Table 1.

Overview of workshops

Participants Populations

  • Parents of children living with SCD

  • Adolescents and teens with SCD (aged 13-17 y)

  • Young adults living with SCD (aged 18-39 y)

  • Older adults living with SCD (aged ≥40 y)

 
Locations Chicago, IL
Los Angeles, CA
Atlanta, GA
Houston, TX
Orlando, FL
New York, NY
Oakland, CA
Washington, DC 
Activities Large group town hall discussions
Small group breakout sessions
Informative educational videos and presentations
Question-and-answer opportunities
Living with SCD creative collage activity
Interactive “ideal” clinical trial journey mapping activity 
Participants Populations

  • Parents of children living with SCD

  • Adolescents and teens with SCD (aged 13-17 y)

  • Young adults living with SCD (aged 18-39 y)

  • Older adults living with SCD (aged ≥40 y)

 
Locations Chicago, IL
Los Angeles, CA
Atlanta, GA
Houston, TX
Orlando, FL
New York, NY
Oakland, CA
Washington, DC 
Activities Large group town hall discussions
Small group breakout sessions
Informative educational videos and presentations
Question-and-answer opportunities
Living with SCD creative collage activity
Interactive “ideal” clinical trial journey mapping activity 
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