Recommended areas of focus for future research priorities and clinical practice
| Area . | Focus . |
|---|---|
| Study design and measures | Proactively collect psychosocial and financial health data among HCT patients and families across the entire trajectory of transplant care (longitudinal) using large, representative samples. Increase focus on special populations—children, adolescents, and young adults, older adults, racial/ethnic minority patients. Use well-validated and standard patient-reported outcome measures. |
| Screening and assessment | Develop evidence-based recommendations for universal screening and assessment of HCT patients and families at defined time points across the entire transplant trajectory using a standard set of patient-reported outcome measures focused on psychosocial and financial distress. Leverage technology to ensure robust connectivity to HCT center and community-based resources. |
| Rehabilitation and intervention | Develop and test effective rehabilitation strategies, social support (emotional, informational, and logistical) interventions, and financial support interventions. Employ novel platforms for delivery and developmentally tailored for special populations. |
| Education and awareness | Raise awareness regarding psychosocial and financial health through various means including educational efforts directed at all levels including, but not limited to, patients and families as well as transplant care providers and policy-makers. Develop metrics to examine the effectiveness of these measures. |
| Area . | Focus . |
|---|---|
| Study design and measures | Proactively collect psychosocial and financial health data among HCT patients and families across the entire trajectory of transplant care (longitudinal) using large, representative samples. Increase focus on special populations—children, adolescents, and young adults, older adults, racial/ethnic minority patients. Use well-validated and standard patient-reported outcome measures. |
| Screening and assessment | Develop evidence-based recommendations for universal screening and assessment of HCT patients and families at defined time points across the entire transplant trajectory using a standard set of patient-reported outcome measures focused on psychosocial and financial distress. Leverage technology to ensure robust connectivity to HCT center and community-based resources. |
| Rehabilitation and intervention | Develop and test effective rehabilitation strategies, social support (emotional, informational, and logistical) interventions, and financial support interventions. Employ novel platforms for delivery and developmentally tailored for special populations. |
| Education and awareness | Raise awareness regarding psychosocial and financial health through various means including educational efforts directed at all levels including, but not limited to, patients and families as well as transplant care providers and policy-makers. Develop metrics to examine the effectiveness of these measures. |