcome and survival | Limited | No |
| Incentives to increase registration | JSH certification as an education center | Medical fee reimbursement |
| Who participates in the registration? | The JSH member hospitals | Any hospitals participating in the survey |
| What size does the database have? | 42 000 new cases in 2020 394 000 cases as of 2020 | 1.0 million beds (64.8% of total hospital beds in Japan) as of 2020 |
| Accessibility to database | Partly accessible as an open document | Partly accessible as an open document |
| Database . | JSH Hematologic Disease Registry . | DPC study . |
|---|---|---|
| Who organizes the registration database? | JSH | Ministry of Health, Labor, and Welfare |
| Which patients are registered? | All patients with newly diagnosed hematological diseases at the JSH member hospitals | All patients discharged from the participating hospitals |
| When are the patients registered? | At diagnosis | At reimbursement for an inpatient care |
| What is available from the database? | ||
| Diagnosis of the patients | With ICD10 code | With ICD10 code |
| Number of subtypes | 5 | 3 |
| Gender of the patients | Yes | No |
| Age of the patients | Yes | No |
| Treatment information | No | No |
| Outcome and survival | Limited | No |
| Incentives to increase registration | JSH certification as an education center | Medical fee reimbursement |
| Who participates in the registration? | The JSH member hospitals | Any hospitals participating in the survey |
| What size does the database have? | 42 000 new cases in 2020 394 000 cases as of 2020 | 1.0 million beds (64.8% of total hospital beds in Japan) as of 2020 |
| Accessibility to database | Partly accessible as an open document | Partly accessible as an open document |
The JSH Hematologic Disease Registry is a registration database in which all instances of patients with newly diagnosed hematological disorders except iron deficiency anemia are registered in Japan. The incidence data obtained from the JSH Registry may be approximated to the true incidence of a hematological disease in Japan. The DPC study database is an annual summary of reimbursement claims for medical fee points of hospitalized patients in Japan. The frequency data of PRCA obtained from the DPC study database may thus reflect the number of patients with PRCA requiring hospitalized care for any medical or surgical indications, including PRCA itself.