Patient and caregiver demographics
| . | Patients (n = 15) . | Caregivers (n = 5; 1 caregiver missing data) . |
|---|---|---|
| Mean age, y (SD, range) | 70 (5, 61-80) | 69 (5, 62-75) |
| Median age, y (IQR) | 72 (6.0) | 70 (4.8) |
| Female (%) | 6 (40.0) | 3 (75.0) |
| Race | ||
| White (%) | 14 (93.3) | 4 (100.0) |
| African American (%) | 0 (0.0) | 0 (0.0) |
| Asian (%) | 1 (6.7) | 0 (0.0) |
| Not reported (%) | 0 (0.0) | 0 (0.0) |
| Ethnicity | ||
| Hispanic or Latino | 1 (6.7) | 1 (25.0) |
| Not Hispanic or Latino | 14 (93.3) | 3 (75.0) |
| Level of education (%) | ||
| High school | 4 (26.7) | 0 (0) |
| Some college but did not complete | 3 (20.0) | 1 (25.0) |
| Complete college education | 2 (13.3) | 2 (50.0) |
| Postgraduate | 6 (40.0) | 1 (25.0) |
| Marital status (%) | ||
| Married | 7 (46.6) | 3 (75.0) |
| Committed significant other | 1 (6.7) | 1 (25.0) |
| Divorced | 3 (20.0) | 0 (0.0) |
| Widowed | 3 (20.0) | 0 (0.0) |
| Single | 1 (6.7) | 0 (0.0) |
| Employment status (%) (data from 1 patient are missing) | 14 (100.0) | 4 (100.0) |
| Retired | ||
| Living at home with patient (%) (data from 1 patient are missing) | N/A | |
| Partner | 7 (50.0) | |
| Friend | 1 (7.1) | |
| None | 6 (42.9) | |
| Caregiver not living with patient (%) (data from 1 patient are missing) | N/A | |
| Children | 2 (14.3) | |
| Partner | 1 (7.1) | |
| Other relative | 1 (7.1) | |
| None | 10 (71.4) | |
| Relationship to patient (%) | N/A | 4 (100.0) |
| Partner | ||
| Diagnosis (at time of interview) (%) | N/A | |
| AML | 9 (60.0) | |
| MDS | 6 (40.0) | |
| Antecedent hematologic malignancies | N/A | |
| MDS | 2 (13.3) | |
| Chronic myelomonocytic leukemia | 1 (6.7) | |
| Essential thrombocytosis | 1 (6.7) | |
| Myeloproliferative disorder | 1 (6.7) | |
| None | 11 (73.3) | |
| Initial treatment at diagnosis (%) | N/A | |
| Intensive treatment | 4 (26.7) | |
| Lower-intensity treatment | 8 (53.3) | |
| Best supportive care | 3 (20.0) | |
| Comorbidities | N/A | |
| Hypertension | 8 (53.3) | |
| Depression | 5 (33.3) | |
| Hyperlipidemia | 4 (26.7) | |
| Diabetes | 4 (26.7) | |
| Eastern Cooperative Oncology Group performance status (at time of interview) (%) | N/A | |
| 0 | 8 (53.3) | |
| 1 | 3 (20.0) | |
| 2 | 3 (20.0) | |
| 3 and 4 | 0 (0.0) | |
| Not documented | 1 (6.7) |
| . | Patients (n = 15) . | Caregivers (n = 5; 1 caregiver missing data) . |
|---|---|---|
| Mean age, y (SD, range) | 70 (5, 61-80) | 69 (5, 62-75) |
| Median age, y (IQR) | 72 (6.0) | 70 (4.8) |
| Female (%) | 6 (40.0) | 3 (75.0) |
| Race | ||
| White (%) | 14 (93.3) | 4 (100.0) |
| African American (%) | 0 (0.0) | 0 (0.0) |
| Asian (%) | 1 (6.7) | 0 (0.0) |
| Not reported (%) | 0 (0.0) | 0 (0.0) |
| Ethnicity | ||
| Hispanic or Latino | 1 (6.7) | 1 (25.0) |
| Not Hispanic or Latino | 14 (93.3) | 3 (75.0) |
| Level of education (%) | ||
| High school | 4 (26.7) | 0 (0) |
| Some college but did not complete | 3 (20.0) | 1 (25.0) |
| Complete college education | 2 (13.3) | 2 (50.0) |
| Postgraduate | 6 (40.0) | 1 (25.0) |
| Marital status (%) | ||
| Married | 7 (46.6) | 3 (75.0) |
| Committed significant other | 1 (6.7) | 1 (25.0) |
| Divorced | 3 (20.0) | 0 (0.0) |
| Widowed | 3 (20.0) | 0 (0.0) |
| Single | 1 (6.7) | 0 (0.0) |
| Employment status (%) (data from 1 patient are missing) | 14 (100.0) | 4 (100.0) |
| Retired | ||
| Living at home with patient (%) (data from 1 patient are missing) | N/A | |
| Partner | 7 (50.0) | |
| Friend | 1 (7.1) | |
| None | 6 (42.9) | |
| Caregiver not living with patient (%) (data from 1 patient are missing) | N/A | |
| Children | 2 (14.3) | |
| Partner | 1 (7.1) | |
| Other relative | 1 (7.1) | |
| None | 10 (71.4) | |
| Relationship to patient (%) | N/A | 4 (100.0) |
| Partner | ||
| Diagnosis (at time of interview) (%) | N/A | |
| AML | 9 (60.0) | |
| MDS | 6 (40.0) | |
| Antecedent hematologic malignancies | N/A | |
| MDS | 2 (13.3) | |
| Chronic myelomonocytic leukemia | 1 (6.7) | |
| Essential thrombocytosis | 1 (6.7) | |
| Myeloproliferative disorder | 1 (6.7) | |
| None | 11 (73.3) | |
| Initial treatment at diagnosis (%) | N/A | |
| Intensive treatment | 4 (26.7) | |
| Lower-intensity treatment | 8 (53.3) | |
| Best supportive care | 3 (20.0) | |
| Comorbidities | N/A | |
| Hypertension | 8 (53.3) | |
| Depression | 5 (33.3) | |
| Hyperlipidemia | 4 (26.7) | |
| Diabetes | 4 (26.7) | |
| Eastern Cooperative Oncology Group performance status (at time of interview) (%) | N/A | |
| 0 | 8 (53.3) | |
| 1 | 3 (20.0) | |
| 2 | 3 (20.0) | |
| 3 and 4 | 0 (0.0) | |
| Not documented | 1 (6.7) |
N/A, not applicable; SD, standard deviation.