Examples of SCD projects funded by the PCORI
| Project title . | Project type . | Budget . | Time line . |
|---|---|---|---|
| We'll Take the Village: Engaging the Community to Develop Better Health - Tier I | Pipeline to proposal | $15 000 | 2015 |
| We'll Take the Village: Engaging the Community to Better Health - Tier II | Pipeline to proposal | $25 000 | 2016-2017 |
| OMPASS: COMmunity Participation to Advance the Sickle Cell Story | Pipeline to proposal | $50 000 | 2017-2018 |
| National Sickle Cell Advocate Network (NSCAN) | Engagement award | $249 855 | 2016-2018 |
| Tennessee Sickle Cell Disease Network Project | Engagement award | $249 963 | 2014-2017 |
| Disseminating Results: Missed SCD Clinic Appointments and the Health Belief Model | Engagement award | $417 106 | 2019-2021 |
| Automating Quality and Safety Benchmarking for Children: Meeting the Needs of Health Systems and Patients | PCORnet demonstration | $1 264 641 | 2016-2021 |
| Engaging Parents of Children With SCA and Providers in Shared-Decision Making for HU | Research project | $1 962 454 | 2017-2023 |
| Comparative Effectiveness of a Decision Aid for Therapeutic Options in Sickle Cell Disease | Research project | $2 143 228 | 2013-2018 |
| PATient Navigator to rEduce Readmissions—The PArTNER Study | Research project | $2 054 803 | 2013-2018 |
| Patient-Centered Comprehensive Medication Adherence Management System to Improve Effectiveness of Disease Modifying Therapy With HU in Patients With SCD | Research project | $2 148 331 | 2013-2018 |
| Comparing Two Ways to Help Patients With SCD Manage Pain (CaRISMA) | Research project | $4 343 821 | 2019-2024 |
| Comparing Patient Centered Outcomes in the Management of Pain Between Emergency Departments and Dedicated Acute Care Facilities for Adults With SCD | Research project | $4 358 545 | 2014-2020 |
| National Pediatric Learning Health System (PEDSnet) - phase 1 | PCORnet: CDRN (phase I) | $6 459 893 | 2013-2015 |
| Mid-South Clinical Data Research Network - phase 1 | PCORnet: CDRN (phase 1) | $6 672 017 | 2013-2015 |
| Community Health Workers and Mobile Health for Emerging Adults Transitioning SCD Care (COMETS Trial) | Research project | $8 456 632 | 2017-2024 |
| Research Action for Health Network (REACHnet) | PCORnet: CDRN (phase 2) | $8 641 395 | 2015-2019 |
| Comparative Effectiveness of Peer Mentoring Versus Structured Education-Based Transition Programming for the Management of Care Transitions in Emerging Adults With SCD | Research project | $9 753 462 | 2017-2024 |
| Mid-South Clinical Data Research Network | PCORnet: CDRN (phase 2) | $10 064 128 | 2015-2019 |
| Project title . | Project type . | Budget . | Time line . |
|---|---|---|---|
| We'll Take the Village: Engaging the Community to Develop Better Health - Tier I | Pipeline to proposal | $15 000 | 2015 |
| We'll Take the Village: Engaging the Community to Better Health - Tier II | Pipeline to proposal | $25 000 | 2016-2017 |
| OMPASS: COMmunity Participation to Advance the Sickle Cell Story | Pipeline to proposal | $50 000 | 2017-2018 |
| National Sickle Cell Advocate Network (NSCAN) | Engagement award | $249 855 | 2016-2018 |
| Tennessee Sickle Cell Disease Network Project | Engagement award | $249 963 | 2014-2017 |
| Disseminating Results: Missed SCD Clinic Appointments and the Health Belief Model | Engagement award | $417 106 | 2019-2021 |
| Automating Quality and Safety Benchmarking for Children: Meeting the Needs of Health Systems and Patients | PCORnet demonstration | $1 264 641 | 2016-2021 |
| Engaging Parents of Children With SCA and Providers in Shared-Decision Making for HU | Research project | $1 962 454 | 2017-2023 |
| Comparative Effectiveness of a Decision Aid for Therapeutic Options in Sickle Cell Disease | Research project | $2 143 228 | 2013-2018 |
| PATient Navigator to rEduce Readmissions—The PArTNER Study | Research project | $2 054 803 | 2013-2018 |
| Patient-Centered Comprehensive Medication Adherence Management System to Improve Effectiveness of Disease Modifying Therapy With HU in Patients With SCD | Research project | $2 148 331 | 2013-2018 |
| Comparing Two Ways to Help Patients With SCD Manage Pain (CaRISMA) | Research project | $4 343 821 | 2019-2024 |
| Comparing Patient Centered Outcomes in the Management of Pain Between Emergency Departments and Dedicated Acute Care Facilities for Adults With SCD | Research project | $4 358 545 | 2014-2020 |
| National Pediatric Learning Health System (PEDSnet) - phase 1 | PCORnet: CDRN (phase I) | $6 459 893 | 2013-2015 |
| Mid-South Clinical Data Research Network - phase 1 | PCORnet: CDRN (phase 1) | $6 672 017 | 2013-2015 |
| Community Health Workers and Mobile Health for Emerging Adults Transitioning SCD Care (COMETS Trial) | Research project | $8 456 632 | 2017-2024 |
| Research Action for Health Network (REACHnet) | PCORnet: CDRN (phase 2) | $8 641 395 | 2015-2019 |
| Comparative Effectiveness of Peer Mentoring Versus Structured Education-Based Transition Programming for the Management of Care Transitions in Emerging Adults With SCD | Research project | $9 753 462 | 2017-2024 |
| Mid-South Clinical Data Research Network | PCORnet: CDRN (phase 2) | $10 064 128 | 2015-2019 |
Projects are organized by level of funding support from low to high.
CDRN, clinical data research network; HU, hydroxyurea; PCORnet, National Patient-Centered Clinical Research Network.