Table 4.

Adaptation of the SICG

AdaptationOriginal SICGAdapted SICG
Format 
 Page 1: SICG Page 1: summary/checklist 
 Page 2: summary/checklist Page 2: SICG 
Language 
“Set up” “I’d like to talk about what is ahead with your illness and do some thinking in advance about what is important to you so that I can make sure we provide you with the care you want; is this okay?” “Many patients like to talk about what is ahead with their illness and think about what is important to them. This is part of the care we provide for all of our patients to make sure that we provide the care you want; is this something you would like to talk about?” 
“Assess” “How much information about what is likely to be ahead with your illness would you like from me?” “What kind of information would you like to know about what is ahead with your illness?” 
“Share” “I want to share with you my understanding of where things are with your illness…” “I want to share with you my understanding of where things are with your illness – is that something you [and others] would like to know” 
 Uncertain: “It can be difficult to predict what will happen with your illness. I hope you will continue to live well for a long time but I’m worried that you could get sick quickly, and I think it is important to prepare for that possibility.” Uncertainty: “It can be difficult to predict what will happen with your illness. I hope you will be able to live the life you want, but and it is possible that you could get sick quickly. I think it is important to prepare for that possibility.” 
 Time: “I wish we were not in this situation, but I am worried that time may be as short as ___ (express as a range, eg, days to weeks, weeks to months, months to a year).” Prognosis: “I wish we were not in this situation, but it is possible that time may be as short as [express as a range, eg, days to weeks, weeks to months, months to a year].” 
 Function: “I hope that this is not the case, but I’m worried that this may be as strong as you will feel, and things are likely to get more difficult.” Functional status: “I hope this is not the case, but patients in your situation may have more physical difficulty in the upcoming [days, weeks, years]. It is possible that things may get harder for you.” 
“Explore” “What are your most important goals if your health situation worsens?” “What is most important to you (goal) if your health worsens?” 
 “What are your biggest fears and worries about the future with your health?” “Do you have any worries or fears about your health? If so, what worries you the most?” 
 “What gives you strength as you think about the future with your illness?” “What gives you strength as you think about the future with your health?” 
 “What abilities are so critical to your life that you can’t imagine living without them?” Removed from adapted guide 
 “If you become sicker, how much are you willing to go through for the possibility of gaining more time?” “If you become sicker, what are you willing to go through for the possibility of living longer?” 
 “How much does your family know about your priorities and wishes?” “How much does your caregiver/family know about your feelings regarding your illness?” 
 Added into adapted guide “Is there something really important for me to understand about you?” 
“Close” “I’ve heard you say that ___ is really important to you. Keeping that in mind, and what we know about your illness, I recommend that we ___. This will help us make sure that your treatment plans reflect what’s important to you.” “I’ve heard you say that ___ is really important to you. I would like to share my recommendations based on what we have talked about; is this okay? Keeping that in mind, and what we know about your illness, I recommend that we ___. This will help us make sure that your treatment plans reflect what’s important to you.” 
 “How does this plan seem to you?” “Would you like to add anything to that?” 
 Added into adapted guide “We could have a meeting with your caregiver/family and talk more about this.” 
 “I will do everything I can to help you through this.” “I care about what happens to you and I will continue to help you through this.” 
AdaptationOriginal SICGAdapted SICG
Format 
 Page 1: SICG Page 1: summary/checklist 
 Page 2: summary/checklist Page 2: SICG 
Language 
“Set up” “I’d like to talk about what is ahead with your illness and do some thinking in advance about what is important to you so that I can make sure we provide you with the care you want; is this okay?” “Many patients like to talk about what is ahead with their illness and think about what is important to them. This is part of the care we provide for all of our patients to make sure that we provide the care you want; is this something you would like to talk about?” 
“Assess” “How much information about what is likely to be ahead with your illness would you like from me?” “What kind of information would you like to know about what is ahead with your illness?” 
“Share” “I want to share with you my understanding of where things are with your illness…” “I want to share with you my understanding of where things are with your illness – is that something you [and others] would like to know” 
 Uncertain: “It can be difficult to predict what will happen with your illness. I hope you will continue to live well for a long time but I’m worried that you could get sick quickly, and I think it is important to prepare for that possibility.” Uncertainty: “It can be difficult to predict what will happen with your illness. I hope you will be able to live the life you want, but and it is possible that you could get sick quickly. I think it is important to prepare for that possibility.” 
 Time: “I wish we were not in this situation, but I am worried that time may be as short as ___ (express as a range, eg, days to weeks, weeks to months, months to a year).” Prognosis: “I wish we were not in this situation, but it is possible that time may be as short as [express as a range, eg, days to weeks, weeks to months, months to a year].” 
 Function: “I hope that this is not the case, but I’m worried that this may be as strong as you will feel, and things are likely to get more difficult.” Functional status: “I hope this is not the case, but patients in your situation may have more physical difficulty in the upcoming [days, weeks, years]. It is possible that things may get harder for you.” 
“Explore” “What are your most important goals if your health situation worsens?” “What is most important to you (goal) if your health worsens?” 
 “What are your biggest fears and worries about the future with your health?” “Do you have any worries or fears about your health? If so, what worries you the most?” 
 “What gives you strength as you think about the future with your illness?” “What gives you strength as you think about the future with your health?” 
 “What abilities are so critical to your life that you can’t imagine living without them?” Removed from adapted guide 
 “If you become sicker, how much are you willing to go through for the possibility of gaining more time?” “If you become sicker, what are you willing to go through for the possibility of living longer?” 
 “How much does your family know about your priorities and wishes?” “How much does your caregiver/family know about your feelings regarding your illness?” 
 Added into adapted guide “Is there something really important for me to understand about you?” 
“Close” “I’ve heard you say that ___ is really important to you. Keeping that in mind, and what we know about your illness, I recommend that we ___. This will help us make sure that your treatment plans reflect what’s important to you.” “I’ve heard you say that ___ is really important to you. I would like to share my recommendations based on what we have talked about; is this okay? Keeping that in mind, and what we know about your illness, I recommend that we ___. This will help us make sure that your treatment plans reflect what’s important to you.” 
 “How does this plan seem to you?” “Would you like to add anything to that?” 
 Added into adapted guide “We could have a meeting with your caregiver/family and talk more about this.” 
 “I will do everything I can to help you through this.” “I care about what happens to you and I will continue to help you through this.” 
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