HRQoL by domains according to age group
| HRQoL domain . | All patients N = 204 . | Adults (aged ≥17 y) n = 119 . | Children (aged 8-16 y) n = 62* . | Children (aged 4-7 y) n = 23 . |
|---|---|---|---|---|
| Physical health | 33.1 ± 28.5 | 30.1 ± 28.1 | 38.6 ± 28.7 | 34.2 ± 28.8 |
| Feelings | 37.0 ± 29.1 | 35.2 ± 29.5 | 44.8 ± 26.4 | 25.0 ± 29.4 |
| View of yourself | 34.2 ± 23.4 | 35.4 ± 20.7 | 38.1 ± 25.7 | 17.9 ± 24.1 |
| Sports/school and leisure | 51.7 ± 26.4 | 48.1 ± 25.2 | 58.3 ± 28.0 | 52.2 ± 25.5 |
| Work† | 28.1 ± 27 | 29.2 ± 27.6 | NI | NI |
| Dealing with afibrinogenemia‡ | 25.6 ± 23.2 | 24.4 ± 24.5 | 27.9 ± 20.5 | NI |
| Treatment | 42.9 ± 23.6 | 42.1 ± 21.6 | 45.6 ± 23.4 | 39.7 ± 33.0 |
| Future† | 36.6 ± 23.5 | 36.6 ± 23.5 | NI | NI |
| Family | 42.8 ± 29.4 | 29.1 ± 29.2 | 57.1 ± 19.8 | 62.8 ± 21.7 |
| Partnership† | 17.1 ± 24.7 | 17.1 ± 24.7 | NI | NI |
| Friends§ | 33.8 ± 29.4 | NI | 36.3 ± 27.6 | 27.2 ± 33.6 |
| Other people§ | 28.6 ± 26.5 | NI | 30.7 ± 25.6 | 22.8 ± 28.6 |
| Total | 37.2 ± 17.4 | 34.5 ± 17.6 | 42.1 ± 15.4 | 38.5 ± 18.7 |
| HRQoL domain . | All patients N = 204 . | Adults (aged ≥17 y) n = 119 . | Children (aged 8-16 y) n = 62* . | Children (aged 4-7 y) n = 23 . |
|---|---|---|---|---|
| Physical health | 33.1 ± 28.5 | 30.1 ± 28.1 | 38.6 ± 28.7 | 34.2 ± 28.8 |
| Feelings | 37.0 ± 29.1 | 35.2 ± 29.5 | 44.8 ± 26.4 | 25.0 ± 29.4 |
| View of yourself | 34.2 ± 23.4 | 35.4 ± 20.7 | 38.1 ± 25.7 | 17.9 ± 24.1 |
| Sports/school and leisure | 51.7 ± 26.4 | 48.1 ± 25.2 | 58.3 ± 28.0 | 52.2 ± 25.5 |
| Work† | 28.1 ± 27 | 29.2 ± 27.6 | NI | NI |
| Dealing with afibrinogenemia‡ | 25.6 ± 23.2 | 24.4 ± 24.5 | 27.9 ± 20.5 | NI |
| Treatment | 42.9 ± 23.6 | 42.1 ± 21.6 | 45.6 ± 23.4 | 39.7 ± 33.0 |
| Future† | 36.6 ± 23.5 | 36.6 ± 23.5 | NI | NI |
| Family | 42.8 ± 29.4 | 29.1 ± 29.2 | 57.1 ± 19.8 | 62.8 ± 21.7 |
| Partnership† | 17.1 ± 24.7 | 17.1 ± 24.7 | NI | NI |
| Friends§ | 33.8 ± 29.4 | NI | 36.3 ± 27.6 | 27.2 ± 33.6 |
| Other people§ | 28.6 ± 26.5 | NI | 30.7 ± 25.6 | 22.8 ± 28.6 |
| Total | 37.2 ± 17.4 | 34.5 ± 17.6 | 42.1 ± 15.4 | 38.5 ± 18.7 |
Data are presented as mean ± standard deviation. NI = domain not included in questionnaire version.
For one child aged 5.86 years, the Haemo-QoL questionnaire for children aged 8 to 16 years was completed.
Values only for adult group.
Values only for adult and pediatric group aged >8 years.
Values only for pediatric groups.