Demographics at enrollment of ITs <2 years of age with VWD
| . | All (N = 105) . | |
|---|---|---|
| n . | % . | |
| Sex | ||
| Female | 44 | 41.9 |
| Male | 61 | 58.1 |
| Race/ethnicity | ||
| White (non-Hispanic) | 86 | 81.9 |
| Hispanic | 10 | 9.5 |
| Black or other race (non-Hispanic) | 9 | 8.6 |
| Insurance status* | ||
| Private | 61 | 61.0 |
| Public | 39 | 39.0 |
| Unknown | 5 | — |
| VWD type* | ||
| 1 | 61 | 62.9 |
| 2 | 27 | 27.8 |
| 3 | 9 | 9.3 |
| Unknown | 8 | — |
| Age at diagnosis† | ||
| Prenatal-6 mo | 52 | 49.5 |
| 7-23 mo | 52 | 49.5 |
| Reason for diagnostic testing* | ||
| Mother known carrier | 27 | 27.3 |
| Other family history | 40 | 40.4 |
| Bleeding symptom | 32 | 32.3 |
| Unknown | 6 | — |
| Family history of bleeding disorder‡ | ||
| Mother known carrier | 27 | 25.7 |
| Other family history | 56 | 53.4 |
| No family history | 22 | 20.9 |
| HTC contacted before delivery* | ||
| Yes | 30 | 30.3 |
| No | 69 | 69.7 |
| Unknown | 6 | — |
| Method of delivery* | ||
| Vaginal (including vacuum) | 61 | 62.9 |
| Elective C-section | 19 | 19.6 |
| Nonelective C-section | 17 | 17.5 |
| Unknown | 8 | — |
| Vitamin K administered at birth* | ||
| Yes | 64 | 92.8 |
| No | 5 | 7.2 |
| Unknown | 36 | — |
| Birth weight* | ||
| High birth weight (>4.1 kg) | § | ∼5% |
| Normal birth weight (2.5-4.1 kg) | 65 | 82.3 |
| Low birth weight (<2.5 kg) | 10 | 12.7 |
| Unknown birth weight | § | — |
| Preterm birth* | ||
| No (≥37 weeks at delivery) | 87 | 86.1 |
| Yes (31-36 weeks at delivery) | 14 | 13.9 |
| Unknown age at delivery | § | — |
| . | All (N = 105) . | |
|---|---|---|
| n . | % . | |
| Sex | ||
| Female | 44 | 41.9 |
| Male | 61 | 58.1 |
| Race/ethnicity | ||
| White (non-Hispanic) | 86 | 81.9 |
| Hispanic | 10 | 9.5 |
| Black or other race (non-Hispanic) | 9 | 8.6 |
| Insurance status* | ||
| Private | 61 | 61.0 |
| Public | 39 | 39.0 |
| Unknown | 5 | — |
| VWD type* | ||
| 1 | 61 | 62.9 |
| 2 | 27 | 27.8 |
| 3 | 9 | 9.3 |
| Unknown | 8 | — |
| Age at diagnosis† | ||
| Prenatal-6 mo | 52 | 49.5 |
| 7-23 mo | 52 | 49.5 |
| Reason for diagnostic testing* | ||
| Mother known carrier | 27 | 27.3 |
| Other family history | 40 | 40.4 |
| Bleeding symptom | 32 | 32.3 |
| Unknown | 6 | — |
| Family history of bleeding disorder‡ | ||
| Mother known carrier | 27 | 25.7 |
| Other family history | 56 | 53.4 |
| No family history | 22 | 20.9 |
| HTC contacted before delivery* | ||
| Yes | 30 | 30.3 |
| No | 69 | 69.7 |
| Unknown | 6 | — |
| Method of delivery* | ||
| Vaginal (including vacuum) | 61 | 62.9 |
| Elective C-section | 19 | 19.6 |
| Nonelective C-section | 17 | 17.5 |
| Unknown | 8 | — |
| Vitamin K administered at birth* | ||
| Yes | 64 | 92.8 |
| No | 5 | 7.2 |
| Unknown | 36 | — |
| Birth weight* | ||
| High birth weight (>4.1 kg) | § | ∼5% |
| Normal birth weight (2.5-4.1 kg) | 65 | 82.3 |
| Low birth weight (<2.5 kg) | 10 | 12.7 |
| Unknown birth weight | § | — |
| Preterm birth* | ||
| No (≥37 weeks at delivery) | 87 | 86.1 |
| Yes (31-36 weeks at delivery) | 14 | 13.9 |
| Unknown age at delivery | § | — |
Calculations of percentage of distributions do not include response of “unknown” in the denominator.
One person with unknown age at diagnosis excluded from the data.
‡Classification of a family history of bleeding disorder was derived by combining the 2 variables, reason for diagnostic testing, and a member of the household with a bleeding disorder. When a member of the household had a bleeding disorder or the diagnosis was the result of a mother being a carrier or another family member having VWD, the patient was assigned to the positive family history category.
Counts fewer than 5 have been suppressed to protect patient confidentiality. Additional cells may be suppressed to prevent derivation of these counts by subtraction.